dizzy for too long.

Its so good to hear from someone going through the same but its not good obviously the way you are feelling.a friend of my brother asked my parner the other day "how is emma's AGROPHOBIA?" It just goes to show what my brother must have said or thinks about my illness.. my dog really helped me it was such a turning point as I would not go 100 yards on my own untill I got her.. do you get really low when your dizzy? I cant stop crying and I knw it doesnt help but its hard to be possitive. I prob sound like a moaning depressive but when im not dizzy im actually a chatty happy person.

Hey Emma.... I have been suffering from this since July!! I have got my first ent appointment on the 15th December.... I'm really worried about it.... I had a lot of symptoms in the beginning like pressure in my ears, head, felt dizzy all the time, felt faint and my eyes felt like they were going round in circles and flicking!! I have had blood tests done for quite a lot of things and they all came back fine.... I went to the eye opticians as I was suffering with black spots in my eyes and both times I went it was fine!! I still suffer with dizziness bit not as bad, I still get flicking and feeling like my eyes are going round in circles and get very confused and disorientated like I am forgetting things!! Its unreal.... I get very emotional as I feel on my own sometimes but this forum has helped me because you realise your not on your own.... Sorry for going on!! Kimberley xxx

Hi kimberly yes this site is definitely a help only joined today I didnt want to join a forum before as was scared as to what I might read.. I have at some point or another had every symptom you describe and at first you do feel like you are going mad! Try and write a diary of symptoms as this will help with your appointment as its hard to describe it all when you are there. Dont worry if you cry as I did on each of my appointments and if they are clued up on dizziness then they should kmow that the anxiety goes hand in hand. Once you see the ent things will be a lot clearer and you should have some answers and guide as what to do. For me at last I can talk about it with people who truly knw what its like. x

What's scares me the lost is me thinking I'm losing my mind.... The forgetfulness and confusion is horrible.... How did you deal with this?? What do the ENT do about this?? Therapy?? I'm going to take up yoga as my friend is a teacher and I'm thinking that might help!! I take rescue remedy everyday.... That helps with my hands and arms when they feel shaky!! I'm so happy to talk to people like this that have gone through it or still going through it!! Thankyou for the advice about the ENT!! Xxx

I will say that in the begining I totally lost it , not saying that this is going to happen to you but I cant lie about how things were with me. I was having physio privately as had some redundancy money then, the lovely therapist noticec I was having panic attacks but I didnt realise I was I thought it was part of the illness anyway she contacted my gp told him to ring me and get appt urgent. He was good actually and long story short I ended up reluctantly on citalopram and some diazepam for when I was really anxious. I also had cbt. It was all very hard at the time and I have come a long way from then. I didnt join a forum back then because I just coukdnt bare to read about it all but now this has definitely helped me today.. by the way I have now weaned off the tablets and am not saying you should go down that route its just the way it happened for me. Cbt is good though. also pilates is suppost to be good and jyst being as active as possible..x

Send me your email Emma.... Its easier for me to message you xxx

Did you get my message Emma?? Xxx

Did you get my message emma x

Hi yes have replied. I put my tablet away for a while.

Hi there...hoping you feel better soon. I've had my issues since 2007. It started with anxiety , panic attacks. Well it really started when I was about 15. It was horrible , thought I was going crazy.  I felt like I couldn't breath ..my mother even put a fan but it didn't help. My heart was pounding I felt lightheaded ..uneasy. I went to so many Drs ..ERs since then. As I got older it went away , once in a while I'd have an anxiety attack, I would go thru it but next day I was back to "normal ". In 2007 I went thru a relationship break up...and from there on I started again with the attacks. Back to ERs ..blood work. It affected my job, couldn't eat sleep think...thought I was going to go crazy , again. It lasted for 3 months. My blood pressure has been out of control since then , now on medication for that. Drs said it was depression, stress, anxiety ...nice combo right. I was in denial. I refused to believe them. Went to ENTs , ERs, MRIs ,CT Scans, blood work , test to check equilibrium ( horrible by the way) they put you in the big goggles to see eye movemnt and blow air in ears ...it sends you off spinning...I regret doing that but I had to exclude all possibilities ...so I've continue to see Drs because I said this is more than depression. My symptoms are ..feeling like I'm constantly swaying..standing swilling sitting laying down ...sometimes I close my eyes but it's too much..feels like I got off a carousel. I feel nauseous , headaches like I got hit in the back of the neck with a bat. My face and teeth hurt. Heart beating fast. I walk and I feel like I'm unsteady. So I went to the dr ...new dr last week and I said to myself...ok, this is it , whatever this dr tells me and prescribes to me I'm doing it. I've tried on my own and I can't. So she asked questions regarding my prior dr visits and I told her. The moment I started telling her, I start to cry..I told her how I think it's something else other than depression. She looks at me and says , for you to cry the minute you start to tell me what you're going thru raises a red flag to me. Pretty much she said that's what it is ...severe depression. So, since I never took care of it back then, any little thing can set me off again. I'm someone who dwells on things, thinks about it over and over. Negative thoughts...so I'm seeing someone to talk about my issues and most likely will start taking meds for my issues. That's my story.

