Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

There are plenty like him..Change diet for sure, go for more Paleo, keto, organic grass fed,A2 milk if you drink milk..etc

hello Natalie,

I hope your husband is feeling a little better by now.. if not I'd consider to look at burnout syndrom and what severe prolonged stress can do to someone. That he is taking meds is good but maybe he needs to see another psychiatrist. It is definitely a mental issue and he needs to talk about some stuff whether he wants to or not.

Go talk to someone please. Your life could be so much better. No one deserves to live like this. You are worth the help you need ❤

Bro I am terrified for my life. For the last 8 months I feel as if my body is completely dead and i am just about breathing. My symptoms are 24/7 and i am now convinced i have some sort of cancer. I feel extremely weak and tired and not the kinda feeling you have after a long shift it is a different type. I never ever feel refreshed from sleeping. I have zero appetite or thirst, I only eat and drink because i have too. I have brain fog, mental confusion, poor night vision, blocked ears that ring all the time, clogged nose, constipation, i never get the urge to go toilet, erectile dysfunction. i cannot get out of bed no more i am completely exhausted. i am intolerant to sun, alcohol and smoking. I am so weak that i am emotional exhausted, just watching a suspenseful scene from a movie makes me feel like i am going to pass out. I have had enough living like this and i feel my life is finished.

I have had a head mri with contrast, ct scan with contrast for the chest/abdomen/pelvis, chest xray, nasoendoscopy, colonoscopy, gastroscopy, 2x blood tests, ultrasound of testicles, ultrasound of urinary tract, 3x ecgs, 8x blood pressure, eye test, dental checkup.

I am going to see an oncologist as i believe i am suffering from some sort of cancer so will be asking for a list of all tests to check for all types of cancer through private insurance as my gp has given up on me.

its relief to know someone understands what im going through.. this is not living. its torcher. Do you feel like your brain is slow, like you hear & see what people are saying & showing you but your brain takes longer than it should? i get the exhustion part its cruel, least little thing drains you.. & do you suffer with headaches? i do & its not always same place, like can be between eyes, back of head & so on, & its a dull type of headache, also chest pain that i can feel in my shoulder/doctor says its silent reflux as i had a chest xray-all clear.. i dont feel like its possible to feel any worse but i thought that years ago, & i dont even know a day i feel ok to a day i feel worse.. (if that makes sense) i had same feeling has all the signs of some form of cancer but yet all my bloods & everything are fine, my white bloods cells show up a little high all the time, but seemly thats down to smoking!

Have you had your thyroid checked? TSH, T3, T4?? Thyroid could be doing all this too you as I have the exact same symptoms. Can you keep us updated too? As we all share the same symptoms.

Yeah I also cannot stand loud noises and i handle sunlight or heat. I have no appetite no more. i force myself to eat and drink. No urge to go toilet. I feel confused. I have heart burn. I am so exhausted that i can not work. If i stay awake too long i start feeling like i am going to pass out. I have also all signs of cancer and late stage cancer. I am so scared man. I can barely walk.

Hey bro I have thyroid function test which is all normal. What are your symptoms and what tests have you done?

i am same, the exhustion is unbareable, for instance i was asleep last night by 10 slept untill 9 this morning with no disturbances(rarely happens) & i woke up this morning like i had 2 hours sleep, i dragged thru today. & when im up i just feel like i need to lie down. i also get like a drunk feeling or a uncomforable/horrible high feeling.. i have had extenstive blood tests all coming back clear/normal.. im not sure about sunlight with me, i feel i get a slight lift in the sunlight. but loud noises is a big No no, i get a crackling noise in my ears or ringing in loud rooms if people, & , florenent lights make me feel really wierd.

i feel tired but cant fall asleep. I always feel drunk or high but i am so weak that i cannot tolerate smoking or drinking. I just feel so uncomfortable in my own body. I could be laying down and still feel like i am going to pass out. I feel ill 24/7 and it has been going on too late. It must be a physical issue because i cannot even walk anymore. All my bloods come back normal too. Have you done any other tests?

ok we are very similar.. i feel at times like im

on a boat.. or the ground is coming up to meet me! dose not matter how much sleep i get i always feel the same, im trying to think back & maybe not linked but it orginally started when i went under local anaesthic to get my bowel checked, but was bareable for years, was only getting all these feelings from time to time & they would pass again, but this year has been unbareable.. they wont lift at all, ive had lots of bloods & mri.. but nothing, i do suffer with low levels of B12 but i get injection for that. & doc says my levels are very good now. i was blaming this for a while but if my levels are back up couldnt be that! i used to wake up with numb hands alot, but that hasnt happened in a while!

