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Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

Posted , 640 users are following.

TaylorMason
TaylorMason

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

1428 Replies

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  • findingacure
    findingacure TaylorMason

    Posted

    Additionally I would be very interested to hear if anyone knows what triggered their symptoms or events occurring recently prior to the onset of symptoms or any additional clues or theories you may have.

    Thank you.

    Erica

    • Ebone
      Ebone findingacure

      Posted

      Hey,

      I deal with the same exact symptoms and I'm certain my trigger was post surgery. How are you feeling now (I see this post is a few months old)?  What was your trigger?  It's always comforting to talk to someone about this. 

      Eric

    • simplysarah
      simplysarah findingacure

      Posted

      Erica,

      I suspect I was exposed to a black-market "libido enhancement" substance. A [u]brem el ano tide[/u] (one word. merge those syllables together. A drug company is working furiously to get it approved and I don't want this post nixed...) initially tagged PT-141. It works on the brain. It's also available in transdermal and inhalant forms. Hard to avoid if someone's determined to dose you.

      Immediately after my "accidental" exposure, I've manifested these symptoms weekly for four months now. Can't shake the symptoms. Permanent damage? I don't know. 

      This has changed my life. sad

    • mayssa80
      mayssa80 simplysarah

      Posted

      Hello everyone

      I think my brainfog was triggered by my thyroidectomy . I was hyperthyroid and then after the surgery i went hypo with a tsh level 40 !!! I wasn't put on drugs immediately after my thyroidectomy because we needed the results to see if it had any cancer ... but even when my hifmones are leveled my brain fog is here... i have tinnitus, muscle and joint aches , lightheadedness / dizziness, pressure in the head .... all that !!! But the worst is the memory loss and the blurry vision !!! I m afraid i ll go blind someday !!! Had a brain MRI that came out clear ... an EMG , a barium swallow ... i don't know what to do ???? Now i started to have panick attacks ...

    • AWishForHealth
      AWishForHealth findingacure

      Posted

      Dear Erica, for me it started at the age of 14 after heavy studying for school year end exams. It used to come only once a year usually after intense studying. Around 15 I started to get bullied and stepped into self esteem destruction leading to self hate and depression. I don’t know if that has anything to do with the foggy brain? 
    • ana85762
      ana85762 mayssa80

      Posted

      Hi Mayssa how are you doing ? Are you feeling any better ? Did your symptoms improve at all ?

  • phil37826
    phil37826 TaylorMason

    Posted

    Might be worth looking at your diet. Gluten and dairy intolerance can leave you drained and tired.
    • Noisy6996
      Noisy6996 phil37826

      Posted

      Soy as well, soy lecithin just about kills me, brainfog, short tem mem loss and panic atacks.
    • imzack
      imzack Noisy6996

      Posted

      Same here! Soy lecithin give me bad brain fog... delayed response though, usually get fog 24 hours after ingesting.

      Currently doing carnivore diet. have had success with methlyfolate in the past as well.

  • dylan12268
    dylan12268 TaylorMason

    Edited

    any luck with diagnosing ? 

    im a 20 yo male with the simmilar symptoms. have had the onset of symptoms for most of my life, symptoms get worst to the point where i cant function indeffinetly.

    -constand brain fog, (poor mental clarity, racing thoughts, memory problems)

    -feeling spaced out (like im drunk 24/7)

    -vision problems,(floaters, like drunk vision, eyes cant focus properly)

    -food intolerences etc

    ive had numerous blood work done which only found mild liver abnormilities, ive seen a gastro, now im waiting for a neurologist appointment.

    i have not come in any contact as far as i know with tick bites or other infectious diseases.

    my gp is starting to give up because theres not much more he can do and its starting to really effect me.

    • vinu09319
      vinu09319 dylan12268

      Posted

       Did you do blood work for Vitamin D levels? I have similar symptoms which gradually increased over time. My Vit D level was at 14. I am on supplements for 3 months, not much improvement but I will check my levels again next week. Still not sure if its due to Vit D.
    • ali555
      ali555 dylan12268

      Posted

      feel the same way, 23 yo female. Think derealization is the culprate but could have to do with brain inflammation. Anything new since this post?
    • ana85762
      ana85762 dylan12268

      Posted

      Hi how are you ?did your symptoms improve over the years ?

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