Dizzy spells for 6 months and losing it!

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I have been having vertigo for 6 months.. On my 4th dr and seems I know more than they do.. I have no life anymore as I can't drive, scared to go anywhere and have given up seeing friends because the vertigo is getting worse.. Has gone from less than a minute with moving to 3 minutes and I can just be laying here. I have researched for months and can't seem to find my exact symptoms.. When my vertigo starts I also get tingling on one side. Does anyone know what this could be so I can help my dr find a diagnosis.. Not knowing adds to the anxiety and I am about ready to cry just typing this.

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  • Posted

    Cheryl you are certainly not alone with how you feel,if you continue to read the forum there are so many stories like yours and mine. Unfortunately the dizziness,unbalanced feeling or vertigo takes over your life and you will be so concerned about when it will start again that it causes anxiety and stress which just makes the symptons worse. You can then start avoiding situations like going out supermarkets,cinemas,even crossing the road becomes an issue. I have had to leave a museumn within ten minutes of entering last week,I cannot go to the cinema anymore because I feel everythug that happens. I can't go to restaurants either. It is I portent I think though to go back to your go and say you would like to be referred to a consultant maybe as has been suggested by Anne on here an 
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  • Posted

    Neurotologist. You may have to be quite assertive as the condition is obviously at a stage where it is affecting may aspects of your life. Iam sorry I can't give you any answers but just to say you are not alone in this condition. 
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    • Posted

      Yes, I have stopped many things and all I think about is if each movement I make is going to cause the spinning. I can't believe how just months ago I went on a trip and now I barely leave the house and I am so devastated that these drs rush me through not caring and can't tell me what is wrong... I am almost panicked thinking I have some life threatening thing. I also feel like this is my life forever!!
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  • Posted

    Cheryl  Iam sure it won't be your life forever there is a lot help for,us but it is getting the correct diagnosis that can become the most difficult. Iam fearful for my job at the moment because when the dizziness hits I can't carry on working in the job I do. It takes all of my energy to just stay upright at times. It causes all sorts of problems with your relationships as well. Try and stay positive aboutmthe future and I do in his difficult that is.
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    • Posted

      I think that is what is getting to me the most right now is the not knowing because the right treatment can't begin or at least if it isn't serious I could relax more.

      I don't know how you work. That would be so hard.

      Yes my relationships are suffering.. We had out of town friends 4 different times in Feb/March and I did not visit with them. I'm sure they don't completely understand..only people who go through this can.

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  • Posted

    It is the unpredictable nature of it for me,I always have this fuzzy feeling constantly and then the dizzy spells just hit,I can't hold conversations with people without holding on to a door frame. Uneven surfaces set me off,open spaces,last weeks  was also a crematorium. Just just hoping the vicar didn't ask for everyone to stand throughout  the service. That's what makes it difficult people do not realise what we go through you can sound like a hypochondriac after a while. 
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    • Posted

      I have constant off balance, foggy headed, dizziness and 6 months ago the spinning started.. I thought accepting the off balance was bad enough until the spins started.. That's what freaks me out and like you said never know when it will happen.

      When I do go out to a store, which is not much, I use a rollimg walker.. I can't imagine being out without one anymore.

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  • Posted

    I think it is harder if you are young. I am 70 and the physical part is bad but quality of life is not so terrible as you do not do many of the things the young ones do. If it does not get better it will affect how I interact with my grandchildren. I am able to use my ipad and watch tv. Making meals etc is hard though and my husband is doing most of that. I love to get into the pool but have been told a definite no for that. Other people understand what they want to understand. If they do not feel for you they are not worth having in your life. Having said that I do not think my kids get it either. But it makes them pitch in more. My 13 year old grandson is even making breakfast. Chin up Cheryl and know people on here will listen and understand.
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    • Posted

      I am 56 but my youngest daughter and my 9 year old granddaughter live with us and I like to be able to keep up with their activities because we just adore them but not anymore.. I feel like I am missing out on her growing up and as you know goes quick.

      I am thankful to have found this forum and know people get it even though don't want anyone to have this.

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  • Posted

    Hi Cheryl, Im sure its nothing life threatening, you need to see your GP and get an MRI scan and blood tests just to rule stuff out.  I have had dizziness now for two and a half years 24/7.  Initially it was very scarey and I had two panic attacks.  I eventually got a diagnosis after a year and that is silent migraine.  I have seen endless ENT, a neuro surgeon and now two neurologists.  I have had approx 8 lots of medication, the last being beta blockers which I just giving up with because they give me depression, as if things werent bad enough.  I am still working but it can be hard.  Stress and anxiety def makes it miles worse.  But its hard not to be.  Giving up your social life was the hardest thing and I lost my best friend as she didnt believe I had anything wrong.  I look pretty normal but Im def not.  I try to keep the dizziness a secret at work as I dont want to lose my job.  The lighting really affects me though.  Likewise I cant go into big stores because my  eyes feel like they are being pulled out and sometimes the light on my phone is too bright.  Sometimes this laptop is too painful to use.  I find wearing sunglasses most of the time helps.  I am going to get my new glasses tinted.  I am honestly sick of being dizzy but the stress and anxiety is causes makes it a millions times worse.  I am sometimes better at dealing with it than other times.  I am struggling at the moment.  I need a break from it but that wont happen,  It would appear to be a very common thing and something that cannot exactly be diagnosed.  They seem to just guess.  I dont honestly think silent migraine is right for me, I think I have SCM.  You need to get a scan as a first point to start and then move on from there. 
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    • Posted

      Silent migraine was on my list of research and as you said I wonder if that would be me because I don't exactly fit each thing I research.

      I have problems with my phone and iPad at times too..

      My oldest daughter is always wearing sunglasses even indoors and never could explain why they make her feel better. I hope it is not this!!!!

      I thought I was getting my break because I went 54 hours without a dizzy spell a couple days in a week and then BAM they are back.

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    • Posted

      Paula,

      You mentioned SCM as a possibility for yourself.. I have researched this some and could fit into this category also.. Actually I can fit into alot of the vertigo diseases.. I think it is utterly ridiculous we have to work so hard to find our own diagnosis' but also grateful we are able to in this age.

      My questions are; does SCM cause the spinning vertigo and what kind of dr would I go to for diagnosis/rule out and also treatment if it were so??

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  • Posted

    Yes I agree with Adrian. Go to your Gp, tell the.m You want to be referred to aNeuro  Otologist. they understand all this stuff better than ENTs etc etc. don,t take no for an answer as you are entitled to be referred okY! Out of interest when you say ,these doctors, what kind, gp? Ent? NIf so don,t waste your time in time , they have no idea.  Where do you,live?
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    • Posted

      I agree with most of what the others have said.  My vestibular issues began a year ago and I finally feel like I am nearing the end of my journey with this dreaded condition.  A Otologist, Neuro-Otologist is who you need to be seeing.  They specialize in inner ear issues.  Seeing an ENT is a waste of time as they have very limited knowledge to treat these issues.  The vertigo may be a result of dislodged crystals in the canals off of the Labrynth.  You definitely need an MRI to rule out acoustic neuroma.   You can recover from this, you just need to see the right people in the medical community to identify what you are dealing with.  I am in Alabama.  Seeing specialist in the US is less complicated than it is in the UK.
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