Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

Posted , 640 users are following.

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

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  • Posted

    I'd like to post a sort of PSA / poll:

    For those of you who:

    -Do NOT have Lyme disease (or are unsure)

    ...do you have any metal dental fillings?

    I've recently seen studies linking amalgam dental fillings (aka. silver fillings, metal fillings) with brain fog, memory loss, mysterious body aches and pains, digestive issues, etc. due to the fact that these fillings are 50-60% MERCURY (what the actual hell is our FDA thinking.....). 

    Extended exposure to this mercury can cause low levels of mercury toxicity, which is a very potent neurotoxin and can silently contribute to MANY of the issues we are describing in this forum. 

    Please reply and us know. I have metal dental fillings and I've slowly but surely been getting worse over the years regarding these brain fog symptoms, among the others. This may be a solid lead in helping us get to the bottom of this!

     

    • Posted

      I am also working on getting my amalgam fillings removed.  Heavy metals can contribute to brain fog and also makes Lyme worse if you have it.

    • Posted

      After a few years of light-headedness, unable to concentrate etc. I went to a doctor who suggested removing my fillings, I had a higher than normal mercury level according to a previous test using a hair sample so I was keen to do it, anyway after removal I didn't notice too much difference(over time) although I am not as bad as I used to be, but I am getting used to living with it, if that is possible? 

      ?I also investigated my breathing and read a great book by Dinah Bradley titled Hyperventilation Syndrome. Dinah is a respiratory physiotherapist in New Zealand and as I live in the same town I was able to make an appointment to see her. Many symptoms can be attributed to breathing and that was definitely part of my problem. I'm a lot better these days but still suffer from poor concentration and can get confused easily.

      ?Removing amalgam fillings can be expensive as they have to be replaced with something else but I believe it is worth it.

      ?All the best

       

  • Posted

    Hi Taylor!

    I have been having very sinilar symptoms for the past 8 months. Very spacey, dizzy type feeling, really bad short term memory and feeling like I'm in a dream. I started having panic attacks etc and getting extremely anxious.

    I have been to cardiologist and a neurologist and had scans etc but everything is fine. Blood tests all come back normal as well.

    After seeing my neurologist, he sent me to a neuropsyciatrist. The neuropsyciatrist was very thorough and is quite confident this is all steming from anxiety and will go away once that is treated.

    I'm trying to get on top of it now and feel confident I will get better. The neuropsyciatrist is confident I will make a full revovery too!

  • Posted

    Hi everyone. Just wanted to share my experience and share what I feel like can be done to get over this. The way i see it is brain fog is just a very tired mind that has gone into protection mode. We all do so much thinking and give brain fog SO much attention, and what people dont realise is that this is what makes it worse. This is the fuel. Being a sufferer of brain fog myself i know its hard to just try live life without thinking about it. But you have to! Dont fuel it. Live your life normally. Eat healthier. Exercise and most importantly FORGIVE YOURSELF. Dont be annoyed if you don't feel 100%. The great thing is it is beatable and fixable from anytime in life. So start now. Stop googling symptoms. Stop youtube binging through brain fog videos. Stop talking to people about it. Cut off the fuel it needs.... and start focusing on YOU. Hot baths, massages, yoga, breathing exercises. Distraction techniques! I know it sounds easy, but i know how hard it is. But we have a community here so we all know what youre going through. Good luck peeps

    • Posted

      I do believe you are on yo something! Although most of the time I don't feel like leaving my house and being social, when I do the brain fog seems to be better. It's when I'm home thinking and worrying that's it's the he worst.

  • Posted

    Just found something new- discovered I had extreme vitamin D-3 deficiency via a bloodtest.  Started a mix of prescription strength + otc  vit D-3 supplementation and a week in I already feel like a different person.  No brain fog, don't feel like I was run over by a truck in the morning when I wake up, no anxiety or depression since after about day 3, I have energy and motivation instead of feeling lethargic and uninspired.   

      

    I'm not just going to assume all of my symptoms are gone this early on, but I'm definitely feeling all around encouraged.  I'm also encouraged from reading that some of my body pain that I constantly have may go away as time goes on.  

      

    After researching this subject for a while, there's definitely a lot of things that can cause bad brain fog, but if you haven't specifically had your Vitamin D3 levels checked then you should.  My doctor had given me blood test before, but I had to specifically ask for this test as well as a couple of others that like lyme, b6 and b12 thinking that at least I was narrowing the field.  So glad to finally find something!