also do you get eye disturbance? like floaters? i get them daily, & i see stars ( from time to time)

hey i am suffering just like you and adam. in terms of vision when i wake up i get this static feeling in vision. at night i have poor vision and its hazy during the day. i am so weak/exhausted that just having a laugh hurts ive lost all emotions. i can not handle travelling at all. my body not in sync at all.

what are all your symptoms?

what is this.. like its crazy & what ever it is, its not showing up with mri or bloods,

like everyday is just me trying to drag thru another day. ive so many symptoms its impossible to list every one of them, but the worse is depersonlization, & like you said i feel like my mind & body are not in sync with each other at all. i feel slow/in my own bubble. i no i am suffering with anxicity but its because of the way im feeling.

i have no idea what it could be i am so fixated on cancer because not even medication helps and i physically cannot do anything. it has now got to the stage where if it is a cancer i wonder if it has been left too long as i am struggling.

what are your symptoms and which tests have you had done?

the only thing is cancer would surly show up in bloods. i dont know what to think anymore my head isnt clear enough to even think.. is your memory really bad? mine is brutal. have you had any tests done?

I thought the same but it is not always the case. I have seen many explains where people were happy with negative blood tests but after further testing got diagnosed with cancer. My whole body has given up on me! I honestly try trusting them but I think i am being misdiagnosed. I have brain fog/mental confusion, fever/feeling hot, clammy, weakness throughout body, chronic sinusitis/difficulty breathing, poor night vision, blocked ears and ringing, cannot handle any stress, constipated, no appetite, ED, going up stairs makes me exhausted, chronic fatigue. I do not sweat anymore and body does not produce mucus. Just now heard a dog barking and made my heart race honestly do not know what is going on and feels like death fast approaching. I am bedridden and at home 24/7 as cannot handle car journeys.

I have had 3x blood tests, head mri with contrast, ct scan chest/abdomen/pelvis with contrast, colonoscopy, gastroscopy, nasoendoscopy, chest xray, ultrasound testicles, ultrasound of urinary tract, 5x ecgs, 8x blood pressure, urine sample, eye test, dental examination.

I honestly do not know what to do anymore

i have all above apart from dificulty breathing, is there any stage that you get relief? im not bed bound but days i may aswel be, i also find that slight things (normal things) make my heart race like ive go a massive fright when i shouldnt, its like im so zoned out im unaware of my surroundings, yes i cant figure out why nothing is showing. its terrible but also reasuring known others are going thru the same, this is definatly not living, its torcher. do you mind me asking your age? im 32 it started years ago. ive never been this bad, its the last year ive gotten extremely bad, i used to suffer slighly before for years (mornings were always my worst) but now it seems to be all the time.. i find it very hard to sleep & when i do its broken sleep, will i send you my email? we can chat.

Yeah it is reassuring that nothing comes up but at the same time i do not think it is normal for us to be feeling like this. I am 26. I think i am bedbound due to my depression which is because of my physical health. Can you drive? Do you go out? Can you still handle alcohol/smoking? yeah sure send it through would be nice to have a chat.

yes because i dont get noifications on this, so be great to speak. yes 100% when you feel like this it would make you depressed but then they put all this down to depression when its not the sole problem. I do drive but cant at present i dont trust myself to drive nor do i feel capaible. i feel my judgment is off & my reactions slow, i stay away from drink at all cost as it makes me 100 times worse. plus the fact i get a drunk feeling most of the time!

Well now that i have had all those tests docs want to blame it on depression which i do not think is fair at all. Can we add each other as friends on this app?

wont allow me put up my email..& id really like to chat & keep updated with you. yes its very unfair the reason your feeling depressed is because of way your feeling, & its definatly more than just depression.

Oh it does not let you share it on here that's annoying. I saw another gp today he said that symptoms match blood cancer which got me worried but he said blood test would of indicated something but still made me uneasy.

it dose feel like you body is slowly been poisioned. have you any other health issues that youe aware off? ive IBS.

It does feel like 100%. I have IBS, gastritis & 2cm hernia but been told none of these should be causing my symptoms. What is your next steps Jo?

hardly anything to do with ibs?? im running out of options as what to do next,? beacause they dont no what it is/ nothing showing in bloods in there eyes there isnt a issue.

