degenerative disc spine
Posted , 6 users are following.
Please can someone clarify for me is DDD the same as Osteoarthritis? My GP tells me it isn't
despite me having DDD and 2 herniated disc he refuses to refer me to rheumatologist. Sending me to pain clinic for epidural injections and physio.
I have had years of back pain now affecting knees and heels hard to weight bear and constant night pain and morning stiffness. How can I get a referral without GP. No other doctor in practice
please help
0 likes, 18 replies
pamela_25028 lisa08367
Posted
marshall71 lisa08367
Posted
Osteoarthritis is where the joints become painful and stiff most common areas are hips, knees, small joints in hands
In the spine is a breakdown of the cartilage of the joints and disc in for neck and back
Sometimes its produce Spurs that pressure on the neves leaving the spinal column , This can cause weakness in the and pain In the legs or arms.
Xrays are the best way too detect it blood tests and MRI scans
I have DDD and I've seen my scan at the pain clinic my lower disc is completely flat it was described too me like a squashed cake I also have peripheral neuropathy in my feet and toes
Hope it's not too hard to understand
Paul x
sandie-pants lisa08367
Posted
The reason he won't send you to see a rheumatologist is because osteoarthritis isn't the same as rheumatoid arthritis. I have osteoarthritis and a herniated disc. I had physio, which the killed me and then in Aug I had the epidural injections, I felt the benefits straight away. Only just recently has the pain started coming back.
They are worth it xx
Hope this helps
Sandie
lisa08367 sandie-pants
Posted
Thanks for your reply can I ask you if you experience severe night pain?
I suffer with this on my right side by sacroiliac joint. When I get up in the morning I am so stiff my knees hurt and I can't weight bear on my heels it takes me about an hour to get going and slowly improves the more I move. Did you experience this?
sandie-pants lisa08367
Posted
xx
minnie4 lisa08367
Posted
so you have another four and a half months possibly before your appointment hopefully with a surgeon who should refer you for an MRI.
if your in the uk you can self refer using the online app which your GP will give you a password to which gives you the choice of where you want to go.
other than that, change dr's or complain to the cqc if your in the uk as all hospitals and community services are governed by them.
hope some of this helps and good luck
lisa08367 minnie4
Posted
minnie4 lisa08367
Posted
it was then decided I should not have physio until I had been to pain management. Pain management is on Friday and I am told it's a twenty minute appointment where they take details and if your lucky you will get an appointment in a month. Meanwhile physio have made another appointment for next week although I won't have had any treatment.
so, seven months ago I herniated three discs. I see two surgeons one says I have facet issues too second surgeon says everything is fine. Electro test person asked if I'd had a stroke as I had no feeling whatsoever. Surgeon says all is fine and discharges me to pain management.
now my pain level has gone through the roof, I am on morphine and a whole bunch of pills including naproxen which is an anti inflammatory I have a brick in my back which prevents any form of laying down with or without cushions and now my body has developed a violent twitch spasm call it what you will. Uncontrollable all over my body, my foot is still numb, the sciatic burn us still in my leg and foot and buttock I have running water sensation down my arms and no sensation in three fingers on my right hand.
i got a second opinion by going privately who went through my MRI with me. I have three herniated discs in my lumber, I have spondylitis in my thoracic and two slipped discs in my neck.
my advice, go private and get a second opinion. We are going into pain management armed with all the information the NHS failed to tell me and details of options rather than being fobbed off.
Ask questions. Book a double slot with your GP be a nuisance until he refers you.
lisa08367 minnie4
Posted
minnie4 lisa08367
Posted
as for your GP, well the bracket for old age used to b 80 in th NHS and then it was maintenance unless serious intervention was required now 50 is the new 80.
Check out out your area and see if there is an alternative GP as you have to b prepared to consider the issue that your dr may decide to remove you from his list. Having said that, if he isn't listening, what's the loss?
write down everything. Every possible question you can think of and get responses in English. The new motto is clear and concise and no jargon or something along those lines.
i read on hear someone complaining that they couldn't wear heels until they had been up for an hour and moving around. I've been told I I'll never wear heels again and to get used to it!!!
john11891 lisa08367
Posted
RA is arthritis but more from or caused by the body sort of like a disease. Most RA doctors would rather not treat you but that does not mean they simply will not.
I was treated by a RA doctor for 2 years and my problem was all due to my back and the failed operations. He really just treated the pain and nothing else.
Is there a reason you want to be seen by a RA Dr ? or have you just heard good things about them.
Never give up the fight !
John
minnie4 lisa08367
Posted
john11891 minnie4
Posted
The standard form of treatment now is is anti depressants and a change of life style. Here in the US the media and the government have put a lot of pressure on the medical profession to not prescribe opiate pain meds for non cancer pain. They make the claim that most people will turn to heroin once they have used opiates for pain. Its causing a huge problem in the states and people with real chronic pain are getting their meds cut by 95% or none at all.
minnie4 lisa08367
Posted
Lets ts see what happens next
minnie4 lisa08367
Posted
no they left me on the opiates, took me off the diazepam and changed that for something else, and have started to increase the gabapentin until I am on the maximum dose. Meanwhile they have made me an appointment to see the pain management consultant this week. I know I'm getting worse but at the same time I don't want to become a junkie so fingers crossed they offer me something else. There are still people posting on here with far more serious problems so despite my issues I think we need to remember someone is always worse off. I will keep you posted as to what happens next 😊