Diet and PMR - Words of Encouragement
Posted , 24 users are following.
I just wanted to share a recent experience of mine in the hopes that it will be helpful to someone out there. MIne is the typical PMR tale of woe - started at 15mg of Prednisone, went down and up a few times, got discouraged, suffered, cried. Last winter I got down to 2mg and could barely walk so I went back up to 4 - cried again. At that point I came out of denial and started to pay closer attention to my diet and was able to wean down to 2mgs. It wasn't perfect, still had stiffness and general soreness but put up with it because I felt better later in the day. Last month I went to visit my son who lives in Costa Rica. Where he lives is a health retreat off the beaten track. Because I didn't have a car, I couldn't get into town where the tiki bars and french fries were so I had no choice but to eat at the center where I had 100% organic food every day for two weeks - not one gram of sugar, zero wheat products, zero alcohol (well, okay, a beer in town one afternoon), zero coffee and zero dairy. I also was forced to drink a jungle juice concoction that my son made me every morning containing organic tumeric extract. By the end of the two weeks I had no symptoms at all - no stiffness, no aches anywhere, not even in the morning. I felt amazing. Since I've been home I've continued to be vigilant about staying with a healthy, organic diet and have been able to drop down to 1mg. I've had three rheumatologists and not one has said a word about inflammatory foods, which is idiotic because there is absolutely a correlation! So I'm just throwing this out there as hopefully a ray of light to anyone who is suffering and hasn't discovered yet the connection between what we eat and how it affects our bodies and aggravates this dreaded condition that we're dealing with. It's been frustrating to feel that PMR has control of my life, but I'm pretty convinced now that I'm back in control. As Martha Stewart would say, "And that's a GOOD thing!"
3 likes, 48 replies
Silver49 diane67131
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diane67131 Silver49
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Silver49 diane67131
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Kdemers diane67131
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Thanks for your encouragement for us all.
Tastyron Kdemers
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Ron
darlene96382 Kdemers
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jan21306 Kdemers
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Thanks very much , hope you manage to get back down to 1 mg again soon with no more flare ups.
caroline83483 diane67131
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go to Costa Rica! I know we should be able to stick
to the diet at home, but what a joy to have it made for
you.
Keep up the good work,
Caroline xx
diane67131 caroline83483
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lyn1950 diane67131
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Your 'words of encouragement' above are just what I needed as I am prepared to do anything so's not to have to go back on steroids.
A friend suggested turmeric capsules which I now swallow twice a day !!
I have managed to lose just on 2stone (the effects of steroids !!) and don't intend picking up the weight again. Zero dairy, wheat, coffee etc etc sounds good to me.
Thanks and please keep in touch, Lyn
Anhaga lyn1950
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lyn1950 Anhaga
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noninoni diane67131
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pam7653 diane67131
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I've tried to buy organic lately, where it's available. I may consider the non-dairy and wheat free diet also. I have a bag of organic turmeric and am curious as to how much I should consume daily. It's in a powder form. Do you know what your son put in the turmeric drink?
Glad to hear, I'm at the end of my second year on Prednizone 5 mg and hoping to drop again soon but had a couple of surgeries recently so I didn't want to rock the boat.
diane67131 pam7653
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Anhaga diane67131
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