Dizziness

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Hi I really need to help! I’ve been dizzy on and off for the past 3 years it all started after I had my little girl 3 years ago then went on holiday.. I was traveling back on the plane just about to land when I went so sick and dizzy all of a sudden I then had the feeling for many months then it would go for a few months or more then come back.. it came back again in April this year and I’m still suffering now! I’ve had all kinds of blood tests and different other things including medications but nothing helps.. I’ve been off work sick now for 3 months I’m physically and emotionally drained I’m constantly exhausted weak and non stop dizzy! I’m so bad my husband has had to take time off work to look after me and our kids! I’m literally at my wits end I just don’t no what to do anymore 😩😩😩

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  • Posted

    Have they checked for dislodged crystals?   Keep seeking answers.  A good dizzy doctor will test you in a lot of ways to see if anything major is wrong.  Do you spin?   That is a sign of the crystals dislodged 
    • Posted

      No I don’t spin I just feel as though I’ve got off a roundabout or I’m on a swaying boat.. They haven’t diagnosed anything my doctors are hopeless to be honest been like this for 3 years and still no answers 
  • Posted

    I would recommend seeing an urologist. Perhaps after having a child your hormone levels are a little out of whack. I myself have recently been diagnosed with vestibular migraines. The ontological neurologist attributes this to my low testosterone level that occurred after surgery 3 months ago. He informed me that not all migraines manifest as a severe headache but sometimes the migraine headache can mess with the vestibular nervous center. Vestibular migraines are the second most common reason for balance disorders and vertigo. Have you ever had migraine headaches? Best of luck.
    • Posted

      Yes I had all my hormones check everything came back fine... I suffer with headaches all the time I’m exhausted non stop my eyes hurt I just feel so run down..
  • Posted

    You said you got sick and dizzy on a plane just about to land. Maybe it had to do with the air pressure while descending..and it somehow messed with your ears. But if that was it, I would think the dizzy feeling would go away after a couple days though..it shouldn’t last for months.
  • Posted

    Kelly, while you are actively dizzy currently, you should see an ENT Dr and have a VNG test. That can help diagnose inner ear issues that may be going on. It sounds like they ruled out some things with blood work. Are you having tinnitus or any hearing loss? Any visual symptoms like wavy visions or flashing lines? Do you hear your heartbeat in your head or echoing when you speak?
    • Posted

      I have read your email and convinced that you can give me an appropriate advice. I am suffering balance disorder from September 2017. I visited an ENT Doctor as I was feeling ringing ears and some loss of hearing. The Doctor said that I have a case of crystals displacement and diagnosed tinnitus. He suggested serc tablet 24 mg with tablet ALP .5 mg. This medicine worked and I felt better. But I am not fully recovered. Doctor says that I should keep this medicine taking and reduce the doze when feeling better. Once I left medicine but I could not sleep the whole night and also felt little more balance problems in the next morning. I started taking medicine again. I am 63 and feel that I have been addicted to the said drugs due to its prolonged use. Please suggest what should I do. I want to get rid this medicine. Thanks and regards.
    • Posted

      I would have my doctor order vestibular physical therapy.  They can do all the maneuvers to get the crystals back into place.  My physical therapist said taking meds to help stop the dizziness doesn’t help the brain to retrain itself to function again.  I am so afraid of getting hooked on pills I wouldn’t take them unless absolutely necessary. 
    • Posted

      Very useful. Thanks a lot. Your contribution should be remembered. Thanks once again.
    • Posted

      Arshadou, I think that u are not in US as they don't give Serc (betahistine) here. But I will try to advise. Janet's recommendation of vestibular therapy is good, as it can greatly help residual dizziness issues that resulted from many causes. But I think it's also important to have a good diagnosis. You say you were diagnosed with crystals, which means to me BPPV. This condition should not cause tinnitus or reduced hearing to my understanding. Of course it is possible that you had tinnitus and reduced hearing before your dizziness, and it is coincidental. I think the important question regarding reduced hearing and tinnitus, is does it fluctuate? Does it get louder or hearing more lessened when you have dizzy attacks? Or, did the hearing symptoms come on when the dizziness started? Displaced crystals are usually treated with positioning maneuvers by the ENT, and I don't believe meds are given long-term for this. Having the manuveuvers done usually fixes the problem. I am wondering if you have/had something like menieres or labrynthitis instead? Did the ENT give you a VNG/Caloric test when you presented with the dizziness? Look these tests up. They can help to diagnose an inner ear problem and suggest a cause. Serc is typically prescribed in the UK for Menieres disease.

