Dizzy and Light Headedness

Posted , 11 users are following.

Hello,

I have had dizzyness and light headedness for almost 6 months.  It started in early January of 2014.  At first I had a feeling that the room was spinning.  Just like I was on a merry-go-round.  Nausea followed and I thought it was the flu.  No fever, no chills, no cold feet though.  TO STOP THE NAUSEA I GOT COLA SYRUP from the pharmacy.  The cola syrup mixed with a little water stopped the nausea so fast it was unbelieveable.  I recommend getting some cola syrup if you have any possibility of nausea.

I have had MRI and CAT scan with contrast, saw an ENT had all of their tests, gotten therapy where they flipped me around.  I have been diagnosed with Ménière's disease, but many people with whom I have spoken have known someone that had what I describe and they were told it was a virus.  Nothing has arrested the feeling like I am not me.  It is very hard to concentrate and I could not do my job if I had to go back to work.  I should not be driving the car because I am not aware of all that is going on around me.  Drugs don't help.  

I have made some progress in lessening the feeling with time passing and all of the exercises I've been doing, however at about 4 1/2 months I leaned over to make my bed and the room began to spin again.  I had to lay down for about 2 hours befor I could function again.  Laying down does help my perticular situation and I find that the dizzyness and light headedness get worse when ever I sit up or stand up.  Staying busy does not seem to make any difference, in fact the whole time that I'm busy  I am stumbling around and knocking things over and making messes.  It is very debilitating to live this way. 

I am worried that I will suffer an attack while driving and so I don't drive unless I cannot find a ride to my doctor appointments.

Thank you for listening and I hope I can help someone with my bit of information about the COLA SYRUP.  I will monitor to find more information on what I have.

Ben 18JUN2014  

1 like, 36 replies

36 Replies

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  • Posted

    Hi Ben.  So far your symptoms come closest to mine.  In addition when I bend over I don't hear well, when I stand up straight the hearing returns.  Ask your doctor about will you please. JoeRay776
    • Posted

      Yes I will ask about the hearing issue you brought up when I meet with them on October 2. 

      If you care to read it, I gave a lot of info to Brenda71967 just a few hours ago.  There may be something of value for you if you take a look. 

      Ben

      30SEP2014

  • Posted

    OK here is the skinny:

    I had my 2nd opinion rendered today and I will share the results and answer JoeRay776's question about bending over.

    I just returned from the Universtiy of Michigan Hospital in Ann Arbor Michigan  ---where I got a second opinion---  about my problems with balance, poor eye control, unusually quick fatigue, inability to concentrate, feeling of lightheadedness, giddiness, anxiety, panic and general feeling that I am not myself and cannot do the things that I used to do normally. This seemed to be a lot of symptoms and I was very worried that they were caused by something very complicated.  As it turns out it is not all that complicated, the symptoms are all related and the fix is exercises and time to heal.

    Pending another look at the two major tests that I had, the MRI and CAT SCAN W/CONTRAST,  It is the opinion of this medical group that I do NOT have  Ménière's disease, as the previous team suggested.  I have the same thing you have heard of so many times; Labyrinthitis.   More commonly called Vestibular neuritis here in the states. There is really no medication for it except that you could take vertigo meds or an opiate derivative, but both wear off quickly, become ineffective with repeated use and inhibit rehabilitation.   Opiates, of course,  are very addictive and requires larger and larger doses to work.  So, instead of a medication the doctors prescribe exercises to retrain the brain to work with the signals it is receiving from the damaged inner ear, which is what Labyrinthitis and Vestibular neuritis do, they damage the inner ear sending new and different signals to the brain.  The ear doesn't just hear, it also performs a function that is responsible for balance, and if the balance information is upset it causes all of the symptoms that I described previously. 

    Balance information, I was told, is a very big deal to the brain.  And when our balance is upset due to inner ear inflammation or physical damage, like in a fall or or hard bump to the head, it has a huge effect upon how we feel and think.  It is such a big deal that it causes eyesight to be misaligned, which causes double vision.  And rapid eye movement, which causes confusion that leads to nausea, anxiety and panic etc.  That is why it feels like it is so big and so hard to deal with.  It is a very big deal to the brain because everything we do hinges upon our ability be in balance, and when that is taken away from us by this illness it affects all of our understandings that we have grown used to.  It presents a huge competition for our brain trying to relate all that we have become accustomed to not being the same causing the insecurity we feel.

