Dizziness during deep sleep

thanks for your reply . my dix hallpike test is normal so ENT send me to neurologist he gave me different medicines but my condition is still same. any suggestion please

neurotologist is the doc you need to see. a otolaryngologist is just a ent who does surgeries on ear nose throat and neck etc. neurotologist deals with vestibular issues including connections between the ears , vestibular system and your brain. depending on where you live anyway. some places/countries dont have these specialists. a neurotologist is who helped me with my issues after 12 years of neurologists,ents, otolaryngologist guessing at what i had. i have menieres disease.

did u have same symptoms ? for me it increases with the increase in anxiety.

is it a type of epilepsy.

what medications were you prescribed as i have not felt less dizzy with anti_anxiety meds

i was on different medications at diff period of time like virtegene, valium, xanax, cepralex, doc gave me anti epilepsy medicines also like trileptal keppra that made my condition worst now i am on vimpat and cepralex but actually nothing worked out my condition is still same

You are extremely overmedicated for having no diagnosis at all ,you just wrote a horror list of medicines with serious side effects and addictive . I suspect you suffer from extreme anxiety and-or depression which can trigger many health symptoms you're having.

You need to calm down and drift into a very healthy lifestyle with no smoke ,alcohol ,drugs ,caffeine .

Have natural healthy light meals ,sleep 8 hours

In a few weeks you'll be back to normal

i tried everything you mentioned nothing helped me. i have a strong feeling that my medications are not relevant to my condition but doctors are insisting i am scared to stop these medicines

I guess you are from the UK? As anti anxiety meds seem to be the answer to everything over here!

Gotta love all the non NHS/UK replies as over here, even if you're taken seriously it would take years to see any of the specialists that get recommended and as for ruling out serious things people are waiting up to a year to see a neurologist and maybe then getting referred for a brain scan.

I was off and on dizzy for 6 months before it became 24/7 severe 21 months ago. Complained to my GP the whole time when it was off and on, was taken to A&E when it became constant and it took a further 3 months to get referred to a neuro and i then waited 9 months👎

Since then i was referred to UCLH London in December and that has been a balls up, so still haven't been, not been to work for nearly 2 years now and i have young family to support.

SORRY FOR THE RANT!

And some areas people can't even get a GP appt for 3 weeks! Love the adverts "if you've had a cough for a certain amount of time, blah,blah,blah, see your GP"! Well you can add 3 weeks to that CERTAIN AMOUNT OF TIME!👎👎👎👎

yes. alot of the same symptoms. menieres is a build up of fluid in the inner ear. causes vertigo and dizziness, unbalance, headaches, whole list of things. its very hard to diagnose. docs who specialize in it can be hard to find. took 10 years of it to finally get to the right doc and the wait to see him was long. valium helps in low doses but the disease progresses til it doesn't help much. it also makes you go deaf eventually. theres no cure. they try to limit the attacks. only thing can be done.

@ Waffalobill , I was lucky that my ENT diagnosed me immediately with Meniere but I agree with you that sometimes its difficult to diagnose for a long time. If you have Meniere's attacks sometimes I tell you what helps me , before I reach for medicines ,If I am home I take a long shower which helps reverse water retention that causes the swelling of the inner ear , otherwise I will walk nonstop for 4 hours which keeps my Meniere symptoms at the early mild stage without worsening

Hope it helps.

i tryed about everything. including diuretics,diet,gentamicin injections. last year i had endolymphatic sac decompression surgery. it helped a little.

Sorry to hear that , you seem to have a worse Meniere than me with more complications ,can I ask your age and how often you get Meniere's attacks?

You are making exactly my point , . Your anxiety plus the side effect of all your meds are giving you hell , and if you are really addicted is going to be difficult to end those medicines ,but you have to start somewhere.

I had a similar experience with panic attacks and Ativan medicine in 2011 , after 2 months on a very low dose I found myself addicted ,I stopped immediately and was so sick for 4 days ,and I decide to manage my panic attacks until they ended eventually.

i am 55. doc told me i have it bad. i have attacks daily. its not settling down even after surgery. might need nerve section.

Did you address salt and alcohol ?

What is the timeline and progression of symptoms?

When I had Meniere ,the symptoms started with light dizziness ,unsteady and a little spinning then it progressed to profuse sweating ,then very dry mouth , nausea and crazy spinning.

Is it similar for you ?

im from the U.S.

no need to apologize... i understand

from the U.S.

never use salt. always low sodium diet. never use alcohol or drugs. had first vertigo episode 12 years ago. no warning. had second one a year and a half later. then they started to come once a year, then twice a year. advanced til i was getting them every day.

I almost have a feeling that your Vertigo is not Meniere which lasts between 2 and 4 hours and after you are back to normal , that's what my ENT told me.

i have had brief bouts, have had them last 3 days. never return to normal. dizzy 24/7 from it. short spells that go away can be bppv. longer spells are not. after having extensive testing everything else gets eliminated. without a doubt i have it. my father had it. his mother had it. her father had it. a ent isnt trained in diagnosis of menieres. he can take a educated guess but that's about all it is. a neurotologist specializes in this field. the one i go to has been doing it for over 30 years. many things can cause vertigo but if all other possible causes are eliminated, its menieres. after 12 years of testing i am sure hes right.