Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

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  • Posted

    I`m experiencing the same or similar issues as Taylor for the last 3 years. And I can say it`s steadily getting worse since then. I get these mini blackouts where I could not recall what I wanted to do next, at first they lasted just for a second but now they ar a lot more pronounced, it might take me up to a minute to remember what I was about to do next, sometimes I don`t remember at all. My ability  to concentrate getting steadily worse, especially in an loud environment. Add bright lights and other hectic things to the mix and I`m doomed. I feel more and more withdrawn from people, conversations are at times difficult to follow. The last 3 days I would compare to being mentally tortured, no other way to describe it. I feels so easily agitated it`s incredible. I have problems at times finding the right words when speaking to someone and make plenty mistakes when writing emails. But the concentration problems I would rate as most worrying as they are getting worse and worse.

    Anyone else here feeling their symptoms are getting increasingly worse of month and years?  Anyone else here having in between all their issues some random times that are trouble free or feel like you are getting some relief for a short time? In my case I have those days but then afterwards it`s all even worse and I have a new baseline which represents the new normal for me which of course is worse then the old baseline.

    Life is really difficult like this not to say exhausting and there seems to be no real hope that it might become any better.

    • Posted

      I’m in the same boat. I try to explain to my fiancé who works outdoors all day that I’m equally as tired coming home from my desk job. Much of the time I have to rewrite things because they sound so awful. The best way I can explain it is it feels like I am drunk with a cold ALL the time. Everything feels weird. I can’t explain it, it just feels weird. I’m exhausted, everything is achy, I can’t remember much (thank God my fiancé has an amazing memory). It’s more annoying than anything. Something someone said the other day struck me as I couldn’t find the words for it but it was basically: “it is as if I am looking at the world through a cheese cloth.” Anyone else experience this feeling? It’s like everything isn’t blurry but it’s not exactly clear. My spatial sense is all out of wack. I bump/run into things all the time because I have a hard time judging the distance. Everything is also not as bright and clear light wise. Like when you’re drunk. I’ve tried all sorts of elimination diets and while they sort of help, nothing happens to where I feel like it could be the culprit. I’m going to look back into chiropractic work because it helped me feel better in my body, albeit not much mentally. For me, there aren’t days of relief, more like moments. It may make others feel hopeless but I like to believe that it’s that small part of me that reminds me that I’m still there and everything is gonna be okay.  Something to look into, though, if you haven’t already is a sinus infection. Sounds simple and stupid but hear me out.

      I’ve had waaaaaaaay too many tests to count. I’ve been dealing with this for 4.5 years and if there is a test, I’ve probably had it; including a  full hormone panel, thyroid TWICE, and ultrasounds of my ovaries. I mean, my doc tried everything he could think of. He even managed to convince my insurance to pay for an MRI after they denied me initially. But the sinus thing is the only thing we haven’t looked into yet, but here’s why I have a hunch this could be it, if not part of it.

      Last year I was a mess medically. I was constantly in and out of the ER with chest pains (not anxiety related), pain in my ovaries, and this weird cough. My body also would not digest my food if there was any meat in it. It would literally just sit in my stomach all day. I went to the ER because I felt just awful and I was given an antibiotic for something (probably the cough), and from the end of the year up until the middle of January, I felt great. It was like nothing ever happened. I was on the Dean’s list, I was doing great in the following semester, drinking coffee (I couldn’t anymore because I became super sensitive to caffeine), and I was REALLY happy. No brain fog. Nothing was wrong. It was like it was all a dream or something. Then mid-January rolled around and it came back with a vengeance. That’s when all the intensive testing started. I believe that the antibiotic I took helped a possible sinus infection and that’s why I felt great. 

      Here’s another reason why I have a hunch it is sinus related. I grabbed a neti pot because my nose feels constantly inflamed inside. I have no allergies whatsoever, but I always feel like I have a dry stuffy nose. No mucus. I used the neti pot for the first time ever last night and I had a lot of nose blowing afterward (nothing color wise), and today I wasn’t dizzy. Still had brain fog but I wasn’t dizzy. Or nauseous which is typically caused by the dizziness. And for a few minutes, everything looked “normal.”  I’m back to the bleh feeling again, but I think I might be on to something. Just look up some info on sinus infection, sinusitis, or the like and see what you find symptom wise to see if it fits what you’re going through.

      Sorry for the incredibly long post, but if I can help us all solve this problem, it would be amazing. We are all gonna get our lives back, we just gotta keep trying!

