Did not attend hospital for surgery.

Posted , 9 users are following.

hi - i'm 68,  have BPH, flaccid/atonic bladder & indwelling catheter for approx. 2 years.

have had no urodynamics (ever) or blood tests etc for over a year.

i'm self-employed & under 24/7 contract to maintain a large computer IT/network.

i was booked for admission last wednesday for turp but had to confirm bed availabilty 8.30am that day.

the catheter has always worked well but for the past 9 days i have experienced severe bladder spasms with bypassing of the cathether - i was soiling my pants about 9 times a day. & had to call the DN out 3 times for a change of catheter - a urine sample confirmed UTI & i'm now taking ab's.

the bottom line - i was packed & ready to go on the morning of my admission but when i phoned at 8.30am they said they would confrm at around 11.00am.

at 4.00pm still no word & after i had soiled myself again i just told my wife i'd had enough & left the house for the rest of the day.

i now fear that i will be removed from the waiting list, am ashamed that the situation got the better of me & also that it placed my wife under unnecessary pressure.

my GP would not give me treatment for the spasms or any  sedatves - can anyone please advise.

 

0 likes, 25 replies

Report / Delete

25 Replies

Next
  • Posted

    Hi Lander, I really empathize with your plight. I suggest two things...1. you find a new GP and 2...you look into getting a PAE instead of TURP. 

    Missing out on the TURP might just turn out to be a great blessing to you. 

    Report / Delete Reply
  • Posted

    Hello I think Lander is right about one thing.  You need a need doctor.  Why is he putting you through this for 2 years.  And why a turp.  Have you looked it up and see what they do to you.  You have more bleeding and more pain and the down time takes a while.  I would never let a doctor put a knive in my penis and cut away anything from my prostate.  That is major surgery. what I read was that a BPH atonic bladder is a chronic obstruction.  Witch I think is the prostate.  I had the same problem with my prostate had to force myself to pee and the meds I was on was not working.  My doctor did a Uro-Lift on me 2 weeks ago.  Had 4 implants put in.  Within 5 days I was peeing great no getting up at night and feel good Most of the time they do not put a catheter in but  I have a problem peeing on demand and the doctor was scared I would not pee enough and get a BC I drank alot of water and the bleeding cleared.  I had it for 2 days Had the spasms and would bleed around the tip of the penis and sometime pee a little.  I think that is from it all depends on how you are setting  I layed in bed for 2 days and the bag was on my leg so the catheter would move a little and the ball was not always covering the hole so some would come out Pee and blood.  Also the PAE is not good all the time There is another guy chuck got talked into it. Cost him $10.000 and it did not work  His insurance did not cover it.  Please before you do anything talk with another doctor or the one you have now and see if there in anything else.  After they cut through the prostate that may not work either.  THE HELL WITH IT JUST GO SEE ANOTHER UROLGIST BEFORE THEY CUT ANYTHING OUT  PLEASE  KEN    
    Report / Delete Reply
  • Posted

    Where are you located?  NC has Duke and UNC at Chapel Hill..2 of the top hospitals going. You're over 65 and if you have medicaid you can get a PAE done at Chapel Hill for no cost. I will be posting more info and contact numbers later.
    Report / Delete Reply
    • Posted

      I would have to disagree here. The PAE shrinks the prostate away from the ureatha, thus removing the obstruction. Of the many who have had PAE on this forum and others the success rate has been extremely high. One person on here, ChuckP, was not happy with his, but his complaint is still having to get up  4 times a night. He is not getting blockage, no catheters, no longer has to take prostate medicines and his sex life has returned to normal. While my results are much better than this, I would have been satisfied with no longer having blockage and having to use catheters.
      Report / Delete Reply
    • Posted

      I am glad you had good results. but it does not always work.  He should not be having that problem if the blocklge is gone.  And I do agress that is sex life is back some.  But I guess when we our in our 60's we should be lucky were having anything. Nothing is the same when you get older  I still say get a second opinon.  Have a good day ken  
      Report / Delete Reply
    • Posted

      Kenneth, I too disagree. I have a penile implant, use (legal) testosterone supplementation because I had low testosterone (happens as we get older), and at 73 1/2 have a great sex life. Yes, I am having some prostate issues, and will probably have to have a urolift or PAE in the next year or so, but age does NOT mean that you have to have a bad, or no sex life. Things happen, and you do the research, listen to your doctor with skepticism, and get them FIXED!
      Report / Delete Reply
    • Posted

      Neal.  Glad all is going good for you.  I had a Urolife done 3 weeks ago today.  Been working very good I have a stricture in my urethra and had a enlarged prostate.  Also I'm on testosterone and I take Viagra 100mg because of sugar and High BP.  I am on no pills for bladder problem and I sleep thru the day....Please do the urolift.  Heard alot of bad things on the PAE  sometimes it don't work   That care and keep going   Ken
      Report / Delete Reply
    • Posted

      I'm in Orlando Fl.  My Urologist has been doing it for 3 years.  Also I asked  about the prostate growing.  He told be the the study is only 7 years old and all is going well He told me that it should last for 10 to 15 years.  Thats works for me  Have a god day  Ken 
      Report / Delete Reply
    • Posted

      What is your urologist's name? Can you give me some contact info for your doc? I agree that William should get a second opinion. I assume that your doc was saying that the urolift should last at least 7 years. Did I get that correctly?

      Neal

      Report / Delete Reply
    • Posted

      Sure I can give you his information.  I think his great.  The Urolift is only 7 years old.  It was approved by the FDA in USA  Sept of 2013.  He has been doing it from that time There is only 7 years of data on it.  I saw my doctor 2 weeks ago and he told me that is looks good and it should last 10 to 15 years.  They will know more as it gets older and more patients have it done. Here is his name...Doctor Zamip P. Patel  258 S Chickasaw Trail  Orlando Fl 32825 Phone Number 407-303-6865 E-mail me anytime  Ken
      Report / Delete Reply
  • Posted

    Hi Lander,

    I understand that this is very frustrating but with nhs has been caught unaware with a 40% increase in patient load and it's a nationwide problem. TURP and Holly are still gold standard and rest everything is commercially driven. Get yourself referred back to the urologist or talk directly to the urology secretary. I am sure they will help. You do get priority if cancelled once. Best wishes.

    Report / Delete Reply
  • Posted

    I would guess that as you say GP you are in UK.

    I would be very tempted to write to the hospital directly and COMPLAIN along the lines of the stress this caused you and that though ready you did not get a call back.

    It is hardly any fault of yours that things went wrong. If they had confirmed at a sensible time you would have gone

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up