Disheartened and need encouragement.

Posted , 10 users are following.

I am so disheartened today because I thought things were looking up for me, and how I feel like I'm back in a rut.

Yesterday I told my Josh I wasnt feeling well and his response was "still?" I tried to explain to him the ups and downs of this illness, and I feel like he didn't believe me.

I caught a cold the week before Christmas, and I'm just now starting to feel it get better. The last few weeks have been awful.

In the last week, I've started having night sweats, like drench the sheets. It worries me that something else is wrong. Has anyone experienced this type of night sweat? I've felt exhausted this week, like nothing I've felt since my initial diagnosis. I barely have the energy to get off the couch. I called out sick today because I couldnt get myself together to get out if bed this morning.

Here I am telling others on this forum not to jump to conclusions about their concerns about cancer or HIV...yet since the high sweats have started, I am low concerned.

My blood work was done a few weeks ago and everything was normal except my EBV levels. I have not asked for an HIV test, but think maybe I should just to ease my mind.

I feel helpless today. I just want to feel good again.

Will you all share night sweat information with me, if you've had then and how long?

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  • Posted

    I had night sweats right at the beginning. I also had them when I first started to have relapses, which was around the 6 month mark. I'm 10 months in now and they have gone. I'm sometimes wake up a little bit, but no where as bad as before when i used to soak the bed. The sweats is all part of the virus...my friend who had glandular fever about 10 years ago told me he still has night sweats when he feels his glands swell up. Which only lasts about 2 days.......I know we are no where near that stage, but I would say it's still your body fighting the virus. I had a HIV test when I was omitted to the hospital as part of protocal for anyone that come in for a viral infection, so I've never had to worry it is that. I have worried that it's plenty of other things like cancer, but the tests have always confirmed it's not.

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  • Posted

    Hi Jen. I'm so sorry but this sounds very normal, don't worry. You got a set back because you got a cold recently. And before christmas isn't that long ago just make sure you rest as much as humanly possible right now with as much sleep as possible!

    When were you diagnosed with mono? When I had it, the main symptoms (very high/abnormal affected liver function tests and fever) took about 1-2 months to go away. The fatigue came in during that end period. During this entire time i stayed home, didn't work and for 1 month straight stayed in bed everyday and slept as much as possible, which is what my doctor suggested. So you really need to rest. Plus take a strong vitamin b supplement as the doctor prescribed that for me too, i can't remember which vitamin b, but just get a supplement that covers all the b vitamins and after the 1-2 months (when my liver was back to normal) i started taking milk thistle supplement which improves liver function.

    are your liver levels ok? did they test for that?

    when they were initially diagnosing me they did all tests, hiv, looking for cancer etc just to rule it out. you can do an hiv test if it makes you feel better, everything needs to be ruled out really, but it does sound like mono.

    the last 2 symptoms to go for me (which lasted a month or so after my liver went back to normal) were night sweats and fatigue. the night sweats was actually the last symptom to even show up. i think it's the body autoimmune response to just try and get rid of the virus.

    i went then totally fine for about 2 years then last year i had a cold and following that cold i started getting night sweats and had extreme fatigue. the thing is during that illness i didnt really take time to rest at all. i should have so it could have re-activated the mono or maybe it was just an auto immune response with my body just seeing that it got a virus and working overtime to get rid of it, even when it went away.

    the solution i think is just make sure you have optimal health. first of all rest a lot and if after some weeks you don't see improvement then make a big effort to make sure your diet is packed with nutrients, lots of leafy green vegetables. 2 supplements i like are olive leaf complex and wobenzym n (you can find them on amazon). olive leaf complex works on getting rid of viruses and wobenzym helps to calm the body's auto immune response. another one i like is ashwaghanda - that is what you call an 'adaptogen' they help our bodies adapt to stress such as illness. when we get ill or stressed our adrenaline levels get a bit messed up. this is what i think was the culprit behind my night sweats - --- which since the last episode a year ago have persisted on and off. but they've improved and gone away for certain periods. i think the body just needs extra help to heal.

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    • Posted

      Thanks so much for your reply. It truly put mind at ease.

      They did test my liver and it was a little off. My spleen was in bad shape, though. I used milk thistle and they both improved. I am going to try the other supplements you suggested.

      I am on month 6. I think the night sweats are freaking me out so much because I've not had the issue until now. It does make me feel better to know they were a late symptom for you as well.

      I may do that HIV test just to ease my mind completely, but you have helped a great deal.

      So glad you are feeling so much better.

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    • Posted

      Aw good, I'm glad. trust me i know how it feels. and i'm a bit of a hypochondriac so any kind of illness i have that lingers i start to think the worst. but it's always ok in the end and will for you too xx

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    • Posted

      Wow I can so relate to this. Reading how your illness went has put my terrible anxiety at some ease. I didnt get night sweats til like 5 or 6 weeks into mono, which is when I found out I had mono. But I know I started getting sick on dec 1st. I didnt realize the symptoms can last or come on later. I wasnt too tired until this part, a month to 6 weeks into the virus and this is where I am having sweats at night and I am feeling really fatigued now. It had me so anxious I am falling apart and contacted a therapist. But reading that your virus progressed very similarly wow...that's crazy and makes me feel relieved

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  • Posted

    Oh Jen,

    It's so hard when others, especially those close to you, don't seem to fully grasp or understand how horrible this virus can be. The invisible element is so misleading, like many things where you can look fine outwardly or be seen out and about doing things at times when feeling not as bad, and people wrongly assume that it can't be that bad then. Hoping that Josh and others around you have been supportive and can truly take the time to understand, it makes such a difference just to have people who are with you and helping and supporting you and listening to you and taking on board how hard things have been right now. I was very lucky Jen to have good family and friends around me during the virus, without them and God's help I know for sure I couldn't have made it.