    • Posted

      Thank you for the post. Definitely something to look into. God bless and heal you. 
    • Posted

      That’s crazy that we both took a sinus (bacteria) med and it relieved the brain fog. I’m 21 & I’ve dealt with this brain fog for 7 years, and I took Bactrium and another med back to back for bronchitis one time and that’s the only free day I’ve had out of feeling like I’m in a dream. I finally found out what I took that long ago and it didn’t releave me this time sadly. But it’s just odd because what was it that gave us that relief! Doesn’t make sense. & I’ve been to 3 sinus docs and 2 of them said I was fine and one said I needed surgery. So 2 ruled out 1 so I didn’t proceed. & I don’t feel congested, I never have a runny nose or any other sign I just thought maybe something wasn’t flowing through and making me feel like way. I also get dizzy, sensitive to lights, and my head/eyes feels tight sometimes throughout the day. It’s just odd, WHY that med did that and teased me. But that caught my eye when you said the same about a sinus med. I don’t have energy either, some days I have good days where the fog is light but it never goes away. 

    • Posted

      I understand where you feel like it’s getting worse over time instead of better. I think we’re just tired of it and starts doubting because we’re not getting any answers. I think it’s because we have to go out every day like everything is okay when it’s not .. it gets very overwhelming. & I think being in stressful situations no matter what it is (life) makes the feeling worse because your brain is working even harder. & basically you get mad and frustrated at yourself because you can’t catch a break. That’s how I feel. 

  • Posted

    Additionally, i found a forum that also applies to the problems I have in addition to what I have seen on this forum.

    https://www.healthboards.com/boards/brain-tumors/848238-spaced-out-high-drunk-feeling-please-help[b].html

  • Posted

    Yes! Lyme and coinfections! Lyme tests are usually inaccurate. Those of us with Lyme are fighting the CDC and infectious disease to get guidelines and testing changed. If you're unable to get doxy, there are herbal protocols you can start with (cowden, Buhner etc... no, I'm not affiliated with any of these). My symptoms started like this... severe derealization, then stress from a car accident made me much worse (symptoms you can't imagine). That's the thing with Lyme.... it can do just about anything to someones body and drs can't figure it out. Things like tinnitus, anxiety, heart issues and everything I skimmed through here yelled "Lyme" to me. Look up a list of symptoms. It's called the great imitator! MS, ALS, IBS, chronic fatigue, auto immune issues and so on. I got Lyme, bartonella and babesia in 2011 then Rocky Mountain spotted fever and ehrlichia in 2015. Find an LLMD (Lyme literate dr) near you since primary drs and others don't know how to test or treat. Get on Facebook and join one of the thousands of Lyme groups. You'll learn a ton!

    • Posted

      Well, I'm definitely negative for Lyme. Elisa, Western blot, and lumbar puncture all negative.

      [b]Moderator comment: I have removed reference to individual private clinics which are not supported by UK doctors[b]

    • Posted

      Did the meds help you with your symptoms ? Dp/dr?pls let us know what helped thank you 
  • Posted

    Oh and you dont need to live in a certain area or have the bulls eye rash or even see a tick on you. I'm in NC, didn't see a tick or have the bulls eye either time. Lyme is worldwide. Think about it. They can attach to birds and other animals, not to mention people on flights. I've been researching this for 6 years now and know a thing or two. 

  • Posted

    I have suffered from these same symptoms on and off for 3-4 years now, at least I think it's been that long, it's hard to tell because of my severe memory problems. Before all this started I was an extremely bright individual who excelled at everything and now I struggle to write even a basic blog reply. The symptoms are all similar to what has been stated previously: Brain Fog, Memory Loss, Depersonalization,  etc etc but what makes matters worse is that I myself am a health care professional and while I know that these symptoms are anxiety related and would diagnose a Pt as such I can not seem to pull myself out of it. I was on an executive leadership track but because of my suffering ny career has all by stagnated. I'm at odds with how I should proceed. All tests have been performed personally multiple times and I am clear for everything I could possibly think of. I even tested for mold induced illnesses with no avail, this makes me believe it is certainly anxiety but trying to overcome it has proved to be a larger task than I had previously thought. I will update if I find something that works but for now my advice is destressing and engaging in anti- anxiety behavior such as meditation,  excercise,  or brain stimulating hobbies like chess.

    • Posted

      Thank you for sharing. Don’t give up hope. God can heal. I pray you get better. 
    • Posted

      Hi I'm suffering with the same exact symptoms (plus a few more )have you found anything that helps ,this has changed my life completely. God bless

    • Posted

      Hi moleman have you found anything that helps ??
  • Posted

    Hi all. I feel like this since I was a child. Blood tests ok. Brain scan ok. Thinking about neck scan. Was on Prozac but get mania on it. Try it it

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