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Dizzy spells for 6 months and losing it!

Posted , 8 users are following.

cheryl02260
cheryl02260

I have been having vertigo for 6 months.. On my 4th dr and seems I know more than they do.. I have no life anymore as I can't drive, scared to go anywhere and have given up seeing friends because the vertigo is getting worse.. Has gone from less than a minute with moving to 3 minutes and I can just be laying here. I have researched for months and can't seem to find my exact symptoms.. When my vertigo starts I also get tingling on one side. Does anyone know what this could be so I can help my dr find a diagnosis.. Not knowing adds to the anxiety and I am about ready to cry just typing this.

0 likes, 28 replies

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  • gillian76726
    gillian76726 cheryl02260

    Posted

    I saw  Neurologist  one time, useless!!! Neuro Otologists specialise in the vestibular system which is what you need, they go into,depth , well they should,anywAy, of your stmptoms. And more able to give a diagnosis followed up by specific treatment.
  • Terry6872737
    Terry6872737 cheryl02260

    Posted

    I agree with most of what the others have said.  My vestibular issues began a year ago and I finally feel like I am nearing the end of my journey with this dreaded condition.  A Otologist, Neuro-Otologist is who you need to be seeing.  They specialize in inner ear issues.  Seeing an ENT is a waste of time as they have very limited knowledge to treat these issues.  The vertigo may be a result of dislodged crystals in the canals off of the Labrynth.  You definitely need an MRI to rule out acoustic neuroma.   You can recover from this, you just need to see the right people in the medical community to identify what you are dealing with.  I am in Alabama.  Seeing specialist in the US is less complicated than it is in the UK.
  • keith31290
    keith31290 cheryl02260

    Posted

    Hi Cheryl

    Can you please confirm you are taking some sort of tablets for the dizziness? There are many good ones out there that certainly help plus loads and loads of info on the net regarding this.

    Keith

    • keith31290
      keith31290 cheryl02260

      Posted

      Oh not good ! I take cinnarizine I think they help me.Are you getting any better since the day it first happened?

      That's me on about 8 weeks now but I am a lot better saying that I am sitting a bit wonky!

    • cheryl02260
      cheryl02260 keith31290

      Posted

      It started 6 months ago and there was a couple times I thought it was going away since I went 2 days without a vertigo spell but then came back. Today has been better and hope it keeps getting better.. Still no diagnosis and turning into anxiety because I never know when it will hit so I usually just stay at home.
    • keith31290
      keith31290 cheryl02260

      Posted

      Oh you have got it tough ! Mines started about 8 weeks ago at work had to get my colleague to call 999 ! I couldn't walk out the building I think that was more of a panic attack it's horrible isn't it.Since then I have been to a&e another twice and around 12 calls to the doctors usually in tears!

      I do think I am getting better last week I went back to work but it wasn't great so I have asked my doc to sign me off for 2 weeks to see if I can finally shift it.my doc has referred me to a Neurologist but it will take a good few weeks.

      Well I wish I could offer some advice but I am not the best person to do that. Keep in touch and let me know how u get on !

    • cheryl02260
      cheryl02260 keith31290

      Posted

      Yes it is horrible and life controlling and all I think about is when I'm going to spin. Do you have a diagnosis?
    • keith31290
      keith31290 cheryl02260

      Posted

      The room doesn't really spin for me that would be terrible had a bad night last night I just seem to get a real sinking feeling that I can't control it also makes my legs very weak for some reason.

      The doctors haven't really done that much so I hope that the neurauligist can be of more help and tell me what's going on,I can't keep taking time of my work it also helps me to compare the first time it happened to now I can see a huge difference in a good way.

      I am going with labryithitis but that's just what I am thinking due to what I have seen online this is also what the doc said when I went to a&e.

      Are you still able to go out for walks ect even if it's local I think it's good to still get out

    • cheryl02260
      cheryl02260 keith31290

      Posted

      I've heard of that sinking feeling or a weighted feeling with these balance disorders.. I have a heavy kind of feeling on one side during my spinning attack. It's hard not to panic sometimes when the body is doing unnatural things that don't make sense and we can't stop.

      Yes I can go for walks and do frequently..

      Shopping, socializing with friends, etc not really because I'm scared and also I have a 24/7 mild dizziness that makes me feel off balance and sometimes just hard to pretend in front of people that I am feeling well like they are.

  • will72
    will72 cheryl02260

    Posted

    When you said tingling on one side the following came to mind. Trigeminal nerve, TMJ, SCM muscle, some sort of muscular trigger point. Look each of these up and get an evalution done on each to rule out. These do cause vertigo. The trick is finding a qualified professional to help. Make sure your well studied to be able to one, find somone qualified in each. Two, when it is done be able to discern if the diagnosis is correct. If not get another opinion. 
    • keith31290
      keith31290 will72

      Posted

      Hi Will

      Hi Will

      When you have gone through labryithitis did you find that if effects your legs ?weird I know but I seem to have got over the worst of the dizziness haven't been dizzy for a

      couple of days now and when it does happen it's just before I go to sleep.i always seem really grogy sore head and very weak legs I think I have just about managed to get rid of this but these extra things worry me

    • will72
      will72 keith31290

      Posted

      my symptoms seem more allergy related and so far more or less controlled through allergy meds. My right leg has felt weak and I noticed this morning my right foot is partially asleep. But I think this is from sitting on my wallet for many hours on end over the weekend. This also happened after I pumped a car tire wth a foot pump made for bicycles well before any Meniers symptoms. Probably in me an irritated nerve. So I'm thinking its a separate deal. Although I am aware MS can play a part in leg symptoms. Please don't let that scare you as it did me. But it probably should be on the list until ruled out. I'm also reading to illustrate as one example. How low serotonin levels affect sleep and can be the cause of sleep issues and anxiety and grinding your teeth at night. I also suspect in myself TMJ. Rather than assume I don't have this condition I'll take the time to rule it out. This is one of  hundreds of such examples of how being deficient in a certain area can play a part in something you would think is totally unrelated. That's why finding a cause is so hard. To me it seems a lot of persons get more caught up in treating symptoms. Which is important but do so while searching for a cause. 
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