diagnosed a year ago just found this forum

I have only been diagnosed with fibro since June 9 this year so not very long. Although my symptoms have been going on for a good few years.

It is a long while for you to not be in contact with your gp. I am very reluctant to see a different gp. If you have any worries come and talk to us all on here. I talk to ses and di and they are very helpful to me. We all try to help each other. We all have our down days and I think it is good if you can keep moving. I try to walk everyday but it can be really hard to get motivated.

It is good to talk to other people who can fully understand what you are going through.

I tried to get appointment today with my gp and he was fully booked. Was offered a different doctor but going to try again tomorrow. I was really frustrated as had to wait for 40 minutes before getting through and then told he was booked up. We can't pre-book appointments have to ring up on the day unless the doctor asks to see you again and thinks it urgent enough to give you an appointment time there and then.

Try to keep positive and keep in touch.

Best wishes

Jane

paddy ur not alone like jane said we all try to help each other on here.... if any of u are interested i could give u my msn name and we could chat more if u want... i have been stressed out lately with family and friends putting pressure on me so i find im much more in pain when im stressed..been feeling down to. so we all know how it feels to have fibro and depression.. hope we can chat again and try and just take each day as it comes i have done that now and find it much more easily to keep on living... keep smiling and be in touch soon xx

Its does help to keep in touch on this site or even msn like Di said. We are all in the same boat and I know it really helps me to talk about things with someone who knows what it is like. Don't know if it is harder for men to talk about it as it is from what I have read more common in woment.

We don't bite get back in touch soon.

Take care

Jane

thanks very much for replying to me, it certainly sounds like a good place to chat! I`ve been very lonely since giving up work at Easter. I was a teaching assistant, and had worked with some of the staff for over twenty years. I know I did the right thing finishing because it had just become impossible, I was off sick more than I was there, I knew I would miss the children but I didn`t realise how much I would miss the adult company. I`m also my husbands carer and that too is obvoiusly much more difficult now, we never know who is going to be able to help who!! I`m counting the weeks to my GP`s return and hope then I can get back on track again. Everything seems so much worse at the moment and that in turn is making me more depressed. By the way Jane, Iam originally from Peterborough, moved to Cambridge when I got married! Small world isn`t it?

Linda

First I will start by saying by name is Theresa, but used by middle name Jane. You an call me whichever. It is a small world and good to chat to someone who live nearer to me. It must be so difficult for you both on a daily basis. Do you get any help at all!

I have only been diganosed since the beginning of June but feel I have had it for at least 9 years now. So just finding out all about it. Is your doctor understanding and helpful. I have a good doctor but can be sometimes difficult to get an appointment as he is so good. Just waiting to try some physio.

Where in Peterborough did you live. We live in Whittlesey just outside Peterborough. I lived in Dogsthorpe before I met my husband. Also lived in Woodston for a few years of our marriage. Where do you live in Cambridge! I have a son who lives at Cherry Hinton and works for a company called I2.

If you want to have a good old moan or chat just come on and say hello.

Hope you are not in too much pain.

Take care :D

Jane(Theresa)

How are you today? Do you find every day is different, no pain ever seems the same and never the same symptons? I also lived in Dogsthorpe, in the 1960`s, Birchtree Avenue, and went to John Mansfield School! It gets even stranger, the school I have just left was cherry Hinton Juniors, I live near the airport. Take care.

Linda

I am feeling quite tired today. Although had an early night. I am 52 and was born at Eastern Avenue, Dogsthorpe. I went to Eastholm Girls School. Its really strange as there are lots of connections there. Especially with the school you were working at in Cherry Hinton.

Your right about the pain it is never the same from one day to the next. You never know what the next day will be like. Difficult to plan thing like going out.

I look after my granddaughter four days a week. She starts school in September so will be having my time back. I need more of a rest now. I have looked after her while my daughter works since she was about 5 months old. My daughter is having another baby in September but I have decided to have my time back. It is a little girl and she will go to a nursery or childminder. I did feel bad but things are getting too difficult now. Got to go and get Molly from nursery later but it is only 10 minute walk. I must say though if I am feeling down when Molly comes round

she does make me feel better. Will miss her when she is at school.

