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Dizziness

Posted , 9 users are following.

alison17886
alison17886

Hi folks just an update still severly dizzy its ruining me I feel I dont want to be here anymore its ruling me cant get any help.off the consultant any ideas to help would be much appreciated swaying and ears feel full all the time im a recluise dont go outside the house and my anxiety is through the roof x

0 likes, 27 replies

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  • Waffalobill
    Waffalobill alison17886

    Posted

    Doc has me on diuretics to try to get rid of excess fluid caused by menieres. Not working so far. He says 80% of the time it works. Saw him about 2 weeks ago and he doubled the dose. Told me to call in a month to tell him if there's any change.

    • alison17886
      alison17886 Waffalobill

      Posted

      They didnt work with me either why cant they look further into dizziness they dont seem to have a clue its killing me slowly with all the tablets ive taken caused me gall stones had to have my gall bladder out I feel like no1 can help me x
    • Waffalobill
      Waffalobill alison17886

      Posted

      They have more aggressive treatments, operations, injections of steroids threw your ear drums etc. But I have been dealing with it so long and it's so out of control now. The specialist j see now is expensive and I can't work. I am beginning to drown in debt fast and have no relief.

    • alison17886
      alison17886 Waffalobill

      Posted

      I know how you feel I lost my job 3yrs ago cos of tge damn dizziness its a hell of a thing x
  • gillian76726
    gillian76726 alison17886

    Posted

    I wouldn't take any meds after the first few they tried. MAde me feel,worse! Propanol, Bethistine, another one i cant pronounce!, Amiltyptaline!! If,you read the side effects you'll not touch them Ever!!

    i now use all natural,things, do exercises, have Bowen therapy once a month. Younhave to research this conditon as relying on Gp!s is a waste of time. Well it wasmfor me. Even the consultants i saw 4 or 5, never gave me a precise diagnosis despite all their tests!!

  • lily08036
    lily08036 alison17886

    Posted

    Hi Alison

    I completely understand how you're feeling. I get that swaying motion sickness that I'm nauseous. Like I am right now. I've been dealing with this for 6 years and it's gotten worse the last 3. I've seen so many Dr's since the beginning...ive has many MRIs ..bloodwork .. I've seen a few ENT Dr's..reumotologist ..now I'm on my third neurologist and he said is vestibular disorder which I've never been told. He put me on Zoloft mainly for anxiety since I have a hard time in restaurants ..stores.. etc. Last night I had a sleep study..i was so stressed out and upset due to relationship stuff that I couldn't sleep and I think it triggered the swaying motion sickness and naseousness..im still feeling it..really bad . I'm trying to catch up on sleep but I close my eyes and forget it..if it's bad with my eyes open it's horrible with them closed . It sucks!!! But we have to push through. Don't allow this to control your thoughts ..your life. I work ..after I was out of work for two years..i just started in Oct. I have my moments but I can't allow this to beat me down. It already did for far too long. So stay strong and I hope you find some relief

    Blessings

    • alison17886
      alison17886 lily08036

      Posted

      I really dont think I got the strength to keep on going the way I am I could never ever work I dont feel safe out on my own or with some1 I really dont know where to turn as no1 seems to be able to help its so severe with me x
    • lily08036
      lily08036 alison17886

      Posted

      Ive had those thoughts too.. I won't lie. But those thoughts are poison and are keeping you trapped. I'm not dismissing the fact that you are dizzy ..i just don't want you or any of us to allow these thoughts to convince us that there is no hope. Believe me ... I can't stand feeling this way.. I don't understand why this is happening but it is... there are days like last night and today that are so bad I can't think straight . I try to sleep and it's like going upside down ..rightside up on a roller coaster ride that I don't want to be on. I can't eat ...even though I'm starving . I hope we can all get the proper help soon

    • Waffalobill
      Waffalobill alison17886

      Posted

      I applied for disability . Doc told me to cause it won't ever go away forever. I was denied. Sent in my appeal. Can be 2 or 3 years before I see a judge.

    • Waffalobill
      Waffalobill josh30539

      Posted

      Sent them the list of docs and apps I have had. Since August I have had a doc app 3 or 4 times a month. Plus started going up north to a specialist. Hour and a half drive one way. ENT, gp, neurologist, neurotologist, therapy, all the tests, etc etc. Now I had to hire a lawyer and wait to see a judge. Said it could be 2 years at least.
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