Dizzy and Light Headedness
Posted , 11 users are following.
Hello,
I have had dizzyness and light headedness for almost 6 months. It started in early January of 2014. At first I had a feeling that the room was spinning. Just like I was on a merry-go-round. Nausea followed and I thought it was the flu. No fever, no chills, no cold feet though. TO STOP THE NAUSEA I GOT COLA SYRUP from the pharmacy. The cola syrup mixed with a little water stopped the nausea so fast it was unbelieveable. I recommend getting some cola syrup if you have any possibility of nausea.
I have had MRI and CAT scan with contrast, saw an ENT had all of their tests, gotten therapy where they flipped me around. I have been diagnosed with Ménière's disease, but many people with whom I have spoken have known someone that had what I describe and they were told it was a virus. Nothing has arrested the feeling like I am not me. It is very hard to concentrate and I could not do my job if I had to go back to work. I should not be driving the car because I am not aware of all that is going on around me. Drugs don't help.
I have made some progress in lessening the feeling with time passing and all of the exercises I've been doing, however at about 4 1/2 months I leaned over to make my bed and the room began to spin again. I had to lay down for about 2 hours befor I could function again. Laying down does help my perticular situation and I find that the dizzyness and light headedness get worse when ever I sit up or stand up. Staying busy does not seem to make any difference, in fact the whole time that I'm busy I am stumbling around and knocking things over and making messes. It is very debilitating to live this way.
I am worried that I will suffer an attack while driving and so I don't drive unless I cannot find a ride to my doctor appointments.
Thank you for listening and I hope I can help someone with my bit of information about the COLA SYRUP. I will monitor to find more information on what I have.
Ben 18JUN2014
1 like, 36 replies
Babz36 ben99468
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I've seen a neuro physio and am now doing VRT which initially made me feel horrendous but I think has really helped me. I've not seen ENT as there is a 9 month waiting list and I've not had any MRI or anything as yet. (I live in the UK) hang in there. Keep active but don't overdo it, rest when you need to. Keep well hydrated, eat regularly but not too much sugar and salt and avoid caffeine. Are you sure it's menieres??? With you bending to do your bed and it came on or sounds a bit like BPPV. It may be worth seeing you Dr again to discuss it.
Anyway keep smiling and remember you aren't alone! Xxxx
Fudgeybear1 ben99468
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Wendl Fudgeybear1
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I would not wish this condition on anyone,but am really pleased to know that there are others around who understand what I have been describing to my doctors.
Fudgeybear1 Wendl
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Wendl Fudgeybear1
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You are right,theytry to tell you it is depression,which in a way it is,but it is only SINCE the vertigo attacks.I resist the antidepressants they want tp prescribe for me as I know that it would cause more problems.
wendl.
ben99468
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I am blessed with an employer who is standing way back out of the way while I battle with this health disorder. Oh I am sure that eventually I will have to try to go back to work or quit, but for now they are not pressureing me to hurry up. My health care costs are paid for by Blue Cross Blue Shield Insurance ( l live in the States) and so far they have paid over $20,000 for doctors and all of the various tests and diagnostics, but it seems like all of the Doctors involved are looking for the preverbial silver bullet, something to be revealed by tests, rather than by knowledge of the situation. Not once has anyone ever mentioned that it might be a virus, and to date no one has prescribed antibiotics for it.
My original refferal to an ENT was to rule out BPPV. At the ENT office they flipped me around on a table and told me to go home without leaning over or turning my head and to stay upright for 24 hours. That was supposed to put a "calcium crystal" back into place. It made no difference. Then the ENT did a lot of tests on my ears with video cameras aimed at my eyes to track eye movement. They blew hot air than cold air into both of my ears. Next they put head phones on me and sent sounds like rapping or knocking into my ears alternately for 20 minutes at a time. Finally they did a simple hearing test which I failed miserably in my left ear. At that time they decided I had the symtoms of Ménière's. IN MY LEFT EAR .
Well, no one listened to me when I told them that my left ear has been subjected to loud noise at work for the last 35 years. I knew full well that I couldn't hear as well out of it. But I could hear them and I seem to do ok listening to anything I want to. They didn't pay any attention to me when I told them that I had a fullness in my RIGHT EAR, that my RIGHT EAR felt like it was burning and itched way down deep and that no amount of scratching or pulling or wiggling my ear helped stop the itch. Finally, in the notes to my GP no one mentioned that when it first happened I was seeing double, it was as if I never told them, but I did. I told them that I could not focus both of my eyes on the same thing, and to watch TV I had to cover one eye. They seem to disregard my input and keep using all their "big guns" to find the answer.