    • Posted

      Yes im having ringing in my ears and buzzing also a lot of clear fluid dripping from my nose.. Yes I get a pressure in my head that’s almost like a heart beat it’s so awful everyday is like a constant battle 😩

    • Posted

      Many thanks for giving valuable comments and sparing your valuable time. After going through your assessment, I feel that in my first submissions, I have left some important points of my problem which are necessary to be explained now.

      I feel myself normal while in sitting or sleeping positions. Problem arises only when I walk. While walking I feel a burden in my head and at times I feel as if my head is moving left or right. I feel a little dizzines while moving my head from downward to upward. I had also consulted a neurosurgeon who after taking my neck x-rays had pointed out that my c6 and c7 have some degeneration. He diagnosed cervical spondilosis. But my ENT Doctor does not agree to it. I had also consulted an arthopedic surgeon who agrees with ENT. My hearing or tinnitus does not fluctuate nor does it goes louder. It remains the same all the time. Furthermore, I do not have any dizziness attack or I do not know what is dizziness attack. I shall be highly grateful if helps me to diagnose my illness. Regards.

    • Posted

      Arshadou, the fact that it only happens when ambulating leads me to think it could be something called Chronic Subjective Dizziness. See the excerpt I've copied below. It is usually triggered by something, like vestibular migraine. The treatment is SSRI medication, vestibular therapy, and/or cognitive based therapy.

      Symptoms and Diagnostic Criteria

      Patients with CSD describe persistent non-vertiginous dizziness that may be associated with one or more of the following descriptors:

      Light-headedness

      Heavy-headedness

      Unsteadiness while ambulating which is not apparent to others

      Spinning sensation in the head with no motion of the visual field

      Rocking sensation that is not apparent to others

      Feeling that the floor is moving beneath their feet

      Disconnection from the environment

      Chronic hypersensitivity to self-motion

      Locations where symptoms might be particularly bothersome would include grocery stores and shopping malls. The symptoms may wax and wane in severity during the day. Symptoms tend to be less severe in the morning. Symptoms are most severe when the patient is standing and walking, and less severe when sitting or laying down. There can be some positional symptoms as well, but CSD is not benign paroxysmal positional vertigo (BPPV). However, BPPV can lead to CSD. Again, this information comes from the publications by Staab and colleagues.

      Behavioral factors can predispose patients to develop CSD. In particular, and according to Staab (2012), it is anxiety and introversion that predispose patients to develop CSD after a triggering event such as a vestibular neuritis. Anxiety over the symptoms produces a hyper-vigilant state. Both anxiety and depression add to the morbidity.

      CSD occurs in patients without a history of neuro-otologic illness and patients with history of neuro-otologic illness (such as BPPV and/or vestibular neuritis), and in patients with neurological disorders, such as migraine and post-concussion syndrome.

      The most common triggers for CSD include:

      Peripheral and central vestibular system disorders, e.g., vestibular neuritis, BPPV (25%)

      Panic attacks (especially for young patients), (15-20%)

      Migrainous vertigo (15-20%)

      Generalized anxiety disorder (GAD) (15%)

      Mild traumatic brain injury (10-15%)

      Dysautonomias (7%)

      Dysrhythmias (1-2%)

      Topping the list are peripheral and central vestibular system impairments, panic attacks and migrainous vertigo.

    • Posted

      I am really impressed by the cooperation you extended. Thanks. The last question I have in my mind that which specialist doctor should I see, ENT or Neurosurgeon. Regards.
    • Posted

      So if its ENT related they would ref you for vestibular testing if you know 100% I have seen an audiologist also where my ears looked completely normal I also had physio on my neck I see a neuro psychiatrist where he had diagnosed me with gluten ataxia .. have you had an mri yet .. ?? If it's easier email me directly abd I'll give u my number too much to text

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • Posted

      Arshadou, it is hard to say if an ENT, neurologist (don't think u need a neurosurgeon) or a primary care Dr is best. It really depends on if the Dr is aware of CSD and how to treat it. I have been to some horrible ENTs, and then a great one. Same with neurology. Most specialists will tend to diagnose within their specialty. But regardless of if you had an actual beginning event like BPPV or migraine, this CSD sounds likely because of the time it's gone on, and your specific symptoms. If you have a primary dr, you might want to start there, and perhaps bring in the articles on CSD, which are easily found online. As far as a general recommendation for the best type of Dr to see for undiagnosed dizzy/balance disorders, a Neuro-otologist or balance disorder expert seems to be the most knowledgeable on all the potential dizziness disorders.

    • Posted

      Thanks with due respect. I have planned to a neurologist today. I will submit the progress in 03 days. One day for consultation and 02 days to see the affects of medicine as may be prescribed by the neurologist. Regards.
    • Posted

      No I haven’t tried steroids I’ll soeak with my doctor about that thank you! 

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