 

Wow thats some story! Ive had those tests by the way and yes they are not nice. I've always had a bit of anxiety and this ilness did open up a can of worms with that. I did end up on anti depressants for sometime and that did help with the anxiety and depression. This dizziness is made worse by stresss/ anxiety so sometimes feels like a vicious circle. Have you tried cbt? It did help for me.

What is cbt? I've also had stress test done. My sister mentioned hormones can be off , that can cause these symptoms too. Not that I'm not depressed but it can be that as well. I tried going for walks ..to get some excersise but that was difficult. Felt lightheaded , faint. Like my brain crashing against waves, not hard but enough where I felt like I was on a raft floating. That's a good way to describe I guess. I don't feel motivated, I'm happy but not happy...if that makes sense. I cry because the way I feel. I have a great sense of humor , I'm friendly , kind, giving , caring , loving , respectful towards others...I'm still all that , I just don't have the energy , desire        Ha, I guess you all are my therapists ( :      

I don't mind being open and sharing, that's how we can learn from one another

Cognitive behavioural therapy, its a talking therapy, it works on changing the way we look at things. Google it. My gp refered me.

I have the floaty feeling too I usually say like on a lilo as uts difficult to explain.

Hi Emma,can I ask you what you think about anti depressants,I was on them for a short time this year but came off them as they were making me to sleepy and I wanted to eat everything!! The withdrawl has been hell. And I feel like it's upset my balance agiain.i need to improve my quality of life.i know my doctor will talk about going on another one and I m petrified of all side effects/withdrawls.i know understand if you don t want to answer,but I have read that ADS can help labythrinitis  obviously because it's treating the anxiety.i hope you are feeling well today x

Hi , I think its an individual thing really, I got put on citalopram and it definitely worked for me at the time. I was on them for quite some time but I have weaned off them now. I dont recall any side effects and I weaned off very slow. I was very hesitant to take them in the beginning but it helped me. x

Never had cbt , sounds interesting. I read up on hormones yesterday and that's very interesting as well. It affects so much , Drs won't even think of testing that before prescribing or diagnosing with depression. Unbalanced hormones affect out bodies, mentally and physically. I'm going to ask about that ,  I'm not saying I don't need meds but it won't hurt to have my hormones checked as well. 

Im having a blood test wed to check mine. I asked about it today.

That's good , glad you got that a ken care of. Hopefully my dr will do the same. My blood pressure is up again...ugh. Makes me nervous , scared. I just took my bp pill ,  the other nite it was up too and it wouldn't go down not even after taking pill. It's weird. I know it's up cause I feel my heart racing , lightheaded. I try to relax but it's hard cause I start thinking negative. I'm sure I don't help either by making myself nervous and scared.     

I definitely think your state of mind contributes to the state of your body its just difficult to control nwith so much going on.

take care x

Yes I agree. I manifest it. I can admit it now. It is hard. I can be feeling find and I stop and ask myself ...I'm not swaying ?? No headache? And that's it , I've ruined it. I'm so use to feeling horrible that I question why am I feeling ok today , what's wrong. That's how messed up my thoughts are, so sad. 

Thats why I think cbt might help it does make look at the way you are thinking. Its not a solution but it helps. I used to analyse every symptom when I was really dizzy then I created new ones and the next thing I knew I was checking my legs my veins and so on.. you just need some proper advice and guidance.

That's exactly how I am. Look , honestly I've already checked my blood pressure 3 times and I know it makes it worse because whatever number shows up it's ...I don't know. Bums me out. I'm seeing a psychiatrist next Monday , 

Hopefull the psychiatrist will give you some answers. Mention cbt and see what they say..

I'll mention it. Thank you.