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Dizzy Spells when to worry 😢

Posted , 11 users are following.

emma93780
emma93780

Hi I am new to this forum I have been posting in the anxiety one but wanted to see if anyone has some advice?!

I have been suffering with dizzyness for quite a while now, it all started with headaches then I'd get really dizzy, I had a ct scan and all was well however after the birth of my second son in April this year I was laying on the sofa I went to get up and I couldn't focus on anything, I was so dizzy it was unreal, I went to emergency docs who said it was labrythitus and prescribed some tablets which didn't really work! Ever since then I have been so dizzy, I have seen ent and they said all is good nothing to worry about but why do I keep feeling like this? I could be sat at home doing nothing and it just comes over me I go all lightheaded and then I start to sweat and panic that I'm going to pass out its horrible, just walking around sometimes I go dizzy and feel all funny I don't know what to do anymore, I've had bloods etc and all normal I just want to know why I feel so terrible all the time x

2 likes, 58 replies

58 Replies

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  • Gilly_flower
    Gilly_flower emma93780

    Posted

    Hi emma , I have been very unwell with bppv vertigo , which is what they think it is , its a awlful feeling , it's been 8 weeks now ,, waiting to see ent , my eyes feel so bad with , and of balance , a feeling like I'm moving all the time , I had this once years ago , and in the end it  slowly got better , but I really want to know what exactly wrong , I was fine then just woke up with this , been out to day but find it hard like I'm floating around ,   
    • rita52071
      rita52071 Gilly_flower

      Posted

      hi.....found a web site don't know if it will help  for the UK to find doctores who treat and test vertical heterophia........They also check your eyes etc...testing is a little over an hour and a half....I would plan on being there for at least 2 hours.....specsavers ..........not sure how good it is because I cant use it..........have you gone for vestibular rehab???  Enjoy your grandson this weekend......lol
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi Rita hope your not too bad today,I started off good and now my eyes feel all weird,im off balance and spinning on and off,I all if a sudden came over extremely tired,have you experienced this?x
  • lisa08672
    lisa08672 emma93780

    Posted

    Hi Emma,I know how you feel,I've been dizzy and lightheaded for 3 months now,at first I got so bad I was sweating,couldn't breathe and passed out, I was so scared that I made myself worse with anxiety. At times I get so dizzy I feel like I will die or end up in hospital but the best thing to do is try stay calm and it doesn't get any worse,I've had a MRI scan,tests done and I'm healthy,they said I have something called benign positional vertigo,i'm under ent and taking stemital pills that help with the dizziness,its so hard coping with it as I'm scared to go out alone as I have two girls youngest is 3,it's hard work being a mum and being ill.I hope you feel better soon,take care Lisa x
    • rita52071
      rita52071 lisa08672

      Posted

      please lisa keep going to drs...Remember I was misdiagnoised......
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi rita,I've got another appointment in 6 weeks time so going to ask to try migraine pills again, I didn't take them long enough, x
    • rita52071
      rita52071 lisa08672

      Posted

      OMG six weeks thats a long time.......sad tried to send out a link but they are checking it out first to make sure there isnt anything on it that is i guess inappropriate.........Im on migraine pills and as far as I understand it ......anyway the ones I am on take weeks to take affect............
    • lisa08672
      lisa08672 rita52071

      Posted

      My ent doctor is meant to be the top one,he's away until after Christmas so I have to wait,I have got a few migraine pills left and might be able to get my gp to give me some more,I was also given beta blockers to take as they are meant to get rid of migraines,have you had them before?x
    • rita52071
      rita52071 lisa08672

      Posted

      Glad to here you have a good dr......yes i take beta blockers too...I take verapamil, Gabapentin and divalproxex sod er....apparently I am on low dosages......But I dont like taking this stuff and how it lets me feel some days.......My insurance covers like 95% of my doctors visit if i want to get checked for vertical heterophia...........at this point it wont cover glasses if I need them and they are a little expensive  depending.........like 400 .....waiting for dr to enroll in my health plan

       

    • rita52071
      rita52071 lisa08672

      Posted

      yes I felt like that  yesterday good day...with some dizziness....did get dizzy..whoozing when I was driving.....today tired.....and yucky.......looked great yesterday...today forget it........dizzy on and off when I turn my head more off,,,,,,,,,,I am ttrying to fiqure out how to get over to the dr thats a little over an hour from me......vertical heterophia.....I even called Michigan....spoke to them for like 20 minutes......all saying I should  get it checked  good news my isurance covers most of it  excluding the glasses......but I think the first ones are free.......just got a little dizzy again..........We all need to hang in there.....Much easier said then done......
  • emma93780
    emma93780

    Posted

    Thank you for all your replies and advice it's just really getting me down, I have had numerous bloods to check certain things, ct scan, seen a neurologist, private ent specialist, had my eyes checked, had physio, having acupuncture this week, having a heart scan and 24hr monitor Friday, seen a maximillo facial surgeon, had a scan on my face and neck, had an impacted wisdom tooth out, tried so many tablets and still they tell me it's anxiety, maybe to an extent it is but it's just been going on too long with no relief, I've had therapy, I do grind & clench my teeth at night and have tmj but I've had that for years, I'm not sure if it's migraine as I do get a lot of headaches to!! But they have looked into this!? I am waiting to see a neurologist again to see if he can recommend anything and have an app with ent again at the end of December so kinda hoping they refer for an mri it's hard not to think it's something more serious, ent thought it might be vestibular neuritis and gave me some ex to do but it's not really worked. I also get really bad pain/pressure at the back of the left side of my head which only goes when I apply pressure to which is really painful some days x
    • rita52071
      rita52071 emma93780

