Diverticulitis pain

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Hi, I have just been diagnosed with diverticulitis after PR bleeding which was really bad, made it worse being on warfarin spent 4 days in hospital and sent home without any real explanation about what diverticulitis was.

I asked the Doctors what was happening but know one seems to give the time to do so, even with my own doctor very little info just gave me high fibre diet sheet and told I have to have CTC scan and they cannot give me estimation when that will be. Been looking on the web but find it confusing.

What I want to know is can anyone tell me what can I do for this dreadful groin pain I’m 74 Thank you for any help you can offer

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  • Posted

    Hi Thomas, the standard treatment for a diverticulitis attack is a course of anti-biotics for at least seven days.  Immediately after the attack you should be on a liquid diet for a a few days and then a very low fibre diet for a week or so to help your colon heal. When everything  has settled down a high fibre diet is recommended.  The time that the pain lasts varies from person to person.
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    • Posted

      Hi Lyn Thanks, i should have said i was antiboitics but i forgot, noe one has said about the liquid diet or colon, no daid it was the colon and that it had to heal, thats a big help will the pain ease. is ther nothing that will help with the pain you can recomend. not sleeping good at all.

      many thanks found out more from you that the Dr's 

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    • Posted

      I too had virtually no information or advice from my GP or the doctors at the hospital.  You will find much more  help and advice on forums like these.  When I have an attack the pain is so bad, nothing helps.  Also pain killers can play havoc with your gut so I try to avoid them at all costs.  If the pain is unbearable I would call the doctor and ask them what is available for you.  Hopefully the antibiotics will kick in soon and the pain will ease up. 

       

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    • Posted

      Hi Lyn, seen the Dr today not good news tell me I need an op and is passing over to see a colleague, unfortunately I have a Pacemaker and defibrillator fitted which he says is not good. Will have to take it has it comes, my flare is still on going .

      Thanks for all the info Tom

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    • Posted

      Thomas I am sorry to hear that, on what basis does the doctor think surgery is needed?  Is this coming from a GP or a specialist?  I would get a second opinion before you make a decision about an operation.
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    • Posted

      Hi Lyn, on what basis I’m not sure. I had heart problems for many years and this not the main hospital I go to but this is the nearest hospital nearest to me, so when had may first flare and bleed my wife called an ambulance and was taken to this hospital and put into the surgical ward and this Doctor was in charge of me he’s a surgeon but I don’t this what I have is his field on medicine. He’s not got much of a bedside manner, he’s direct and to the point. I tried to ask questions by he were not forth coming with answers. That is the best I can tell you.  Will have to wait to see the other Dr, good news my flare getting better.

      Please will you tell me which supermarket do you buy theses clear soups for as we have tried Asda-Tesco-Morrison’s with no luck, I my wife tried to make me some with an Oxo cube and chicken cube. Yuck I couldn’t eat them.

      We could do with starting a blog on here to find out what other suffers eat and perhaps get some Diverticulitis recipes I tried on the web but not much luck any recipes ideas anyone as I’m terrified of eating anything in case its starts a flare.  All ideas welcome

       

       

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    • Posted

      I would wait to hear what the other doctor has to say Thomas as you didn't get much information from the rather brusque one.  Unfortunately some doctors talk down to their patients. The consomme soup, chicken or beef, is certainly available in Waitrose or Morrisons.  Baxters do a beef consomme and Waitrose do their own brand.  I'm glad to hear that your attack is easing off.

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    • Posted

      Hi Lyn, sorry for the errors in my post of yesterday not watching what I was doing. sad  found the soup in Morrison’s high upon the shelf. 

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  • Posted

    Welcome to misery. This board and the people here seem to know more than the medical community. Lots of help and advise just read board and former posters. Good luck.
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  • Posted

    Hi Thomas

    Welcome to this forum which is a goldmine of information.  I'm guessing you are in the UK from your spelling of fibre.

    I have been managing this disease and illness for 15 years, and these are my experiences.  Diverticula are little pockets in the colon.  The condition where there are one or more pockets is called Diverticulosis and is usually symptom free.  When one or more of these pockets become inflamed or infected is called Diverticulitis.  Really confusing!!!  Unfortunately once you have the pockets, you have them for life.

    As Lyn98093 says, during a flare up you should only have liquids.  For me that is herbal tea, clear consomme and clear apple juice.  Once the meds kick in and the pain starts to subside I introduce things like yogurt and meal replacement drinks but absolutely NO fibre.  Then as you settle, you can start to reintroduce easily digestible and soluble fibre slowly back into your diet. I do this in the form of home made blended soup and veggie puree, mashed potato, steamed fish, sloppy porridge.

