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diagnosed a year ago just found this forum

Posted , 3 users are following.

paddy
paddy

Hi,

I was diagnosed about a year ago and my GP was very good. I`ve had depression on and off for many years and also under avtive thyroid. I`m finding it hard to accept that I really have something wrong with me and find myself thinking I`m imagining it all. I feel that I should make myself do things and then I wouldn`t be so stiff and have pain all the time and I would get better. I`ve been really down lately because my GP is away for six months and his locum is a waste of space!!! He said to me during one consultation, I see you have had fibromyalgia in the past!! What a joke does he really think it goes away? He gave me a questionare to fill in about my depression and never mentioned it again. I don`t even think he remembered seeing before, he shook my hand and said how nice it was to meet me. I`m afraid the feeling wasn`t mtual.

0 likes, 20 replies

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  • paddy
    paddy

    Posted

    Don`t despair Di, I feel so lonely and low some days, I think I don`t have a friend in the world. I too have been told I can`t get DLA, apparantely I don`t need help with personal care, I can`t get in the bath but hey! I hope by the time you read this you will have seen your GP this evening and be feeling a bit more positive. I think when I first joined this forum you offered to chat on MSN, well, I`m a bit new to this internet thing, but have joined MSN, don`t know anyone on there but will give it a try if you want to chat live. Let me know

    Linda

  • Squires
    Squires

    Posted

    Hi Di

    Hope you got some positive results from the doctor. It is not very nice when you are unwell and feel so alone. It must be disappointing for you having to cancel your arrangements for your anniversary. It is so hard just to do the day to day things when you don't feel well. When I saw my rheum he gave me a leaflet all about fibromyaglia. I can give you a helpline number you can ring for extra support. They should be able to help you more than what possibly we can. Your friends Paddy, Ses and me. Fibromyalgia Association Uk email www.fibromyaglia-associationuk.org and Helpline No 0870 220 1232 (10am-4pm Mon-Fri)

    Another organisation called STIFF (UK) www.stiffuk.org

    01782 562366 (as a call-back service 11am-4pm)

    Hope these help you. Trying to find out what my msn name is and will let you have that. Try to keep talking to each other and you will find that should help your husband as well. It is really difficult for them as they don't understand what we are going through. So we need their support more.

    Lots of hugs

    Take care

    Jane x x

  • Guest
    Guest

    Posted

    thank u all so much for u support it means the world to me.

    i was still awake at 5 this morning..worry worry worry and talking to my husband who has not been very nice to me lately but i kinda understand the stress that i must put him under with my illness but feel i dont deserve to be treated sometimes by people and so called friends who i thought cared that seem to dont.. i like u all are trying to come to terms with something we dont really understand..

    thanks for the numbers linda i will do something with them xx

    ses not heard from u in a while... u ok? isnt there somesort of chat room we can go into?

  • Squires
    Squires

    Posted

    Hi Di & Ses

    Pleased you were able to talk to your husband. You really need each other for support. Hope the numbers will help! Havent tried them out yet myself but one day the day will come no doubt. It was good to had this site to come on let out your feelings. It doesn't do to keep them all inside.

    We can have a good old rant on here :lol:

    When I am around normally check site most days so you can always have a good old moan to me. Not sure if I would be able to help in many ways but will be here to reply to you and listen.

    Have a better day today.

    Hope you are ok Ses and Linda come and talk to us soon :lol:

    Lots of hugs to you all

    Jane/Tess x x

  • paddy
    paddy

    Posted

    Hi everyone,

    Glad you had this page to rant on Di, it does us all good to do that from time to time!! Been out for lunch today and am exhausted now, it came over me all of a sudden on the way home so I guess thats me finished for today now. I`m really trying to pace myself , as the powers that be recommend, it does seem to help at times but at others nothing works. Its better now I don`t go to work because at least I can leave things for the next day. Well take care everyone, talk again soon

    Linda

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