Diagnosed as type 2 in 2011 and put on Metformin, now told by new GP I'm not diabetic
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In 2011 I was diagnosed as a type 2 diabetic and immediately put on Metformin. Got sent on a Desmond day and took my wife along with me to that. Gradually lost 2 and a half stone in weight and generally took care of my eating. More or less stopped drinking alcohol as well. Had my annual diabetes checks and was told I was controlling it very well.
Moved house last December and registered with a new GP. As part of the registration process I gave my medical history and was given a date for a blood test to see what my HbA1c was like in readiness to see the diabetic nurse for a review. Had the blood test and made appointment to see diabetic nurse. When I saw the diabetic nurse she told me I was not a diabetic as my blood results were that of a normal non-diabetic person. She was unable to comment further because my medical notes from my last GP had not been forwarded to the new practice. I was told to get another blood test in 4 months time, but in the mean time to half my Metformin dose. This I did and went for the results last Friday. GP told me I’m not diabetic and to stop taking Metformin altogether.
Now I’m confused. Was I misdiagnosed in 2011? My original GP who made the diagnosis told me it’s a condition for life and I must learn to live with it.
Has anyone else had a similar experience?
0 likes, 59 replies
jane243 Lone_Wolf
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Is it really true that the doctors surgeries are paid mega bucks for a diagnosis of T2? I had one of the NHS health checks and was found to have hypertension and I always felt they were going to probe and probe until they found something so they could collect their fee. i don't know if that is correct but it was certainly my feeling.
I'm not sure it is true that you are put on the diabetes register if you are prediabetic, I wasn't and I get my med notes onliine so I would know.
As for losing weight, my theory is that the NHS guidelines for diabetes and also for weight loss are quite wrong. All the carbohydrate they say to consume turns to sugar in the blood and exacerbates any diabetic problems.If you follow a low fat high carb diet as they recommend you will not keep any weight off even if you lose it, it just doesn't work in the long term. Whereas if you follow a High fat, low carb diet the weight will fall off, you won't feel hungry and your blood sugars will be in the healthy range.
The webiste mentioned above is really good and there is all kind of help available there.
debbie27473 jane243
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jane243 debbie27473
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That set me off reading all sorts on the net including Michael Mosely's Fast Diet which has some really interesting science. I realised that the sugar in all the low fat gunk that weight watchers and the NHS food plate promote was causing more inflammation than any fat could, so I gave up eating cereal at breakfast instead having toast and an egg with butter and also all those low fat, high sugar yogurts too. I no longer eat or crave cakes and biscuits, I just eat 3 sensible meals a day and take a brisk walk every day. I can tell you I've never felt fitter or better or weighed what I weigh now since I was about 16.
For most people without cardiovascular problems I feel the cholesterol/statin thing is really just a load of c**p.
Nothing would persuade me to go back to a high carb way of life.
blodwyn Lone_Wolf
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My GP has indicated to me that it's possible to reverse diabetes with diet etc.Mine was probably triggered by steroid medicaction for another condition and she thinks that once my steroid medication is sufficiently reduced I may find that I'm no longer diabetic.
You appear to have done all the right things and this may have resulted in a reversal of your condition.
Have you been taking regular readings of your gloucose levels throughout ?
As for some of the other replies you've received, I'm not impressed.
I use this forum to help me understand my condition better and to be of some help to others if possible.
I temporarily lost my eyesight due to my Diabetes and this is now a constant worry for me,so I hope my GP is right and that I can reverse it sometime in the future.
However I hope you get som clarification soon.
Tazchurch blodwyn
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blodwyn Tazchurch
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I used the Diabetes UK website quite a lot when I was first diagnosed and found it very useful.