    Each of us has different experiences and each has different "trigger" foods that set up a flare up and pain.  For me that is gluten and fat, for others it is things like nuts, seeds, pips, popcorn, red meat, dairy etc.  The best thing you can do is keep a food diary and try and work out what foods have triggered pain.  Julia1040 made an excellent post on diet, which others have added to.  The key is small meals!  No overstretching your insides.

    Then you need to thing about control and prevention.  I am in the UK and my GP prescribed Fybogel daily, which I have taken for 15 years.  It is made from psyllium husk extraced from a plant, and comes in the form of a powder which is mixed with a large tumbler of water, then chugged down quickly before it thickens to a slime.  It is supposed to do that in your tummy, not the glass or on the way down, hence the need for speed!  It is a stool bulker, thickener and mild laxative.  The function is to keep the bowels operating regularly and easily, preventing food bits, like seeds, getting trapped in the pockets and setting up an infection.  I am from the group that advocates waiting until after the antibiotics are finished and you are reintroducing fibre back into your diet before starting this, but others disagree with this.  But it works for me, and I take it twice a day.

    I also take a teaspoon of pure maximum strength aloe vera juice, available from a well known high street chain of health food shops.  This is a juice/gel taken from the aloe vera plant, and is a natural digestive aid and good for infection, both inside and out.  I was in pain for 4 months after my last flare and this helped to ease the pain for me within less than a week.  I also take a daily probiotic drink.  We have to be careful on this site over naming items and suppliers, as otherwise the moderator will remove the post.

    Regarding the pain, I use a good old fashioned hot water bottle, and I also have clearance to take paracetemol when it is really bad.  I also found gentle massage by my osteopath helped relieve the muscle tension all round my tummy and pelvic area, as all of them were pretty rigid and tight from the trauma of a flare.

    Whatever you decide though, you need to run it by your doctor first.  As you are 74 you can get the Fybogel prescribed free, like I do, but of course your GP will need to balance it against any other medication you are taking.  I have medication for high BP which is unaffected.

    Regarding the CT scan, do keep on top of them to get a date, otherwise you will fall down the black hole, known as "administration procedures".  I was lucky because, as I was suspected of bowel cancer, I got my tests through within 2 - 3 weeks.  Others have reported waiting for weeks until the infection clears, and in one case, over 6 months.  The cost of going private without insurance is £2000 - £3000.  Depends on how concerned you are.  I found the CT Colonograpy very simple and painless, but the Colonoscopy was less pleasant.  I have posted elsewhere about these experiences!!

    Please be reassured that things will ease and get better, although it might take some time.  Again we all differ.  When I was younger I could get over an attack in 2 - 4 weeks, but this time it was 4 - 5 months.  It just takes time and patience.  Another person you might wish to follow is Gigi, who is a trained nurse and fellow sufferer, based in the USA.  She has the medical knowhow.

    Best wishes for a speedy recovery.

     

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    • Posted

      Hi Felinia, your comments were very helpful, sorry about the spelling errors felt rough yesterday.  I will answer to all the comments as soon as I have digested; as there are a few more questions I wish to ask thanks Tom

       

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  • Posted

    Hi Lyn, your comments were very helpful, sorry about the spelling errors felt rough yesterday.  I will answer to all the comments as soon as I have digested; as there are a few more questions I wish to ask thanks Tom

     

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  • Posted

    Very helpful discussion. Recent colonoscopy definite diverticulitis on both ends of my descending colon. Didnt know what was going on for about 8 months.

    Stumbled on a few things which have helped me.

    The psyllium husks is a god send. Seems to be more than just fiber since other types of fiber dont help. So hard to be disciplined when you are in pain and feel yucky to boot.

    I also do the one yogurt drink a day. NSAIDS seem to help but dont want to take them regularly..

    Going through a pretty nasty bout now. The lack of appetite not being able to eat much solid food...being afraid to eat...being afraid to try to get some movement.

    Could go on and on. My GP initially ordered a ct scan and referred me to a gi spec who ordered a colonoscopy. Got the colonoscopy scheduled before the ct scan.

    Keep reading cold compresses but havent teied them yet.

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    • Posted

      Robert you are correct the psyllium husk is a god send. Ask Felinia she now takes it twice per day instead of one. I use the Metamucil in its sugar free powder form. I take it twice per day in 2 teaspoons in 12 ounces of water and I have been pain free six years. For me the only downside is I have several bowel movements per day and typically within the first hour when I wake up in morning. Once I feel my colon is cleaned out I am ready to take on the day without any issues. The product does stop mild diarrhea and it will not make you gasey. Good luck.

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