Desperately in need of help

Hello John. I suffered for 3 months last year, it's a waiting game unless you have an infection. I paid to see a specialist. Well worth the money. Good luck.

Unfotunately your symptoms are typical of prosatitis. They can last for months but will eventually go away. In my case they have several times gone overnight.

Right now I have pain behind my testies I guess I will get through the pain and see if it passes after I finish the meds, my doctor has put me on a anti inflammatory too.

The reason why I think it's back/hip related is because I used to sleep on the couch instead of my bed and I think I may have twisted my pelvis and caused some nerve damage. I need some advice on what I should do next it may be all in my head I don't know

Hi John

As you research 'prostatitis' more and more, you will begin to find that is a condition that can have many causes and also, many of them have little to do with the prostate except that the prostate might be inflammed as well. The medical profession are beginning to change the name to CPPS - Chronic Pelvic Pain Syndrome. Pain in the pelvis can of course be caused by bacterial infection but seems strange that in a huge percentage of cases (over 50, possibly over 90) no bacteria are identified as a cause.

In a number of cases the problem has been identified as nerve damage.  Typically this is one or both of the pudendal nerves. It would be a good idea to do a bit of research on this because you have some of the symptoms.  Be wary of 'making' your symptoms fit a paticular condition though. The main symptoms are:

Pain in the perineum (feels like you've landed astride a bar)

Worst when sitting (but not so bad on the toilet)

There are lots of other symptoms ... bladder, bowel, groin. lower back. genitals (especially scrotum) can all be affected - and quite badly.

If you can definitely identify an injury that you have had to the lower back sometime in your past - even a long time ago then that adds another big tick for Pudendal Nerve damage (Neuralgia PNN or Entrapment PNE). Sitting badly whilst working under tension (eg computer) is another big tick for causing the condition.

If you believe this sounds possible then you need to get the nerve back out of tension.  That is not an easy task. You would have to stop doing those things that agitate it - quite difficult if your job requires sitting etc.

The wrong or over vigorous exercise can worsen it. Gentle stretches and a lot of rest (non sitting) seems best. Unfortunately the medical profession are slow to recognise this and say it's rare. But then - why are they unable to diagnose the cause of 'prostatitis' so often?  Interesting point - especially when there are a significant number of women who suffer the same.  They of course don't have a prostate.

Do continue working with your GP but if you believe you have nerve damage start taking steps to sort it. It will take a long time.  I know.  I have been there. But 5 months in and I'm vastly improved.

Good luck

Richard

This is just a guess, I am not a doctor, but with pain in your back, it might also be your kidneys, especially if you have burning urination. Let us know what it turns out to be.

Neal

Hello John.  I don't know if this has anything to do with prostatitis.  But it is a infection.  I was in the hospital last year and had sipsis.  I had alot of pain in my groin area.  And I had pain on the left side.  It felt like someone was pulling out my left nut.  I have had 5 infection last year and 1 this year and had the same pain.  Talk to your doctor.  There has to be something he can give you for the pain.  Ken