It does wind me up when they result everything to blood tests when they do not tell full story. Have you looked into lyme disease, mono, glandfever, epv? There are blood tests for these. I am also looking at getting pet/ct scan head to toe as i am suffering too much and just feel like i am at deaths door.

yes im willing to try anything at this stage, i forgot to ask do you suffer with headaches?

yeah i suffer with headaches but its more like head pain if that makes sense. nothing in the body is working how it should hopefully we get some answers soon. it just got to stage i would do anything to have my health back it just feels like it is too late i hope it isnt.

okay i have been doing some research and i highly doubt we have cancer. the reason being is when you have this many symptoms it means that cancer has spread and taken over your body. in our situation we have had our whole bodies checked. stage 3 or 4 cancer means it has spread throughout body so something would of showed in our bloods or tests we have done. i believe we may have an autoimmune disorder, lyme disease or something along those lines or we are suffering from long covid

yes i was thinking that. covid is ruled out for me as ive had this years. my last message to you was deleted, i see. is there any tests for lymes or autoimmune?

interesting fact: i was just checking the lymes & autoimmune disorder, & with the autoammuine its says swollen glands. which is odd because when i got results from mri were all clear only the doc said there was a note saying my glands were of a abnormal size? but doctor didnt make an issue of this so i never thought anymore of it!

Yeah i actually had the lyme disease test done 2 days ago and got results back today which are negative. it was a blood test called infectious mononucleosis test. When you done your mri was it full body or just a part of you?

oh great to have that done.. it was just a mri of the brain. but that was a note that was left on it for the doctor, i think you may be correct in the lines of autoimmune. how are you feeling today?

i am okay just do not feel normal if that makes sense. And do not know where but when it gets darker get this drunk feeling but not a normal feeling because i have to stay in because just feel to weird to be out. I wanted to ask do you have lack of bodily sensations? Like do you not feel your stomach turning, erectile dysfunction. like do not feel urge to go toilet? i dont know if i described that properly

same, its not that you dont want to out but you dont feel well enough too? i suffer with that feeling mostly durning the day, but i do feel lights at night make me feel disorented. yes with the toilet, most of the time i dont realise that i need to go. like i have to remind myself, ive no sex drive at all. what ever this is, we both have exactly the same.

yeah that is it feel really disoriented seeing cars moving just a weird feeling at night do not know what it is. Eye exam all normal. Maybe autoimmune issue 100%. will do a full body mri just to confirm nothing bad within body. Same zero sex drive, just feel like i have poor blood circulation if you get what i mean. i do not get full feeling when i eat and body never lets me know when it is hungry.

yes its like our brain is not reading the signals of the rest of your body. such basic things. thats actually something i ment to do, is get a eye test.

yeah literally which is quiet scary and worrying. what do you think we could be suffering with? do you feel emotion or adreneline & how long have you been suffering like this?

yes, i feel emotionless.. i used to be a very caring warm, active person. also used to worry about everything. now its like im so chilled all the time, & its just this s**t feeling im so focused on.. people think im such a relaxed person but its just the fact i dont have the energy.. (dont no if any of that makes sense)

i have had this maybe 8 years, it would come & go. i used to be ok for a few days then have a few bad days.. but its the last year im really suffering. its constant.

I hate the feeling of being emotionless and i am very similar it is worrying. Does your body overheat instead of cooling down by sweating? It is like I can't sweat anymore.

i do feel at time that my face burns up.. & ears but doent happen anywhere else in the body!

yeah same so your body still produces sweat? i think we have a nerve issue im honestly not sure. whats your vision like?

yes it dose, dont have issue there my vision is odd. i see floaters daily, sensetive to light i wear sunglasses anytime when im outside i find they help

tunnel vision sometimes

yeah literally sunglasses help alot. have you had any further testing?

i really hate this drunk feeling an feeling so shattered but unable to drift off

always takes few hours to go to sleep.. what annoys me the most is the wrecked feeling i have when i wake up, like its pointless sleeping because its not helping my body at all..

yeah waking up as uf you havent slept or suffering from a hangover. the worst part is we dont even stay late or long. when healthy i used to go bed at 3/4 in morning and be up for 9. i miss my old body so much

thats exactly it.. & like that i was the same, i used to work late nights before all this, with no issue. and be able to function on 3 hours sleep now i can barely keep my eyes open past 11, (yet when i go to bed takes me hours to sleep) and no matter how much sleep i get im never rested or refreshed.

whats your doctor saying?

nothing because all tests are clear, & also its hard to explain all these symptoms. sounds mad.