You have it harder with looking after your husband. Hope he is well and look after yourself too.

Take care :D

Jane

sorry not been on..been really ill...think i got a bug and its 10 times worse cause it affects the fibro..

i feel my depression is returning but i am already on anti depressants.. still not heard from hosp.. im so fed up at the mo cause i just feel so low. and as u say its a different pain everyday.. hope ur all not in to much pain..

di x

Sorry to hear you have not been too well and especially with fibro as well. Poor you. Is there anyway your doctor can hurry the hospital up. Are you waiting to see the rheumatologist. I can't remember what you were waiting to go to hospital for.

I have had a better day today. I had a bad headache on and off yesterday and ended up having an early night. Had a funny thing happen with my big toe today due to osteo. It goes funny all of a sudden and is really painful and can't walk on it for about an hour. Was hobbling around the house trying to do things. Then all of a sudden it goes. Really must get it checked out with rheum when I go back in October. Not sure whats going on :?

Its about time the hospital got in touch with you :P What antidepressants are you taking. I am going to take ampytripline again had it once before.

So help they will give me more sleep and make me feel better.

Going away on 17th-21st so will catch up with you when I get back.

Love Jane :roll:

sorry you are feeling so awful. Did you have depression before the fibro? I did, for many years, but find since I`ve had fibro as well the antidepressants don`t work the same. I take Amitityline supposedly for Fibro and changed from Prozac to Mirtazipine in March. I still feel really dreadful, tearful and no interest in things, but as I said my GP is away at the moment and his locum us useless, so I`m trying to hang on until he comes back. Only a couple more weeks I hope!

Love Linda

How are you today! Hope not in too much pain. I have been too busy to notice much pain today. Have spent nearly all afternoon and evening loading up our van as we are going away tomorrow til Monday. Its only now that I have stopped I am starting to ache.

Going to notice it tomorrow but once we get there will have a good long rest. Going off to Wedding on Saturday though but should have chance to chill rest of time.

Catch up when i get back.

Take care

Theresa x x

Had a good time while away and not too much pain. Plenty of time to chill out and relax. Now got to catch up on things again before going away on Friday. How are you! I do hope you are not in too much pain. I had trouble with my toe again whilst away and really must get it checked out.

If its my hands not so bad but when it is a toe or knee makes it difficult to walk and do anything.

Got a few more aches and pains tonight though. Think will have a relaxing bath later and possibly early night. Husband on nights tonight and none of the children at home. :lol: Nice just to have a quiet evening but then I miss them all!

Anyway take care and keep smiling.

Theresa (Jane) x x

Glad you had a good time. Not too bad at the moment, my GP is back on 4th August so must go and see him and get some things sorted out. I would love to soak in the bath when I`m stiff but I can`t get in the bath. Just manage to climb in and stand to have a shower but sitting down is just impossible! Wouldn`t be able to take a shower if we hadn`t got handrails fitted for my hubby (Ray)

take care talk again soon

Linda

know how i have been waiting months and months for my rhymatoligy app well where do i start..contacted my gp yesterday to see if he can get things moving.was informed by the receptionist that i had seemingly failed to attend a app in may which i can swear i never ever received as i have been waiting for months every time the postman came... so seemingly on the 11th of june they discharged me and i will have to start all over again which would be in feb... i have cryed and cryed since not slept, why has my own gp now been in touch if that was the case to see why i suppose to never have went. now i learn there is a emergency system that i can get my doc to get me so i have a app with another doc tonight..640( yes thats right there trying a evening surgery) i feel so alone just now... its my 25th anniversarty on the 10th aug and i have cancelled everything 1 because of my illness and 2 my husband and i just arent getting on which is causing me great pain. we dont want to split or anything but all this is causing us both so much pain..im lying in bed writing this and just hoping i fall asleep and dont wake up. i have no energy to fight the system anymore..just been told that not getting dla either. i just hope none of u are going through what i am. im in so much pain as im having a flair up and no one cares x

Poor you feeling so bad. Will send you another reply later as got my granddaughter with me at mo. Got number for Fibromyaglia Association helpline that will give to you in an email later.

Feel so sorry and frustrated for you bless :lol:

Try and relax and will get back to you.

Jane x x