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Dizzy Spells when to worry 😢

Posted , 11 users are following.

emma93780
emma93780

Hi I am new to this forum I have been posting in the anxiety one but wanted to see if anyone has some advice?!

I have been suffering with dizzyness for quite a while now, it all started with headaches then I'd get really dizzy, I had a ct scan and all was well however after the birth of my second son in April this year I was laying on the sofa I went to get up and I couldn't focus on anything, I was so dizzy it was unreal, I went to emergency docs who said it was labrythitus and prescribed some tablets which didn't really work! Ever since then I have been so dizzy, I have seen ent and they said all is good nothing to worry about but why do I keep feeling like this? I could be sat at home doing nothing and it just comes over me I go all lightheaded and then I start to sweat and panic that I'm going to pass out its horrible, just walking around sometimes I go dizzy and feel all funny I don't know what to do anymore, I've had bloods etc and all normal I just want to know why I feel so terrible all the time x

2 likes, 58 replies

58 Replies

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  • RaffUK
    RaffUK emma93780

    Posted

    Hi Emma, I have been through the same thing MRI scans etc. In the end I was diagnosed with Ménière's disease. There are so many variation of this condition, mine was mild but made worse when I was stressed.  I saw another specialist who then said I had benign Paroxysmal Positional Vertigo (BPPV) - In the end I was given Betahistine dihydrochloride 8 mg tablets and they work really well. It may be an idea to go back to the doctor and check if you may have something like this. I wish you all the best - Raff

     

    • emma93780
      emma93780 RaffUK

      Posted

      Thank u for your reply, it's just awful living with this everyday, I have tried so many tablets it's unreal! I'm taking sertraline and propanranol for anxiety so I'm not sure if it's one of them causing the issues? I have tried beta histamine but unfortunately ended up in a&e after taking it as some how managed to have an allergic reaction to it I don't know if it's my headaches causing it either, I just can't put my finger on it, I have been told I am extremely dehydrated which could be the reason also but surly not for nearly 7 months is it possible to feel this way?! Before my son was born I was fine had no anxiety no dizzyness etc I did like I say suffer with headaches but they don't seem to think they are migraines etc, I'm sick of going to docs I've been about 30 times in the last year alone x
  • debbie82116
    debbie82116 emma93780

    Posted

    Hi Emma

    Sorry you're suffering with this. Ive had Labyrinthitis before and feel as though it has come back. Go to the link: www.labyrinthitis.org.uk

    You'll see the symptoms two women in the UK had....if these symptoms are similar to yours, you'll have to wait it out. You can try vestibular rehab as well. Helped me out tremendously.

    Debbie

  • crystal29909
    crystal29909 emma93780

    Posted

    hi Emma, dizziness can be so unbearable. mine gradually came on until the end of the week I was so bad I couldn't leave my bed. after many tests mine was diagnosed but it took over a year of physical therapy to get me to the point of feeling normal. after talking to many different people with different diagnosis I have found a few things that help regardless of what causes the dizziness. try not to stress. when you get stressed I'm sure you notice the dizziness get worse. eat healthy, stay well hydrated , stay away from caffienne and get plenty of rest. I realize these all seem so common sense but believe it or not not a lot people abide by these are a normal basis. my daughter used to get anxiety attacks where she couldn't swallow and felt dizzy to the point where she felt like she would pass out but never did. her dr. gave her a depression/anxiety med. sorry I don't know the name of it but I could find out if you want. anyway it has worked awesome for her. good luck.
  • debbie82116
    debbie82116 emma93780

    Posted

    Hi Emma

    Ive had Labyrinthitis and have it again....in my 3rd month now. It is very difficult to be suffering so long...i know!! What helped me most was decreasing my anxiety and vestibular rehab. Please give it a try. You've likely had some vestibular damage in one of your ears. Your brain needs to learn to compensate for the mixed signals it is receiving from the good and bad ear. A therapist who is trained in vestibular rehab can teach you the exercises you need to get well.

    Debbie

    PS: What other symptoms do you have? Clogged up ear, head pressure, nausea?

    • Gilly_flower
      Gilly_flower debbie82116

      Posted

      Hi , hope you dont mind me replying , but do you find yours eyes feel bad with it , 
    • debbie82116
      debbie82116 rita52071

      Posted

      I had labyrinthitis 5 years ago and suffered 50% damage to my balance nerve. Now the dizziness has come back and my ear has been plugged for 3 months
  • baron37
    baron37 emma93780

    Posted

    Hello Emma:

    I have had flare ups of dizziness, headache, blurrines sand nausea for 6 years. Not one Dr. able to diagnose. Had numerous blood tests, MRI, X-ray, sonograms during last 6 years. Have seen 7 different specialists. However, one Dr. prescribed imipramine and that has helped immensely. It is an anti-depressant and has been around a long time. It seems to work for me. Talk to your doctor perhaps he may try it with you.