I hate when this happens. What tests have you had? Have you considered having a petct scan?

ive had brain scan. (all clear) are you similiar?

yeah i have had a clear mri head scan too. What are all your symptoms? and how long have you been suffering?

years, but the last year its gone so bad.. its unbareable. what about you? ive so many symptoms its hard to list., constant feel of doom, dont feel like im in my own body- bad memory. & loads more

omg that is the same as me. Had it for 5 years but last year like i am dying. My symptoms are 24/7 which include difficulty breathing, severe brain fog/mental confusion, blocked and ringing ears, chronic sinusitis, hazy vision, poor night vision, depersonalisation/derealisation, disorientated, feel everything is slow, no urge to use toilet, constipation, feeling drunk if that makes sense, intolerance to sun/alcohol/smoke, erectile dysfunction, chronic fatigue which is so bad cannot put into words, no appetite, numbness, unable to exercise/drive/walk. whole body not in sync like do not feel stomach turning or growl. body not working. I also do not feel emotion at all anymore nothing makes me happy and just feel like will never be the same. I used to smoke and drinnk but so weak cannot handle it. This has been daily for the last year what are all tests you have done?

yes 100% all of what your saying is exact same, its a drunk/ uncomforable high feeling. my life is ruined, i cant enjoy anything like as you were saying feelings/emotions are just not there. things that should make me happy, dont just because im numb inside.. the mornings kill me, i never wake resfreshed. Like that i dont drive anymore beacuse i dont feel safe to do so, can you remenber the run up to how you started feeling like this?

ive had mri all clear & all my bloods are clear, do you suffer with like heavy head feeling.

i get chest pains had xray all clear but dont get shortness of breath.

No way you suffer from all those symptoms too? I also get sore throat, do not feel full, body overheating instead of sweating. Also does smallest bit of anxiety make you feel super weird like you going to pass out? I could keep going and going. I have had many blood tests, head mri, ct scan chest/abdomen/pelvis, chest xray, ultrasound testicles, ecg, blood pressure, colonoscopy, gastroscopy, nasoendoscopy

yes 100% same. yes & i get stressed and anxious at the least little thing. even the idea of having to go somewhere out of my comfort zone, will make me feel so wierd.. like something bad is going to happen, & nothing has happened me in years. and i console myself with that when i feel that way. yes i over heat alot.. i dont suffer with sore throat but my glands in my throat & bigger than should be (mri confirmed this) had you any results from these tests that could be a cause? i suffer with chest pains, headaches (not even headaches but heavy dead feeling in my head) always tired never feel rested!

This is honestly really really strange. Yeah i am the same i prefer to stay home i feel like cannot have fun. I sleep so much and when i am trying to fall asleep it takes ages, i dont just dose off if that makes sense. All my tests came back negative apart from gastroscopy which confirmed hernia, ibs and gastritis. I am same never feel rested and smallest things tire me out so much. Do you do anything with your day? I have seen many doctors but all of them say it is anxiety related. I do not even feel the bodily sensations of adrenline or anxiety. what do you think could be wrong with us?

i also have IBS, & the chest pain is seemly acid reflux im on B12 injections also. but thats all.. no other findings, i break out on my hands(like little bubbles & skin peals) seemly stress related.. i dont no. yes i find if im doing any small odd jobs at home ive to sit down after a few mins as i get so worn out. i wont allow myself sleep during the day. i spend all day looking forward to bed & when i go i cant sleep for hours. or its a broken sleep. the feeling of derealiszation is the worst for me! my days are long & empty, cant enjoy anything, im no fun anymore. nothing excites me!

Yeah exactly the same here. Does food give you energy? & i hate derealisation especially when it gets to night time it just seems much worse. Jogging with derealisation is even worse as well. I had an ultrasound today because of my throat but all is normal. I do not even know what to suggest. I would love to feel excited but i am so weak that nothing generates those sensations in me.

yes its torcher isnt it? its not living at all.. its something that we have no control over. is yours daily? or do you get a break? i used to but not anymore

how are you feeling these days!?

Hey Jo been awful. Severe tension headaches, blocked and ringing ears, hardly use the toilet and struggle to pass wind, ED, muscle shrinking, muscle spasms and twitching when falling asleep, stiff neck, weak bones, feel like i am in dream state and cannot feel body, struggling to go into deep sleep. The scariest part is the extreme weakness where cant even pick up the little one anymore. Sorry for the details. Since we last spoke also had a ultrasound of neck which came back normal. I have been scanned head to toe and had many bloods done with no luck. I just feel like i am running out of time and for the way i am feeling i do not understand why nothing has come up. Do not know what to do i might do a full body pet/ct scan and bone scan.

How you getting on?

so sorry to hear that.. not the only one so... been really bad week also.. im beyond tired/weak. im just feeling like my body is shutting down, today has been my worst, i have went to the toilet once today, & not that i felt like i needed to go but because i reminded myself to go. ive really bad back ache.. how is it possible that all our tests coming back normal?? my little one is sick this week & im feeling so bad over it, because i dont have the energy to do much im drained & frustrated over it all.. feel usless & helpless. & like im just here in body not mind..

how are you feeling lately??

Hey man could possibly be Auto-immune Encephalitis.

ive sent you a private message