Diamox, high altitude

Posted , 7 users are following.

8months after diagnosis I am on 8mg prednisone.  Wondering if anyone has experience with high altitude or diamox, a medication referred to me for my upcoming trip to 3-4000 meters.

0 likes, 13 replies

13 Replies

  • Posted

    I was unwell at the time of going to high altitude, but I wasn't diagnosed. I wasn't on Pred and did not choose to take anything else, but to drink lots and lots of water. I went with a friend who was similar in declining health. We were old, tired and worn out then, but we both had no trouble at high altitude.(not quite true... we both had to stop for a breath as we were mid way between  2nd and 3rd floor of hotels while dragging our luggage with us).

     

     The mid aged, fit, mountain climbing, travel Dr I saw before I went, had collapsed at the same altitude. I can't remember the height, but it was Macchu Pichu.  I do not know if water was our secret, but we were better off than others.

    • Posted

      We went up to Cusco by bus, but flew into Quito which is closer to 9,000ft I think. We did not have any trouble there either. Bizarrely tho, we met a man in his 50's who had lived in Quito all his life and he got altitude sickness in Cusco. Travel doc said they could not predict who would have trouble and who would not. I bet he was more active than us tho.confused

    • Posted

      So you acclimated slowly as the bus went up - which apparently also makes a difference. I'd love to go to Machu Pichu - ain't going to happen though!!

      That other 2,000ft makes a BIG difference.

    • Posted

      Is it because of health that you won't go Eileen ? We could still do it, couldn't we ????

    • Posted

      OH struggles enough at 2,000m - he had a lung removed because of cancer 25 years ago and had radiotherapy which didn't do the other a lot of good either! It wasn't lung cancer, just a tumour all tied up in the lung tissue.

    • Posted

      PMR is not so bad in reality... we at least live in the hope that we are going to improve. Lots of lovely holidays to be had at sea level.cool
    • Posted

      Exactly what I often tell people who think PMR is the end of the world. May slow us down a bit - but there's been a discussion on the HU forum about how people feel they have benefitted from learning that skill! - but it doesn't kill or maim and can be managed pretty well with the right dose of pred and some lifestyle adaptations. 

      We live at 850m and are away at present at about 650m at the top end of Lake Garda, going down to under 100m next week to the other end of Garda.

  • Posted

    Thanks so much for these comments EileenH and Flutterbie57.  I enjoyed reading the article and in addition to Diamox, I will bring some of those chlorophyll drops recommended. Ethiopia has even higher areas to visit than Cusco and Machu Picchu (where I was 25 years ago without altitude problems); still not sure if I will actually venture into them. Although your posts indicated altitude sickness is unpredictable I am more fearful these days with PMR and prednisone. Much appreciate all of you, your wisdom and experience. Thank you!
    • Posted

      Oh to be able to see your holiday photos!!!!!
    • Posted

      OK, thanks, I'll post if I actually go ---

  • Posted

    We have been tempted to go again as the flight prices have dropped dramatically. We did not see all the other ruins around and would love to see them. I hope you get to do what you would like to Miki.

    We are keen to go down the Amazon again. I am not sure whether we are getting older and wiser or older and sillierconfused

    Have fun and let us know how you go.

  • Posted

    Thanks Flutterbie57-

    My hope is that as we age we get all of the above: older, wiser, and sillier, We need all of them to deal with the PMR. Stay in the present, smile, be grateful.  

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.