diagnosed in Apr this year
Posted , 9 users are following.
Hello was diagnosed with LS in Apr. It came as a shock that there is no cure and could turn cancerous. The worrying thing about it is that doctors know very little about it.I Have been using the 1% hydrocortisone cream but it's seemed to be having little effect. The flare ups were everyday and thickening of the skin was beginning to occur.I was getting stessed out most days so visited a local Herbalist. She is treating two other women with the condition. She prescribed Zinc , Probiotics (for most of my twenties i spent on antibiotics due to recurring kidney infections, this we now know destroys good bacteria in the gut ), Vitamin C and fish oil.It has been 3 weeks now and the itching has virtually stopped and thickening of the skin is reducing. I feel normal again.
0 likes, 22 replies
Vibrant_Health phil21170
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THANK YOU EVERY BODY, THANK YOU, ESPECIALLY our fabulous, indomitable WEB MANAGER who makes sure that this group delivers valuable and relevant information. Happy holidays :-)))
Jeepers phil21170
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Might I say also I am surprised you were not prescribed clobetsol 0.05, called dermovate in the UK, a far stronger steroid. How awful you have suffered the itching so long a time.
phil21170 Jeepers
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phil21170
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hanny32508 phil21170
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I'm taking fish oil and vit C as well.
Great that you feel so much better, with relatively simple methods.
phil21170 hanny32508
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hanny32508 phil21170
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Bridge_of_Sighs phil21170
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I go to a wonderful homeopath who has done miracles for me. There are also many threads linking flares with diet. Reduce sugar and alcohol (wrong time of year to be saying this!) some people stay off coffee. I gave it up, mostly, because it was giving me headaches but it's possibly helped my LS too.
The dermovate (Clob) is important, because even if you reduce flares, you need to stop it in its tracks and the strong steroid does that. Can you get a referral to a vulval dermatologist? I had a row with my GP when she insisted that she could treat it. I istuck to my guns and when I got to the specialist, it turned out that the GP didn't know as much as she thought she did. Hats off to her for even knowing about it though!
Ideally if you can get a referral to a specialist they should have you on 6 monthly checkups, mostly for peace of mind, once you've got it under control the cancer risk is quite low, but you do need to have the expert overview.
Don't get isolated, it's a hard one to discuss with friends, but there's always this site which is wonderful. Sorry you've joined us, but you won't be alone here.
Chrisy Bridge_of_Sighs
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hanny32508 Chrisy
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Learned the hard way. Now when I look at certain foods I think of the pain and discomfort later. Remember that 'taste' is only a few inches long.
Enjoy the Holidays and try to avoid what could trigger misery.
phil21170 Bridge_of_Sighs
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yes I have seen a vulva dermatologist and have to have a 6 monthly check up.I too have given up coffee and drink very little anyway. I have also greatly reduced sugar but thats hard..The Herbalist also gave me a vitimin e cream which she mixed with chickweed and essential oils which i apply to keep the area as she put it elastic , the chickweed helps to heal also so alround good results.Thankyou for your help it is good to know that I am not alone.
Guppy007 phil21170
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hanny32508 Guppy007
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Guppy007 hanny32508
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phil21170 Guppy007
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hanny32508 phil21170
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But mostly I keep a positive head up. I can not think of this possibility all the time. Just keep a close eye on things, it's your best defense, I think.
phil21170 hanny32508
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suedm Guppy007
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Sue
Guppy007 suedm
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hanny32508 suedm
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