      

     

    • Posted

      What mix did you use? I found out last year that I was vitamin D deficient and supplemented 50,000iu prescribed by my doc once a week for 3 months. Got my levels from 21 to 35. Didn’t supplement after that because I was going outside and all the other jazz. Felt terrible by the end of the year and when we re-tested earlier this year, I was back down to 19! I’m trying to supplement with just a little otc towards the end of the week when my mood would drop again, but I’m feeling tired as ever in my 5th week. Would love to know what you used/did. The brain fog, anxiety, and depression need to go.
  • Posted

    I’ve experienced symptoms very similar to what your describing and have tried all the things you’ve tried and spent years chasing a cure. Let me tell you what worked the best ....Doing everything in your power to get quality sleep.  The sleep studies look for sleep apnea but I don’t think they can really gauge sleep. The only real gauge for sleep are those continual days you wake up feeling refreshed. I’m guessing you don’t wake up feeling absolutely refreshed very often do you? For me, getting quality sleep required major lifestyle changes including stopping all medications, no screens before bed, alloting more than 8 hours of sleep in case some of its wasted, practicing breathing techniques before going to sleep so I can fall asleep without being tense and thinking about other things, if I wake up with my mind racing practice meditating to get back to sleep once again. But it’s most important to know that there will be a point in time where you tried these sleep habits and it didn’t feel like it worked. This is a very challenging part of the process because it discourages you to keep trying to get good sleep. Don’t let it discourage you because there will be days where you will find victory in your efforts to get that sleep. Just like an Olympian disciplines their body for the reward, you must discipline your body for sleep to receive that reward of mental awareness once again. Try it. Let me know how it works out for you. 
  • Posted

    Taylor I am responding to you because I wonder how your doing now? I have been having these symptoms as well as muscle cramping and soreness like some others that responded.   It all started when I went through a really bad divorce. The doctors all stuck me with all kinds of mental health issues.  But that was 16 years ago. I still have all these weird symptoms but it’s worse.  I feel like my head is very full and no more can fit, ears ringing, muscle aches, can’t remember peoples names, no concentration, and more. It’s been blamed on sleep deprivation now because I am clearly not depressed. I also am changing my diet and exercising. But now my concentration is interfering with my daily life.  I am now 55 and very worried about Alzheimer’s even though the neurologist ruled that out.  How have you made out and what have you done to help your issues.  I still talk to my doctor but I feel like it’s a dead end road.  Just wondering if you found any relief? Hope to hearsmile 

    Sincerely, Dawna 

  • Edited

    I’ve improved my derealisation/depersonalisation.

    I suffer the same symptoms as everyone on here and in fact, so many people on this post have described it in a better way than I ever could.

    The brain fog, spaceyiness, memory blips, word slurring, looking at my hands in front of me thinking they almost ‘don’t look real’ (if that makes sense). The environment seems far away, I feel robotic, I bump into things and move around differently sometimes, when people talk to me I can hear them perfectly but for some reason I just can’t take on board what their saying straight away. I get a very very very mild headache but more of a pressure/dull feeling in the front of my head. I have floaters in my left eye which appeared suddenly also and various muscle twitches (which have now all gone).

    Your all going to hate me for saying this as I know there’s a lot of denial on it - but disassociation issues such as DR and DP are textbook anxiety symptoms. People who suffer such strange mental and physical feelings simply can’t believe that it’s anxiety that is causing all of this! Who knew it could?! Well it can and it does.

    I though oh no I have MS, ALS, Parkinson’s, severe mental problem, metal poisoning, Candida, Lyme (which is rare here in the U.K. by the way).  Every week there was a new cause but I couldn’t face the reality of the fact I had a panic attack followed by a month and a half of sleep deprivation (3 -5 hours of poor broken sleep every night - that’s a lot of stress on the body!).

    Ive noticed there’s a trend emerging in 80% of these comments. The symptoms get described and then what gets mentioned within the post usually follows along the lines of - eg: ‘oh and by the way I suffered anxiety attacks when I was young’ or ‘I had a panic attack’ or ‘I was studying really hard for exams’ or ‘I had a break up’ or ‘I was ill’ or ‘after pregnancy...’ etc etc Anxiety is related and involved in all of these life activities. Even if you don’t know it you can be subconsciously anxious or ‘on edge’.