    It is understandable too and awful when your mind starts to think about all sorts of other things, please be assured Jen that it is (unfortunately) normal for EBV to go on for this length of time and to make a full recovery - your body just needs time, for me it was the 10 month mark before I really saw a major change (not saying it will be as long for you, everyone is different). Night sweats I know from reading many stories can certainly be a part of the virus. I remember being in a similar boat with worry and they also did a HIV test on me after about 6 months which I was so grateful was clear and offered some reassurance that it was just the mono. Certainly it's worth asking the doctor if they can do test hopefully to put your mind at rest, but absolutely please be assured Jen that it is very very likely that this is just the mono and nothing else causing this - your symptoms sound classic to me and it's such a horrible time to go through I know.

    Will continue to think about you and pray for you, and remember you WILL get through this and recovery IS on ahead - but for now and in the hard days just rest and take things slowly and remember that things won't always be that way - because they really won't.

    Craig

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  • Posted

    Hi Jen,

    I too caught a cold just before xmas and i'm only just starting to feel better myself! I personally haven't had night sweats from mono but I have had them in the past and i think they're caused by stress altho i'm not too sure in honesty. Either way i'd say from looking on this forum and other sites the best thing to help with this is disease is to try and destress which is really so much easier said then done. Yoga, meditating and going for little walks all help alot and i'd definitely say to give them a try if you're upto it.

    About a month ago I was tested for a bunch of STD's and was cleared so i'd say if HIV is something you're worried about it's definitely worth going the doctors about just to ease your mind.

    Oh and yeah I can totally relate to people not really getting the disease and how frustrating it is. It feels like people think we're just putting it on or something which is just insane. I'm sure Josh does care it's just hard for people to understand mono unless if they've suffered with it, or something similar, themselves I guess.

    Thinking of you and hoping 2019 can be a good year for all of us!

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  • Posted

    Hi Jen,

    I've had glandular fever for 4 months now (i caught both the cmv and ebv viruses together which triggered it). In this time I have had about 5 night sweats, my last one was on 15th Dec (i've started making notes as they concern me too). I mentioned it to my doctor after xmas & she seemed unconcerned. She said it's post viral fatigue. You're doing the right thing getting further checks done if you're concerned.

    I wish this virus would shift, I feel a lot better but still have a swollen gland in my neck & noticed today my tonsils are covered in a white film (don't know if this is normal for this stage of the virus or not, I haven't had a sore throat at all with this virus). It's just one worry after another with this virus, I have health anxiety as a result of it.

    Take care

    Gill x

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    • Posted

      Hey Gill / George / Tina,

      Hoping you are feeling settled today and can have a good and restful weekend ahead. Just reading your posts reminds me what a tough time each of you has been going through.

      Gill I remember how hard it was just dealing with EBV so to be dealing with that and CMV at the same time must be awful, I just hope that you are able to rest up and look after yourself at this time and not under too much pressure with anything - definitely give your body as much time and space as it needs to recover - you will get better Gill just hang in there and hoping so much that things can improve with the night sweats and all the horrible symptoms - remember these viruses are absolutely awful and although it takes a while to get over them, your body does get over them and back to health again - so hang in there and just take each day as it comes is all you can do.

      That's some great advice you have posted George, definitely things like yoga, meditating and walks can be really helpful. Just a word of caution maybe on the yoga, I know some yoga classes can be quite physically exerting so if doing that just maybe making sure finding something gentle that is not pushing your body too hard right now. Walking helped me a lot during recovery George, just even getting out for 10-15 mins for a walk each day when I was feeling able to, just for the fresh air and everything made a real difference. Or even if folks are finding that hard to manage, even just sitting outside for a short spell each day to get fresh air. Hoping so much you are feeling more settled after the tough period you had over Christmas George, still thinking about you and believing you are going to get fully better.

      And Tina hoping things are settled and well for you at the moment, it's only understanding to be so worried and anxious about your health, especially when going through such a horrible virus as mono. Your confidence and body resilience does come back with time in my experience Tina, and still hoping and praying this will be a great year for you Tina and one of good health and recovery.

      Thinking about you all and hang in there - everyone on this forum WILL get their breakthrough and victory over this thing - I really believe that.

      Craig

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  • Posted

    omg i relate so much. i got sick with mono at 18. im 19 now and still dealing with this horrible virus. while i was sick, my cheating ex had sex with a prositute about 8 months ago and i began to believe my mono symptoms was actually hiv. i was terrified. i had swollen lymph nodes all over and in my groin, and i couldnt stop googling online. i finally got a blood test just to be safe and it was negative.... but guess what wasnt... my EBV panel. get tested to ease your anxiety if you really need to. i promise you this is ebv

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    • Posted

      Hang in there Nicole, so sorry to hear what you have to go through with your ex what an awful experience. Remember God has great plans for you and wants you well still - so just pray and ask others to pray for you too - I will keep you in my prayers Nicole.

      Craig

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    • Posted

      Oh goodness that's understandable when you have worries / stresses on your mind / in your life that it can make this illness all the harder to cope with and more intense - still thinking about you Nicole, I'm still believing that you are going to get fully better again, just so awful it's been taking such time, but hang in there and remember there is hope and God is there for you and with you.

      Craig

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