    Good Luck

  • rita52071
    rita52071 emma93780

    Posted

    Hello....go see a neurologist or a dr that specializes in headache...you may have vestibular migraines.......and no you dont need to get a headache with vestibular migraines......Look it up on computer....Also go get your eyes checked........I hope this helpedrolleyes
  • vanessa1177
    vanessa1177 emma93780

    Posted

    I had dizziness and went to alot of Dr. The important thing is to find the Right Dr. to go to.  Check to see if there are any otoneurologists in your area or any physical therapists that specialize in Dizziness. What area are you in? I went thrhough so many Dr's. and was finally prescribed Ativan because it caused so much anxiety I couldnt sleep for days. I saw an Otoneurologist and I did physical therpy.  I had Vestibular Neuritis and BPPV.  In order for the BPPV to go away you have to get the proper maneuver done so the crystals go back into place. Also, could yo have a Vitamin B12 deficancy because that causes dizziness and unbalance almost like your drunk.
    • debbie82116
      debbie82116 vanessa1177

      Posted

      Hi Vanessa

      With vestibular neuritis, did you have a plugged ear? Pain or pressure in ears?

    • dee50000
      dee50000 vanessa1177

      Posted

      Hi, I may have asked this already, and so, I'm sorry... I have been following several discussions at once and it's gets hard to keep them straight! I was diagnosed with BPPV also, and I do have an imbalace probelm because my calorics test showed dysfunction of the VOR. The Epley manuevers helped one ear, but not the other. I asked the doctor is the 2 conditions were related and he said no. Then I read that they are most certainly are related.

      You had both? Did your BPPV go away when your neuritis cleaered up? I do have inflamation/vestibular neuropathy, but no known reason for it.

      I also have a vitamin B6 defficiency, and feel like I am drunk, like you say. I have to hold onto something when I walk (wall, stick, grocery cart) or else I would for sure zig-zag all over the room. MRI sowed no tumor or any cause for it. I started with the imbalance and then the BPPV started. Everyone tries to fix the vertigo, but the instasbility is worse to deal with on a dail basis.

      My question to you is basically you had them both; did they both go away? Did one cause the other? How are you now? Thanks!

    • vanessa1177
      vanessa1177 debbie82116

      Posted

      Yes, my right ear was plugged up and sometimes both. I would sometimes lay flat on my face. With my nose touching the floor straighten out my neck (that helped to relieve pressure sometimes). Other times I would lay on my back and lift my head and neck up as if I was looking at my toes. That would also help sometimes. I didnt have pain but I would feel the discomfort of the inflammation inside my head by my ears but my actual ear canal wouldnt hurt.  ITs hard to explain but I knew it was the vestibular nerve inside my head because my actual ears wouldnt hurt.  SOmetimes I would do a nasal spray but that jsut caused me more anxiety because of the sterioids. 
    • vanessa1177
      vanessa1177 dee50000

      Posted

      I had both Vestibular Neuritis and BPPV in BOTH ears.  Which is uncommon and made me feel worse about my situations like ("Oh great what else could go wrong of course it would be in both ears!"). Anyway, I had been doing Vestibular Neuritis Therapy for months. I would have some bad days and some good days then the good days started to be more than the bad days. But every once in a while I would have like 5 bad days and I felt like I was going backwards. I no longer felt drunk or would veer to my right side but I still had a sense of unbalance or in a haze. I saw 2 physical therapist....1 for my vestibular therapy and then I left there because I still had the BPPV and saw another physical therapist that worked int he same practice as my Otoneurologist. THe 1st therapist where I would do VRT kept doing the epley maneuver on me but to no avail she tried it like 3 times in 1 week and I still had BPPV.  So when I went to the 2nd Physical therapist he used the goggles and told me that the way my eyes were moving I had BPPV and the crystals were in my lateral canal and that Epley maneuver was not going to fix the crystals in the lateral canal.  Because the Epley maneuver is for a different canal (Made sense to me) so he had me do an excercise called the "Log Roll"  3x's in a row and 2 times a day. for a week.  and he told me not to sleep on my right side because the worse of the BPPV was on my right side. He had me do that for a week and after a week I was better.  Are you in the states? The Vestibular Rehab helped me find my center and I no longer veer to the right.  Since I was going to Vestibular rehab for such a long time that was taken care of first. So when I got the BPPV fixed I was good as new.  Look into that Vitamin B deficiency I saw so many you tube videos of people that felt drunk only to find out that they had a vitamin deficiency and the had to have serious vitamin injections to get that corrected. 
    • debbie82116
      debbie82116 vanessa1177

      Posted

      Hi Vanessa

      How long did it all last? Did the plugging go away first or last?

