Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

I had two abnormalities.....1) very high vitamin B12 levels...

2) high inflammation markers.....

Both were inexplicable, but the inflammation levels were another pointer to FIBROMYALGIA.....

It makes it harder and so frustrating when you you go from test to test with no clear diagnosis...

I was eventually diagnosed by a rheumatologist...( my GP was above excellent. )..but is it wearing feeling awful with no answer....I take it they have ruled out ME.?...

Like you I still find the terrible memory loss the worst aspect.... I even forget close relatives name....don't give up on finding an answer, almost everything it treatable.....I so feel for you...I really, really, really hope that the doctors find a CLAUSE and a SOLUTION....Take VERY good care of yourself, try to keep strong....I send you big, warm hugs....DEIRDRE x

I thank you for explaining what I am going through for last year in words. I would not be able to explain it as good as you did.

I first suspected my thyroid too and went to a specialist. They run a lot of tests to find nothing. I took melatonin supplements to sleep deeper and at the same time everyday with no results. The doctors' reactions were more as if I was lying about these symptoms which demoralized me further.

On top of everything you explained, I also lost the feeling of thirst and started getting dehydrated all the time (drinking 3-4liters of water every day).

The reason I got into this situation is similar to yours, long term stress and it makes life so much harder since I am working in a research institute and can only retain information for short periods of time. It is as if learning everything from scratch every second.

It feels good to know that there are other people experiencing the same symptoms, I hope that we can find solution to this. I am going to try psychiatrists now to see if it is an imbalance in brain chemistry.

I have one question to everyone in this thread, do you have clear (you are really sharp and can remember everything) days once every two weeks or so?

I have had insane brain fog for 3 years now.   When the fog is particulalry bad I also get a loss of cordination in my left hand and strange feeling in my left foot.

Things that helped:

tyrosine

Wellburin - but seeme to wear off over 2 month period

Things that make is worse:

caffeine

I am experimenting with Modafinil next as an adjuct to Wellbutrin.

I was on the exact same boat as you, with all the horrible side effects; and finally out of curiosity I asked my doctor to give me a Western Blot test. This blood test checks for specifc differences in your body's generation of different proteins that when elevated to a specific level, it pin points that your immune system is trying to fight off an invasive bacteria. Depending on which strands it is some will be higher than others and this would let what is known as an LLMD know what infections you have in order to be treated.

Trust me, even if I'm wrong the Western Blot test can still be helpful for practiced doctors to understand what your immune system is doing.

All the best,

Juan

My conclusion is: there are many possible causes for this, like the ones mentionted in several posts here: thyroid problems, Lyme's disease, food intolerances, mold, chronic stress, nutrient deficiencies etc., and I all checked them out. Blood work showed I had vit. D, ferritin and B12 deficieny, solved that: little improvement. Also I had a Candida infection, probably spread out through my compelte body, treated that and kept a diet: got rid of it, but again, little extra improvement.

I took a lot of supplements and herbs, again: they show to add a little to my health, enough to keep taking them at least.

Then I switched focus to behavioral aspects, and found out that taking long cold showers in the morning accompanied by breathing exercies strengthens the immune system (look up the Wim Hof Method) , and yes: i've been improving steadily since I'm doing this (and I sure wake up for at least a few hours!).

Furthermore, I got rid of my smart phone: my brain is grateful for that, I can tell you. It's getting a lot more rest, and I don't seem to miss out on anything (maybe this is the connection with many commenters stating that they were first of their class and so on? Cognitive overload by using social media too intensely? Because we can? Switching from one source to another in a second and processing too much info too quickly?).

But the real breakthrough I found just a couple of weeks ago. I went to see a craniosacral therapist, who has been working on my whole body system. The first time I walked out there I could cry of sheer happiness, because I finally found someone who could help me; my head had cleared up, I felt some hope again, and actually felt like wanting to do things! The first time this feeling of recovering held on about one and a half day, the next treatment it lasted for almost three days, and by now I feel quite OK most of the week. With OK I mean: being able to concentrate for several hours a day, not having that feeling of pressure and fogginess in my head, having the energy to just start doing things, feeling a lot less grim, making plans for the future and regaining trust in that everything will be allright in the end.

I feel I still need some time to really recover, but I'm on my way!

I would say: give it a try, good luck! Let us know how it goes!