Tazchurch blodwyn
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Tazchurch
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Tazchurch blodwyn
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Lone_Wolf blodwyn
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The GP that gave the diagnosis offered me a free blood sugar meter, but would not give me any refill test strips saying that they only gave them to type 1's on prescription. By then I'd already purchased a meter and additional strips. During my first year of living with type 2 I monitored my blood levels very closely. I experimented with my favourite foods to see how they impacted my sugar level. I concluded that I could still eat most of the things I had always enjoyed before. Then as the results stayed fairly flat I stopped taking readings reserving it for when I didn't feel well. I wanted to rule out sugar when I felt unwell and the meter allowed me to do that.
I too had read the studies that showed how a radical change in diet coupled with weight loss could reverse type 2 and that was what I was looking for. I discussed these studies with my GP who said the sample size was far too small and I should not put any hopes on this method being a long term solution.
I was told after my first retinal screening that I had suffered a small retinal aneurism probably due to high blood sugar levels. The last 3 screenings however have been normal and I was told I have nothing to worry about regarding my eyes.
Tazchurch Lone_Wolf
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jane243 Lone_Wolf
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I was under the impresssion that once diabetes was confirmed by whichever blood test used one could only control it, not reverse/cure it. The reason being that the numbers indicated that the beta cells in the pancreas had died and were not recoverable.
Turvell have you tried the high fat low carb diet? [HFLC] The NHS in their wisdom still promote the high carb [and low fat] way of eating which is crazy if you have diabetes or, like me, pre diabetes I learnt in biology as a schoolgirl that starch turns to sugar in the blood !! When diagnosed I determined to lose weight and read all I could on the subject and a combination of Michael Mosely's Fast Diet and the LCHF diet that I found on the website above caused my weight to drop quite dramatically.
Lovelane09 - is it really true that there is a prediabetic register?I have to say that I'm not on one but perhaps because I'm only just in the catchment myself. I do know that as I get my medical notes online and only my hypertension is listed, along with asthma.
And do doctors surgeries really get paid mega bucks for a diagnosis of T2? That's dreadful. I do know that when I was diagnosed with hypertension at an NHS health check I had the feeling that was the case then. They were going to probe and probe until they found something wrong having earlier identified I had borderline high cholesterol. Having found the hypertension they loked no further, they'd gained their fee I felt, and they never noticed my higher than normal A1c result. In fact I saw it myself when I asked for my medical notes online and queried it with the dr..
blodwyn jane243
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You seem very concerned that doctors are making money from you.Try living in a country with no NHS and then see how you get on.
If my GP and optometrist had not acted as swiftly as they did I would probably be permanently blind now or even dead as happened to my younger sister 3 years ago.Doctors don't deliberately get it wrong,they do their best with the information they're given and I thank God for them.
Tazchurch jane243
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Lone_Wolf jane243
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My reason for posting on this forum was that I no longer trust what I have been told by my GP’s. I don’t feel cured of type 2 and I’m concerned that testing me every 6 months going forward is not totally putting my mind at rest.
What I intend to do is begin again checking my blood daily with my meter to see if not using Metformin anymore is working.
blodwyn Lone_Wolf
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If you are able to test yourself both after fasting and 2 hours after eating and keep a record of these readings. I think that would be a good idea if only to put your mind at rest and take control of the situation.There's nothing worse than the feeling that you're not being listened to
jane243 blodwyn
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jane243 Lone_Wolf
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jane243 Tazchurch
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Tazchurch jane243
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jane243 Tazchurch
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Lone_Wolf jane243
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To this day I have no idea why I suffered with so many UTIs and for that matter why I don’t get them any longer. My GP explained them away as a symptom of the type 2. He has also explain other problems I’ve had as being caused by diabetes. It all made sense at the time. The other nagging question I have is if I’m technically not diabetic now why do I still have issues that were explained as being caused by diabetes?
I have looked at the diabetes UK website in the past and yes lots of excellent info. I must revisit for an update.
Tazchurch jane243
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Tazchurch Lone_Wolf
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jane243 Lone_Wolf
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Tazchurch jane243
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Lone_Wolf Tazchurch
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jane243 Lone_Wolf
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Tazchurch jane243
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jane243 Tazchurch
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Tazchurch jane243
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jane243 Tazchurch
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