Diagnosed Type 1 - has anyone got relief from dizziness after surgery
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Hi all, I have been recently diagnosed with type 1 Chiari and told I need surgery. I have suffered with symptoms for the past 5 years. My major symptom is lightheadedness/dizziness. I also have chronic neck pain, nerve pain over my head. I don't go for walks anymore because of the pressure at the back of my head and dizziness that makes me feel drunk and unstable. I now have walking difficulty where I feel like my signal isn't getting to my legs fast enough. Has anyone got relief from dizziness after surgery? Please help as I am so anxious and scared. I don't see many positives from surgery?
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helen11122 alana17881
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alana17881 helen11122
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helen11122 alana17881
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alana17881 helen11122
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helen11122 alana17881
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alana17881 helen11122
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helen11122 alana17881
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hayleybell alana17881
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I no longer have the dizziness like before, my headaches have pretty much gone. I am so thankful I was brave enough to have the op and cannot believe how far I have come in the past year.
Do be prepared to feel like crap for 3 months but, if the op gives you the chance to improve your quality of life & prevent the symptoms worsening, then we must try and be positive & thankful that we can have a procedure that may offer this.
Do you also have a syrinx? (Assuming you have had a full spine MRI?)
alana17881 hayleybell
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whodatbritchick alana17881
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I'm not a sufferer, my daughter is. She had surgery March last year, was dizzy, nauseous, tingling numbness down one side, very bad shape and it came on violently, it wasn't a question of it was when. She has a 99% recovery rate. Still numb, has headaches every now and again, dizziness gone, has some balance issues. This is a great site for questions etc. Find a good neurosurgeon he'll be able to give more advice.
alana17881 whodatbritchick
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helen11122 alana17881
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alana17881 helen11122
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alana17881 hayleybell
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helen11122 alana17881
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alana17881 helen11122
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helen11122 alana17881
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alana17881 helen11122
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helen11122 alana17881
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hayleybell alana17881
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I would get sever headache with pressure type pain that would come like a contraction, building up, reaching its peak and then going. I would cradle my head & have to hold onto something as I thought I may collapse.
It would happen laughing, bending down, standing up, straining, coughing, even yawning etc.
Better now though! 🙂
hayleybell helen11122
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i also have huge problems with my lower spine which doesn't help!
It is very important to do your neck exercises as soon as you can after the op, it really is, please, trust me.
During my hospital stay, I met 3 other ladies with Chiari, we all benefitted from doing our neck exercises, it is very important!
I still hurt when I look up to hang the laundry up, look up at the sky or swim with my head tilted up. Otherwise, doing really well.
The surgery will of course cut through all your muscles, but muscle is there to be used and will heal.
Blame our big brains girls. Lol 😊
helen11122 hayleybell
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Yep I'm having lots bother wi lower back but scan shows I have bulging disc, may have to have op for that. But will cross that bridge...
I get dizzy when looking up, can't hang curtains or anything like that.
I should do more neck movements than I do.
On the list of things to do x
hayleybell helen11122
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😬
helen11122 hayleybell
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hayleybell helen11122
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I am seeing an osteopath & trying everything else first!
i have been offered the injections but they weren't too keen given I have had brain & spinal surgery.....