Posted , 12 users are following.
I've been dizzy for 10 years last March. I've noticed that being warm is making it worse.
Any other long term CONSTANTLY dizzy people having the same reaction?
It's 34 degrees here and I'm going crazy.
0 likes, 23 replies
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melissaraborn sarah72691
Posted
Hi Sarah! I definitely have more spells when I get hot, especially my face! If I wear sweatshirts in the winter, I get hot, and have more vertigo. I'm not sure why.
Olizzieo melissaraborn
Posted
Sochima822 sarah72691
Posted
That is hot! No, can't say I share the same, I get it when I bend down mostly or tilt my head to one side. Stay cool!
dizzyear sarah72691
Posted
Hi Sarah,
Sorry you have been dizzy so long. I am also past the 10 year mark and have fairly constant dizziness, not vertigo room spinning dizzy, but more of an imbalance unsteadiness type of dizzy. I don't notice any difference with temperature. Did you finally get a diagnosis?
gillian76726 sarah72691
Posted
rocksolid sarah72691
Posted
patty818 sarah72691
Posted
My 34degrees, were are you? I'm in Florida and it 98 here, I would love it to be 50 let alone 34, which it almost never gets here. I would be freezing at 34.
Tens years that's a long time, I've had MAV for a year. But the only heat thing I've noticed is when I have a hot flash, right before it starts I feel dizzier and during more dizzy. It's kind of weird but that's how it is. I know when Perimenopaus started 6 years ago I had dizziness and at that time I was dx'd with bppv and rid the reply and Brandt doroff exercises and it went away until a year ago when this MAV hit, which was in the 3 rd rear of post menopaus. I wonder if hormones have something to do with, but men get this so maybe not.
The whole mess is awful, but I hope you feel better and can stay cool
Olizzieo patty818
Posted
34 may be Celcius. It's a shame Patient doesn't automatically tell us where we all are in the world.
gillian76726 patty818
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arria sarah72691
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patty818 arria
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I'm in Florida to, in Sarasota. Where are you? I know Florida weather isn't only hot but humid and most days in the summer it's like a sauna. I got in my car the other day and the temp on my outside thermometer was 106. I can't wait til the humidity starts to drop again.
arria patty818
Posted
I'm in West Palm beach a couple of degrees hotter than you, but I came from north of England so FL knocks me down :-)
patty818 arria
Posted
I have relatives in England and the temps are a lot cooler than here. I was born here and you would think I would be used to it but I'm not. It seems to be getting hotter every year and I think this has been the hottest summer in a long time. I guess this menopause isn't helping coz I am just warm all the time.
dizzyear arria
Posted
I see we both have the same description for our dizziness (constant and not spinny). Did you ever get a diagnosis?
arria dizzyear
Posted
Hi Dizzyear, You made me go look at old paperwork to see if I ever got a diagnosis. I see about 6 months after very violent spinning attack (hospital) I got 'hypoactive labyrinth and peripheral vestibulopathy'. My hearing is good and I do not have migraines,'tho my Dr - otolaryngologist likes to focus on those because he has nothing else! Vestibular neuritis is inflammation of balance nerve - sounds like me. I asked Dr if I had inflammation but he said there was no way to tell. It is my personal opinion that my canals are atrophied, aged and cannot come back. At least 1/2 of us are idiopathic - no know cause. Keep on researching.
arria dizzyear
Posted
Some of the more recent info for doing your own diagnosis is Tampa Bay Hearing & Balance Center 'Vestibular Neuritis and Viral Labyrinthitis' 8 pages, addresses post mortem info. Dig in!
dizzyear arria
Posted
Thank you for taking the time to reply and provide additional information. I was finally diagnoised about 4 years ago with Superior Canal Dehiscense, one of the more rare forms of constant dizziness. I definately feel for others that have long term dizziness. It can be a long road to get a good diagnosis.
arria dizzyear
Posted
Oh! good luck with your 'unusual' diagnosis. I always get things with 'don't know' diagnosis. I am suspicious of VZV or Lyme disease involvement. Had Lyme for many years before identified. Fortunately I am retired and can relax and nap a lot because of extreme fatigue. My fatigue is worse than imbalance. I am giving up on Drs.
All the Best.