    Physical therapy for retraining the brain to understand the new signals is the cure.  Much like a stroke victim relearns with therapy after a stroke.  It must be done carefully and not too quickly.  High expectations for rapid recovery are part of the psychological problems associated with Lagyrinthitis or Vestibular neuritis, so we must refrain from expecting rapid results.  I was told that exercises and not too many, not overdoing it is key.  Too much causes psychological problems and so slow and easy, little bit by little bit is the way to success. Much like a child beginning to learn all about the brand new world it is growing up in, we can become overwhelmed, and get cranky and need a nap!  That is a sure sign that we have overdone it, fatigue and exhaustion must be avoided. 

    Once I begin my therapy sessions I will report what they are.

    To answer JoeRay776's question about why bending over causes the problems asked about, one doctor explained that everything is out of normal and the brain is trying to compensate for all the new stimulation, some information gets lost in all the activity. It will return to normal after the brain gets used to the new signals that represent normalcy.

    OK, I hope I have interpreted everything correctly, and not left out anything too important.  I apologize for making it so  wordy and long, but hopefully in language that we can understand, this will make clearer what we have and what we can expect in rehab and relearn.

    Ben

    03OCT14   

     

    • Posted

      Hi,I was told exactly the same things by my doctor,I live in England and I have never been offered the physical therapy you will do.i would be very interested in knowing what exercises you do and if they work please let us know how you get on.x
    • Posted

      Hey fiffy ear have you not been offered VRT? I saw a private neuro physio and was given some exercises to do. I see ENT on Wednesday too xx
    • Posted

      Hi Babz,I was given the the cawthorne cooksey exercises to do about 4months ago,I have suffered for six yrs,last year I felt like I was getting loads better,but in march this year I woke up and couldn't t walk for 2days,I thought I d had vertigo,but the doc said it was an attack of labythrinitus!! So I m back to square one,it's so frustrating,I ve gone back to not being able to walk the dog or go out on my own,in fact I hardly go anywhere because travelling makes me so ill,I ve resorted to getting a tai chi dvd to get some exersie,I won t give up without a fight 😀xx
    • Posted

      Aww bless you :-( ive had this since March too. Again ive been getting better but then I caught a tummy bug and it's made my dizzies worse so this week ive been stuck in the house :-( so frustrating isn't it! Xx
    • Posted

      It is Babz,I can t even walk the dog at the moment,the doctors gave me some tablets for my anxiety,4 months later I realised they were anti depressants!! I m not depressed !! So I came off them and the withdrawl symptoms are a nightmare so that's knocked me back again.it seems like we re just nicely getting things settled and a cold or a bug just knocks us back.i ve forgotten what it feels like to feel normal,I m 45 and I just want to live my life,everyone in my life is kind but they just don t get that I never feel right,I hope you are feeling better soon xx
    • Posted

      I ended up back on anti depressants when this hit me in March. My anxiety has been awful and this week because I've been ill and my dizzies are back its bad again. I'm 37 and a single mum to 4 kids so it's so hard going at times! Are you on facebook? There is a fab support group on there that has helped me loads called labyrinthitis support. Everyone on it understands how horrid this can be. It's comforting to know you aren't the only one xxx
    • Posted

      Aw I don t know you cope!! My husband is on Facebook I will have a look at that site thank you,you re right one of the hardest parts of this is no one around you understands how you feel.Have you tried the cawthorne cooksey exercises they do help relieve some of the symptoms.i hope you re feeling a bit better soon. Take care xxx
    • Posted

      No I've not tried those but I do have them printed off from when I first got ill. Think I'll give them a go! Xxx 
    • Posted

      It can t hurt to try them,but don t do them all straight away,I did and I couldn'twalk in a straight line for the rest of the day 😀I do the eyes focus on the finger sitting down bending over and the head up and down and side to side everyday twice a day.i only do the stand up turn around one when I m not feeling to bad but only do a two or three or the turning around ones if I do more I m all over the place,till you re feeling stronger.the exercises might bring on a slight vertigo feeling but stick with them and it does become easier.xxx
  • Posted

    Hi Ben I've had the same but it comes and goes I never know when it will strike but I always have that unrealy feeling I do drive your unlikely to suffer an attac if you're not moving you head

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