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Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

Posted , 640 users are following.

TaylorMason
TaylorMason

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

1428 Replies

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  • erin5880
    erin5880 TaylorMason

    Posted

    Hi there! I am experiencing similar systems. Some days are better than others but today is a bad one which lead me to Googling and I found you. 

    Did you ever find any explanation or anything that will help? 

    Thanks so much,

    Erin 

    • Hahehshskieiek
      Hahehshskieiek erin5880

      Posted

      Erin I just saw your post and want to tell you. I have had this issue for years. I was so concerned that I went to a neurologist because I thought I was getting Alzheimer’s. I was not I tested fine. I went to a sleep clinic and they hooked me up to a sleep apnea machine which made my sleep worse which made all other symptoms worse and all this was thru my Personal care physician.  No one could help. It’s been 16 years. I am now on a GF, DF, organic as possible diet and exercise of yoga and jogging.  Sleep the same time every night if possible. No computer or phone an hour before bed. Only half hour of tv then lights out. All these things together really helped.  I am sleeping better but not perfect but I’m feeling better. It’s slow going but I’m hopping it continues and I will definitely keep the forum up to date with hopefully good progress. ❤️ Keep plugging 
  • Ceespot
    Ceespot TaylorMason

    Posted

    Hi guys, I’m still suffering (2years now) with brain fog symptoms and really poor memory. I’m waiting results from blood tests. 

    I stumbled upon a 7 part documentary series on YouTube called Broken Brain by Dr.Mark Hyman. a major study on brain fog symptoms, it gives the why and how to fix it backed up by medical professionals and even patients. It’s the best  advice I’ve come across so far and I recommend you watch it. 

    I am putting some of the advice into practice and after 2 weeks I am seeing some improvements. 

    I hope it works for all of you. 

    Cheers

    Craig 

  • erin5880
    erin5880 TaylorMason

    Posted

    Does anyone experiencing these brain fog, confusion, focus issues feel like it's worse during the morning/afternoon? By evening time I actually feel quite normal. It's so odd. As soon as the sun starts going down I feel better. 

    • bearsoup
      bearsoup erin5880

      Posted

      That's me. Entirely. I really am starting to believe my cortisol is producing backwards. Like it's low in the morning and high in the evenings. Just sort of waiting on some other medical stuff to be behind me before I pull the expenses for those tests out of pocket as it is best checked via saliva.

  • bearsoup
    bearsoup TaylorMason

    Posted

    You could have written my story. I have spent 5 years trying to find out why this is happening to me. I have up on western medicine for a bit, but found myself trying one last time to get some answers. Now I am waiting for labs and imaging to come back from elevated liver enzymes and an ultrasound if possible fatty liver or liver disease. I'm thinking, maybe this has been my reason all along. I was just tested for various forms of hepatitis. I've only ever been tested for Hep B so now I'm crazy anxious because my symptoms mimick... well everything usually. That's anxiety for you. However, I'm onto something else after I see this liver thing out. I've read a LOT about adrenal fatigue. I'm a zombie all day long despite sleeping all night, yet in the evenings I have a spike of energy as if I am finally waking up. I don't stay up late, though. Even though I feel as if I could finally get some things accomplished. It seems like you have been through the works in a western medicine standpoint. I would suggest seeing a Naturopathic/Integrative/Alternative Medicine doctor. Unfortunately they aren't usually covered by insurance. They can do testing to see if your cortisol is doing the opposite as it should through saliva. They can also track it daily, as well as your hormones over the course of a whole month. This is important because one blood draw only shows what is happening in that very moment... not over the course of a day or month. If You have had anxiety or other mood issues for a long period of time (like I have) then it makes very good sense that you could simply be experiencing adrenal fatigue. Find someone experienced with it in your area. Many doctors don't even want to hear about that term, but check out the evidence for yourself online. It could be *our* answer for this. My naturopath does not take insurance so I plan to take the tests for my hormones and adrenals after I see what this possible liver thing is. Tests (by saliva because it's more accurate than through blood). Good luck. I honestly feel you on this one. The chronic fatigue has been my biggest complaint time after time with doctors.

    • bearsoup
      bearsoup michael30415

      Posted

      I don't think so. I don't recall and tick bites. I live in the city.

    • michael30415
      michael30415 bearsoup

      Posted

      I have Lyme as I think many on this site do and there is a big  correlation with brain fog. I can’t remember the classic tick bit but did test positive. I am told that you can get it from many other things like Mosquitoes, cat  scratch and more. Check your other  symptoms 
    • bearsoup
      bearsoup michael30415

      Posted

      I have had numerous mosquito bites. The place I live is hella- bad for those, and those little guys just love me. Actually I do recall a couple of tick bite instances several years ago. It looks like testing is hard to get, and unreliable, though.
    • erin5880
      erin5880 bearsoup

      Posted

      I'm in Ohio....we have man eating mosquitos here too and they also LOVE me! I actually stay indoor as soon as the sun goes down I. The summer for this reason! 

      I did Google the testing procedure and it sure isn't very clear cut. 

      I started taking a D and a B12 supplement yesterday and I'm sure hoping that will help! 

    • michael30415
      michael30415 bearsoup

      Posted

      The tick bites I remember were when I was a kid. I was told it can remain dormant and your immune keeps it in check until some stress or event   occurs  that can’t keep it at bay anymore. Testing can be challenging but there are some markers and with symptoms they are usually accurate. I good Lyme doctor would know. There’s a couple of test you should take and the main one I believe is the western blot. I pray you find answers because as you know life  can be a challenge especially if you don’t have your health.  God is good and He can heal you. 
  • imzack
    imzack TaylorMason

    Posted

    I don't like the way this forum is structures, but I think I have found some things that have helped me.

    I took choline, 24 hours later I was getting increased brain fog.

    I took SAMe, 24 hours later I was getting excessive thoughts, brain not able to turn off.

    Conclusion that Choline and SAMe are not good for me.... why?

    Look up there is a interrelationship in methylation, and I believe a possible build up of homocystine.

    Taking Methyl-Folate, P-5-P, and Vit12 to fix these issues.  I have given it a full week at high doeses (5mg of 5-mthf a day).   

    I do get some side effects from high doses of Folate, but their much better than the brain fog, and anxiety, and others that I was getting.  

    I hope someone might find this, and also find it helpful.  This website is poorly structured in my opinion.

     

    • bearsoup
      bearsoup imzack

      Posted

      I was thinking about looking into Choline and SAMe based off of some blogs I have found. I'm Homozygous for MTHFR C677T. I take Methyl-folate, but notice no difference. I still take it anyway. I forgot about this gene mutation til just last night. I had sort of given up on it being a real thing with a real "treatment."

    • erin5880
      erin5880 imzack

      Posted

      I agree that it is not user friendly, but I have found some great information on here! I swear I feel a bit better just know there are so many others with similar symptoms! 
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