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Diagnosis, feel like my life is over. MILD SYMPTOMS

Posted , 10 users are following.

Greentea14
Greentea14

I have officially lost my faith in the healthcare system.

I have been told by 5 health care professionals that I don't have herpes.

I finally managed to get a swab done on a fissure or 'crack' that appeared just next to my clitoris - this was my only symptom really.

The results have come back (PCR) and not only do i have HSV1 but also HSV2!!

My life is officially over. I've called in sick to work.

How am I supposed to get passed this?

My symptoms are SO mild. Like SO mild. NO fever. No illness. No tingling. Just fissures in the skin and a few red blotches, that's it.

And now i'm limbered with this disease forver. I feel disgusting. Noone will ever love me again.

 

0 likes, 32 replies

32 Replies

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  • mikarose
    mikarose Greentea14

    Posted

    Hi,

    I'm in my early 20s and was diagosed with HSV2 begining of December last year after being assulted.  Yes it was extremely depressing, a shock etc and I still will find myself suddenly angry and depressed and feeling like I am now 'ruined'.

    The truth is I'm not ruined and neither are any of you.  I'm on supressive tablets and havent had any further symptoms apart from maybe one outbreak that lasted a 2 days (if it was even that - i'm not sure).

    I have met an absolutely amazing man AFTER my diagnosis.  He does not have the virus but understands the risk is there.  We have sex and it's great so don't even worry about that.

    Honestly I'm quite hopeful there will be a vaccine or a cure for herpes in our lifetimes considering many studies are underway.

     

  • TLAN
    TLAN Greentea14

    Posted

    Hi everyone , anyone about? Just feeling a bit fed up. Having these odd tingles nothing painful just like a pulse for seconds... Knee/ankle/feet... Does anyone get these odd sensations or am I just going mad? I know they are nowhere near where my outbreak was...but am I worrying over nothing or is it right to get odd symptoms such as these... I know I've read it can be nerve pain, genital area buttocks or down legs... But this is is just an odd pulsing.

    I have type one and keep reading I'm unlikely to get a recurrence but any info would help. Thanks.x

    • louise123456
      louise123456 TLAN

      Posted

      I'm about... Just home from being out for a meal with my mother, it's super draining trying to pretend like life is normal sometimes sad

      I get odd sensations too, but mine at times are quite sore too, I've had an awful swollen tummy etc and my visit to the doc suggested post herpatic Neuralgia , he said it can affect area from top of thighs to lower tummy, soreness, tenderness etc, not sure if you are feeling tender or delicate around the whole area?

      Feeling utterly fed up also, and increasingly angry at the situation. Up days and down days is how it's going at the moment!

    • TLAN
      TLAN louise123456

      Posted

      Hi Louise, sorry just getting back to you. So fed up and tried to just switch off about it last night. I agree it's draining. Hope you enjoyed spending time with your mum. Sorry to hear that's still happening with you. Anything you can take to help with it?

      No it's not sore or tender, just odd pulsing sensations. It'll happen in one place like front of thigh, then in my ankle/foot... Although throughout the night the front of my thigh has been pulsing a lot. Would that even be connected.. Who knows?

      Is there a day I've not broken down... No. I keep thinking of having a blood test, my diagnoses was a swab so I know it's right but why I have this thought...wishful thinking that it's wrong. So angry, upset and ashamed. Thinking of you.x

    • Greentea14
      Greentea14 TLAN

      Posted

      I get weird like shooting twinges in my groin etc and I've been on meds for the last 4 days.

      I know what you mean about wishful thinking about the results, my doctor called me Friday and I was so excited thinking maybe they got it wrong but it wasn't the case.

      I was found to be positive via PCR Swab but I think I'm going to have bloods done also just to try and pin point how long I've had this.

      Hope today is a better day for you. Remember you're still as wonderful as you've always been, this is just a little thing that's going to make you stronger. Xx

    • louise123456
      louise123456 TLAN

      Posted

      I hear you on the wishful thinking, I definitely have moments that I'm in denial about it... I asked my doctor if it's possible that it could have been shingles and not HSV2 and he laughed and said he'd never seen shingles in a vagina but that didn't stop me googling like crazy in the hope it was possible!

      I'm honestly not sure about the pulsing etc... I think we are probably just super aware of absolutely every sensation now and over analyse things that aren't even related.

      Hope you're feeling a little better today.... I just bought myself some flowers to treat myself smile

    • TLAN
      TLAN Greentea14

      Posted

      Hi you are in uk aren't you? This is your first lot of meds? Will your GP do the bloods for you or will you have to have them done privately?

      I am so in denial despite swab, if the bloods were clear... Think I'll go with Louise on the shingles route... If only...

      Thinking of you, I'm about if anyone is.

    • TLAN
      TLAN louise123456

      Posted

      Hi Louise, I'm so with you on the shingles! If only hey...

      I guess I've read all that's online... So this pulsing/odd tingling I'm experiencing I'm expecting it to be related. I'm highly anxious over this so that's probably contributing to it. do you have private message on here? X

    • Greentea14
      Greentea14 TLAN

      Posted

      Yeah this is my first lot of meds.

      I'm in the midlands in the UK. I've asked about bloods through the NHS in three different places but they say no they won't do it - my doctor said that such a thing doesn't exist?!

      I think I'm going to go privately. I'm going to wait until this course has finished then have them done later this week.

      Are you in the UK?

    • louise123456
      louise123456 TLAN

      Posted

      I had a quick look just now and can't see any private mail function.. But someone else may correct me!
    • TLAN
      TLAN louise123456

      Posted

      Hi Louise, if you go into settings you have to enable pm. Hope you're ok. x
    • louise123456
      louise123456 TLAN

      Posted

      I'm so bad on computers! Lol :-) Have enabled them now.
  • PureStubborn91
    PureStubborn91 Greentea14

    Posted

    Oh lady, your life is far from over... this is just the beginning of something different that's all.

    I just got told today that I have HSV 2 and yes I cried with initial shock and then came the anger but life goes on and not all people are as close minded as we think.

    If everyone can get over HIV not being a massive thing anymore then they can accept HSV, it's as simple as that and if they can't then they're living so far behind they don't even matter.

    you'll pick yourself up again and you'll keep going because that's all any of us can do and we're all here for a reason whatever is thrown at us, including this, we will get through.

    you'll find love, but this time it won't be stupid love, it will be love based on understanding. Someone will care enough and see just how special you are enough to look past the fact that you have HSV.

    it's really not that big a thing as much as it seems like it now, go and see your doctor and ask for antiviral meds, it will slim your chances of an outbreak and your life goes on as normal.

    Remember, you have this virus, you are not this virus.

    Really hope you feel better about it all soon because you deserve to xx

  • rosal12345
    rosal12345 Greentea14

    Posted

    I've just finished day 2 of my meds, 3 more days to go and I'm still in a lot of pain when peeing! I'm struggling to do my job at the mo (as its physical)

    I felt so embarrassed! I haven't actually had my results back yet but hospital gave me tablets anyway as she's 100% sure that's what it is. I feel so ashamed also not quite sure how to tell my parter!

    You are defiantly not alone and I think we all struggle to cope with it at first, I'm hoping it will get easier and my mind will cope with it better soon

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