I have told all of the doctors that I had just finished doing a period of 9 years working from Midnight to morning, and made sure they understood that I may have a body circadian issue, but it is not keeping me from sleeping. But they all seem to think everyone needs to sleep at night and a lot of hours uninteruped.
Next, my Neurologist asked me to have a sleep study done, which if you ask me is unrevealing because those people see everyone as having "sleep apnea" to some degree, and indeed I was diagnosed with a pretty bad case of sleep apnea. I told them that I sleep a lot, and when ever I want, and I do not feel that tired. I sleep in one to 2 hour intervals, day or night, because I do not work right now. I am under no pressure to sleep in a hurry and get back to work or anywhere else for that matter. Again they are looking for the "silver bullet" and got me a cpap machine and told me to start sleeping with it. So far it hasn't helped either. I do feel more rested using it, but the feeling that I can not concentrate is still there.
Currently I am getting Physical Therapy to try to lesson the effects on my feeling of well being. The therapy is aimed at desensitizing me to the feeling of disorientation and drunkeness. I honestly believe the PT people are going through motions that are normally done to patients that do indeed have BPPV. Occaisionally they put me though a manover that brings on a rush of the feeling of instability, but it is always on the RIGHT EAR side. The left ear manovers don't do anything.
I feel like no one is hearing me. My next ENT office visit is a week away. I am going to try to make them hear that my RIGHT EAR is the one that occaisionally feels full and hot and painful, and the moves at PT for RIGHT EAR BPPV sometimes make me dizzy, but I have doubts if they will listen.
I find solice in them doing all of the scans and telling me that it is not from a stroke or tumor, so I don't get the panic attack that I read so many have. I simply tell myself that for the moment I am out of control, but it will come back eventually and hopefullly through internet education and forums like this one I will find out what is really going on. My thanks to Al Gore for inventing the internet!
Thank you
Ben
Wendl ben99468
Posted
it really is frustreting that the doctors do NOT listen.Quite frankly I think that they just don't know enough about the condition and that it is all trial and error.
Nevertheless,the bottom line is that it has not been cured,and consequently it plays havoc with getting on with normal day to day life.Will keep in touch.
Wendl.
Fudgeybear1 ben99468
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Wendl ben99468
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Today, hardly been able to do anything at all because I feel so unsteady and I am constantly afraid that I will either pass out or collapse ,and that no one will know.
it is terrifying to feel like this most of the time.I am sure that t am seriously ill.
Fudgeybear1 Wendl
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Babz36 Wendl
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Things I find help me have more good days than bad are avoiding caffeine, keeping well hydrated, not staying up too late, avoiding alcohol and doing stuff but not overdoing it.
My neuro physio said to me that this is like a bruise, stroke it gently and it will heal, keep poking it and it will get much worse before it gets better! So with that she means keep active but DONT push yourself too hard. Hope that helps xxxxx
iainc ben99468
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As a result of this I now have severe tinnitus in both ears and suffer from regular bouts of Vertigo. I thought that I had the vertigo pretty much under control by cutting out caffine and drinkinig loads of water (up to 4 litres a day). My daily dizzy spells stopped after a few weeks and had no major vertigo attacks for around a year, until Sunday night when for no apparant reason it came back. I was barely able to walk without holding on to anything near me.
A couple of days on now and it is improving, still feel like I'm walking about on board a ship.
Unfortunately, during my many visits to the doctor, I have been told (many times) that there is no cure and that I was doing the right thing by keeping myself hydrated as much as possible. Long term medication is also not the answer as apparently I was becoming immune to Serc and others I have tried over the years.
Sorry i don't have any answers but would certainly suggest that 3 - 4 Litres of water per day.
anisha65 ben99468
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tommy2tone ben99468
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Fudgeybear1 tommy2tone
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Fudgeybear1 tommy2tone
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tommy2tone Fudgeybear1
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Fudgeybear1 tommy2tone
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JoeRay776 Fudgeybear1
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Fudgeybear1 JoeRay776
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