dizziness

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Oh well folks soooo fed up of feeling like this pointless going to my g.p they havent a clue its really starting to get me down think ive hit the bottom of the barrel still awaiting for an appointment for an audiologist feels if my life is just a waiting game dont know how much more i can cope with 😭

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  • Posted

    Hey Alison,

    sorry to hear you are feeling so poorly in more ways than one.

    Everybody on here has a story to tell and how bad they are, and of course this is what this site is for to talk to others to get their views and support.

    In my experience I have had to nag nag and nag again to get some relief so please dont give up, hang in there and keep writing messages on here and we will support you, through thick and thin.

    You need that specialist appointment asap, so this is where the nagging comes in.

    Alison, hang in there, dont give up, we are all behind you.

    Good luck and take care

    let us know how you get on and if you want to just let of steam we really dont mind.

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    • Posted

      What do you mean by nagging nagging my gp is it ? Im allways going to see my gp all this has been going on a year now and my gp dont know how she can help me shes told me this other than refer me i had to wait 8mths to see a neuro it is really frightening me as i havent had a diagnosis either thank you im really glad i found this site i stumbled across it searching the net about diziness x
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    • Posted

      Hi Alison,

      In the interim period of waiting for the specialist appointment, you could do with something to help you deal with this, apart from talking on here about it,  I have had quite a bit of relief with Nortryptiline, you can take a higher dose to help you with how you are feeling in general, or lower dose for neuropathic pain.

      Really happy to help you any way I can

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    • Posted

      I am on 30mg nortriptylene been on them for 7mths and on prozac and stemetil ant thyroxine if you shook me id rattle never taken tablets in my life made up for it now tho ppl are so helpfull on here i know it sounds awful but i thought i was suffering on my own till i found this site.
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  • Posted

    I feel your frustration I have been suffering from blackouts, dizziness, tinnitus, blurred vision etc for 4 months now, I can no longer drive and am having to do reduced hours at work due to tiredness from either condition or the Epilim 1200mg I am taking to treat the migraines. They last for 2 weeks every month and I am at the end of my tether, I am under a neurologist and he says it will get better I just hope it is soon!

    We are all here for you, don't give up x

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    • Posted

      Hi alex i hope you get better soon its an awful thing i feel spaced out like as if im vacant just wish it would go away .
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  • Posted

    Hi.

    I have spent 2 years on n off, first of all suffering from dizziness & vertigo then progressing to include neurological symptoms like memory loss & confusion.

    I was initially diagnosed with migrainous vertigo and treated for that for nearly 18 months before a neurologist spotted blood tests taken 2 years previous had shown I was seriously deficient in Vitamin B12 but it had not been picked up.

    I have since received a course of B12 injections & 95% of my symptoms disappeared within 6 weeks!!

    The neurologist who spotted my deficiency has honestly saved my life, get checked please!!

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    • Posted

      Omg what is b12 ive seen 2 neuros and ent doc and an ent surgeon none of them could help me ive had it a year now driving me crazy !
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    • Posted

      Google it & see if your symptoms match. You get B12 from certain foods but some conditions cause your body to reject it causing all sorts of symptoms including those I've just described. My GP didn't believe my neurologist but as I say she's saved my life as far as I'm concerned.
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  • Posted

    PS. I saw several specialists including ENT & neurologist & they all missed it too. A 2nd neurologist spotted it on my notes within 2 mins of meeting me, unfortunately this was 2 years down the line!
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  • Posted

    Hi Alison, one thing I have learned is to keep a diary especially when seeing a consultant. Also write down things you need to discuss so you don't leave thinking you should have asked something.

    The other thing I have learned is that this forum has shown me many others who suffer far worse than me and the kind words of others has made me stronger. I hope you get some answers. Persevere.

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  • Posted

    Hi Alison, You are not alone , many have been where you are now I have several times but with self determination you will find a way through it.Educate yourself on the web.Migraine trust is a good start.The UCL Neurology and Neurosurgery Hospital is another for good information and list of consultants who specialise in certain conditions.Ask for a second opinion and referral to specialised consultant .Meanwhile you take charge by reading up , keeping a diary noting when, where, how long, triggers,etc

    You are not alone it took me three years before I finally found a really good consultant but I did and do have doctors who are concerned and are learning themselves about it.They are caring and understanding. Can you see another GP for a second opinion? No doubt your feeling angry because you feel no one is listening or doing anything, read other s here  they have been where you are.You will feel better in yourself when you learn more about it and get to know who really does have the knowledge skill and professionalism to help you.Meanwhile remember you are not alone here.Rant when you want to as long as it's not abusive language have a good moan , and good luck you will improve withe the proper help.

    There is a drug that can help some cases that has to be prescribed by named patient basis by a consultant .Its not freely available on the NHS

    yet and some side effects can be damaging others feel a lot better on it.

    One friend has got her life back, her job back and back to driving it's been very successful for her.Its not always the case but it's worth asking about when you do enquire about a consultant.Educate your doctor alittle in an enlightening manner , many work so many hours they don't keep up with what's being developed .Good luck .I wish you a brighter day tomorrow .

    Yvonne.

     

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