      Posted

      feel so bad for you....but you are not alone....if possible go see a headache pecialist and find an eye doctor that tests for verical heterophia.......regular eye exams dont tests for this........
    • lisa08672
      lisa08672 rita52071

      Posted

      Thank you,I know specsavers offer the test for vertical heterophia,its a 10 minute drive from my apartment so will pop in and ask when I'm in town next.I'm bit better now just tired but it was so scary earlier,how are you feeling today? x
    • rita52071
      rita52071 lisa08672

      Posted

      just look tired ......not too bad but the weather here in New York is rainy...40's....just got dizzy looking up and down at computer........didnt do really anything today  just hung around....tomorrow is going to be like this too with the weather.....I am so glad you are going to get checked for vertical heterophia.......I need to call another number to see how long it takes for the doctor to be approved for the insurance I have.......Dec. 7 have an appointment with the headache doctor......going to talk to her about this too.........
    • lisa08672
      lisa08672 rita52071

      Posted

      Weather here is windy and rainy and cold so staying in keeping warm, my eyes have been better for about a week now but feeling weird again,was hoping I was getting better but its hit me hard again x
    • rita52071
      rita52071 lisa08672

      Posted

      dont rule out...weather can make it worse...........doesnt cause it but can make it worserolleyes
    • rita52071
      rita52071

      Posted

      if you can when you feel not so good try to lay down in a quiet room...helps..........
    • rita52071
      rita52071

      Posted

      Good morning......Its 10:15 am here in New York.....Having coffee slept about 9 hours last night.......Have a good day......cloudy and chilly here.....
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi Rita, hope your having a good day?,I was not well on and off today with weird eyes and off balance so just rested up, its 7.30pm here and just sat down to watch american pickers,I love american shows.both girls are asleep which is early for my 13 year old,normal for my 3 year old so peace and quiet. x
    • rita52071
      rita52071 lisa08672

      Posted

      its 4;17 here  not having a good day....very scary moment driving......I was pulling into a spot foot on brake and  it felt like the car would not stop moving felt like car was going to crash finally got a little relief moned car back pulled into space  felt it coming on again quicly put car in park and I literally jumped out of car wouldnt stop going.....I did go into walmart but was walking leaned over to my right so I wouldnt get dizzy.....still want to cry   trying so hard to find a doctor closer to me for my eyes  no luck.........this was extremely scary today...It was very intensed and powerful....Im ok now  but nervous and not very happysad
    • lisa08672
      lisa08672 rita52071

      Posted

      That must have been so scary,when your eyes go weird how long does it last?well done for getting out and going shopping,its so scary but I try and force myself out daily as I think it pays off,when I just lay there the symptoms ease off but getting up and moving around again gets worse,you have to carry on training your balance by moving around,my eyes seemed better last week a little bit but bad again now x
    • rita52071
      rita52071 lisa08672

      Posted

      Was off balance for like 15 minutes in store........driving a little off until I got home.........Im telling you I was going to scream to the top of my lungs.....If anyone saw me they would of thought I was crazy!!!!!!LOL
    • rita52071
      rita52071 lisa08672

      Posted

      Hi Lisa How are you???  My day wasn't so great......Stress made me eat alot!!!!!  LOL   dizzy
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi rita,my day was also stressful so I started off with an all you can eat breakfast buffet Lol its filled me up all day.I've been OK but eyes keep going weird and I've been quite dizzy today on and off.my daughters have been in bed since 7.30 pm,its now midnight and I can't switch off, watching Christmas movies :-),how are you feeling?do you find it hard to sleep,I'm on stemital so wondering if it's causing insomnia xx

    • rita52071
      rita52071 lisa08672

      Posted

      Yes...was very surprised to hear from you because I know theres a four hour difference in time.......Its 8:08 here............look up that med on computer it will tell you side effects.......There are many nights I cant fall asleep ...it takes me like an hour and a half or more....then I tired in the morning.......My mind is still going because I keep worrying and wondering am I ever going to get better????  and the funny thing is I am tired  just can't sleep........right now I feel good......get sleep  chat tomorrowconfused
    • Gilly_flower
      Gilly_flower rita52071

      Posted

      Hi , have had to have my eyes retested , as they seem to have changed , yet again , got to have blood tests to make sure my sugar levels are ok , still waiting to see ent , was very upset this week to find out they had only just sent my referral of , yet it was the 12th of November they told me they were going to refer me , I'm afraid I didnt mince my words , they are chasing it up now , but I just feel they dont take me serious on how ill this is making me feel , one doctor said , you look well , I said well its not like a broken leg is it , you cant see it , it's all so frustrating , I just want to scream 
    • lisa08672
      lisa08672 rita52071

      Posted

      Hi Rita,how are you?sorry I haven't asked you sooner just been so busy what with Christmas and I'm not well again,I had a few good weeks and now eyes are weird and I'm really dizzy,spaced out and head pressure.take care Lisa xx
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