    • vanessa1177
      vanessa1177 debbie82116

      Posted

      I started at the end of July 2015 and today 12/11/15 I can say I'm 95% better. I havent been discharged yet because I have to go back to the 2nd physical therapist but because of the holidays (Thanksgiving) I've been super busy at home and at work.  During the Thanksgiving week I actually felt a tiny bit of dizziness but I think it was stress and tiredness because I've been fine.  The Plugging would come and go but it started actually staying away on the tail end of things. I think it was after my Vestibular nerve wasn't swollen.
    • dee50000
      dee50000 vanessa1177

      Posted

      My nystagmus is mostly downbeat with sometimes to the left-downbeat, and it usually only happens when I put my head back or down. I have heard about the log roll, but never was told to do that.  Posterior canal problems, are probably the rare ones because of the gravity (being vertical).

      How did you find your "center"?

      I will definitely ask the ENT dr. about the lateral ones. Has this cause back spasms in anyone, because you are walking so "guarded" all the time, so you don't fall?

      I am safest in my bed, nothing hurts and I am not dizzy but that's no way to spend my life! ;-)

    • dee50000
      dee50000 rita52071

      Posted

      Rita, I am pretty sure the log roll is just laying down on your back with your arms to your side, and just rolling to the right, then continuing onto your front, then continuing onto your left side, then ending up on your back, like a 360-degree turn. Might be a little challenging with a now-bad back, but if it will solve this, I will try it.

      Right Vanessa?

    • vanessa1177
      vanessa1177 dee50000

      Posted

      Since my right side was worse. I would sit on the floor legs straight I would turn my head to face the right and with my head turned I would lie down for 60 seconds. Then I would turn my face up to stare at the ceiling for 60 seconds then I would turn my head and face the left for 60 seconds. Then I would turn my whole body and face the floor with my nose touching the floor for 60 seconds and then get up facing the right again and stay sitting straight and looking straight for 60 seconds. They had me doing those excercises 3 times in a row.  2 times a day
    • rita52071
      rita52071 dee50000

      Posted

      I will try anything.......Its like I want them to fing something wrong so they can fix this problem....but of course nothing serious.......dr is putting in for more MRI amd MRA  not exactly sure what they are called...Will let you know when I know.........
    • vanessa1177
      vanessa1177 rita52071

      Posted

      Have you looked for a dizziness specialist in your area? I went through 3 General Dr's, 2 ENT's, 2 Physical Therapists had an MRI done with contrast until I finally went to an Otoneurologist. Yout should also look for a physical therapist that specializes in Dizziness but not those chain Physical therapy places. You need specialized care. I finally cracked from all the pressure and needed Anti-Anxiety meds.
    • vanessa1177
      vanessa1177 rita52071

      Posted

      That is the way I felt, too. Find it and fix it! that's all I asked for. But it wasnt that easy.  I"m sure you'll be right again. If I was able to be right again I'm sure you will be too! Its that alot of Dr's don't know about these things but when yhou find the right one its great.
    • rita52071
      rita52071 vanessa1177

      Posted

      I saw GP 2 ENT's one physical therapist that as far as I know specialized in vertigo......other therapy was also going on there one neurologist and seeing a second one now who specializes in headaches since they told me its migraines with vertigo....The med was working and she said everyday it would get slightly better  well  getting big set back.....and shes not under my insurance  paying lots of money.....I am going to look into a otoneurologist not sure if I saw one of those.....was going to try another ent....so tired of going to drs and no one knows anything....I only went to a doctor twice a year...then this hit   I had cat scan..MRi mra  and she wants to send me back for another MRA
    • rita52071
      rita52071 vanessa1177

      Posted

      i said my Mra cme back fine...she said it was in nrmal range but one side was completely opened for the blood to go to brain and the other side was narrower so not as much is getting to brain...I dont believe this........I think she has no idea whats going on...but she said we will get to the bottom of it.........Lets see
    • vanessa1177
      vanessa1177 rita52071

      Posted

      You probably have not seen an Otoneurologist because they are rare.  I'm in Chicago and there are only 3 in my state and they are all in the same practice.  But the tests and treatments were specialized it just took awhile to get an appt.
    • rita52071
      rita52071 vanessa1177

      Posted

      i was checking before saw an ent whos subspeciality was nerology....right now I feel horrible.............
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