    As a lot of you know, when your threatened or anxious the front part of your brain goes ‘on holiday’ as I like to say. It says ‘screw this, I’m having a break’ and it slows down to help ease the threat. DR m/DP can happen during the moment of fight or flight but unfortunately for some people (aka us poor lot) it lingers and leaves the brain in a heightened state of alert. Which makes sense as when I felt like this if someone dropped a pencil I’d jump 2 ft in the air and spin around wide eyed like ‘what the hell was that??!’ So yeah, heightened senses.

    Let me say this...

    IT WILL GO.

    You have to train the brain.

    You don’t hear success stories hardly on the internet of these forums because everyones quick to come here to type in their problems and ask for help but then when they feel better they forget all about the posts on the internet and don’t want to revisit them. So we’re left hanging with all these negative posts with no follow up so it seems it’s hopeless.

    Acceptance helps. Carrying on doing what you normally did before. Exercise, meet friends, cinema, dates, holidays whatever nothing bad will happen to you, DR and DP cannot hurt you or cause you brain damage.

    Diet. Eat a clean diet, no gluten, less diary, Vit D, Omega 3, B12, Magnesium Oil (or Glycinate for oral consumption) and lots of pure mineral water. Get enough sleep also, before 10PM if you can for 8 hours and get into a routine even on weekends.

    It all helps.

    I haven’t defeated it yet (7months deep) but it’s eased off and I do forget it’s there most the time which I’m hoping my brain will relax more.

    • Posted

      Gcut, thank you for your reply.  Your definitely right about the fact that people probably feel better so they never come back to respond.  I have been dealing with this since 1999 . I guess the length of time is what’s bothering me but on the sam not if I were getting Alzheimer’s I think I would know about it by now because it’s been such a long time.  I am probably not as strict as I could be about diet, exercise and going to bed at the same time every night.  It’s really hard as I am so tired. When I’m tired it’s easier to cheat on what I should be doing.  I also have bad allergies and it makes it hard to breath. I was told I have sleep apnea but the machine made me more tired.  I do have anxiety and I take clonazapam to fall asleep.  I worry about taking it as meds like that can cause early onset Alzheimer’s.  I took an exam the other day and got quite a few answers wrong.  all do to reading and concentration. So  that scared me as it was an easy test. I went over it and knew the answers it was stupid mistakes. It’s  def concentration and paying attention which is difficult. You made me feel better though and I will push harder and get it together and on track.  Thank you smile Dawna 

      Ps, I hope that you continue to feel better and as you do you write your progress once in a while and I will do the same. This way people can hear from  people who hopefully have success in beating this. Thanks again and have a great night 

  • Posted

    I’m just like you, except it started for no reason three years ago. I’m 16 now and for 3 years I’ve been living as it feels like I’m dreaming 24/7 non stop. The best way to explain it is I feel light headed 24/7 and my father tries to tell me it’s an excuse to stay home and when I stay home he grounds me and it gets me depressed Bc I can’t live like a normal person. Especially when I’m not even allowed to. I want answers Bc no one has gave me any
    • Posted

      Well I am writing a food /exercise /feelings diary to try to figure out what makes me sleep better, feel more energetic and have a clear head.  I am doing paleo diet for a month and increasing exercise.  I will write back if it helps. Hang in there and keep pushing.  For me if I give in to the tiredness, it makes me feel worse.  
    • Posted

      The best advice I can give you as someone who has also been 3 yrs deep in this(started out of nowhere) been told anxiety is what it is which I have never bought as a diagnosis but that could be the problem also if they are right however get all your vitamins checked then change your diet and eat vitamins to give you what you need.  Vitamin b and d will def make you feel like this is they are abnormal also get your endocrine system checked out that being even a little out of whack can cause a slew of issues, lastly if all that still doesn’t give you answers and you feel like it can’t be anxiety get your gut checked you may have not enough good bacteria and overall gut health many people do not know but in your stomach there is pathways which litterally affect every bodily function and system you have. That’s why celiacs and crones disease cause so many issues among other things. If all that isn’t an answer start reading on acceptance and meditation and exercises to keep your mind busy because more than likely if all that failed. it is anxiety and that’s something that if you wanna get over it completely can only be done within yourself find your reason why your are on edge and scared then think it through and figure out why and work on that there’s a lot to unpack there but if you google poor stomach health and the causes you will be amazed. I have just finished a year long research into all this and now started making a plan to combat it, there a supplement called total gut health which I ordered and will be starting that on Monday and hopefully it goes good and I can come back and let everyone know

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