Do my symptoms sound like fibro???
Posted , 8 users are following.
hi all
ill try and make this quick!
just over a year ago I started to become unwell- little things, pain in my right hip, flu like feelings etc. my gp referred me to a rheumatologist,several blood test, all neg for rheumatoid arthritis. Over the last year my symptom have gotten worse and near on everyday to some extent. At my last rhumy apt he said I could have fibro and to discuss with my gp, I haven't done yet ( this was a couple of months ago) I'm just not sure if my symptoms sound like fibro... So here's a list of all my problems!!
Sharp strapping pains in my head
headaches Maybe once a wk
joint stiffness in wrists, hands, ankles, knees
pains in all joints, & some fingers
pains in chest
muscle pains in legs and forearms
pins and needles in hands and feet
warm sensation in feet
stabbing and sharp pricks tingling feelings
heavy feeling in legs when laying down, it feels like I can't move them. If I walk too far my legs, hips and ankles become painful and difficult to walk.
sudden jolting in brain when trying to fall asleep.
this can happen at anytime, sometimes I feel much worse then others.
I dont feel I have brain fog, I am very forgetful and clumsy
I don't have tender points and I'm not fatigued all the time.
Sorry if if this is long winded, I have felt something is wrong for so long now, no one seems to care or take any notice and it's really starting to get me down. Life has changed so much for me, no longer fit and active, I just want to feel like me again!!
thanks for taking the time to read this
best wishes to everyone 😊
0 likes, 16 replies
archemedes han75
Posted
Doctors all go through many years of training, and specialists even more, in order that they might be able to help cure people's afflictions.
Your very first port of call should be your GP with whom you can discuss this matter and receive a qualified reply.
In my experience guesswork only serves to prolong a problem, when what you should be doing is seeking solutions.
deb97936 han75
Posted
kaz_40 deb97936
Posted
Gizmo1963 han75
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bronwyn97278 Gizmo1963
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Maggers han75
Posted
As fibro is so very individual to all of us it is difficult to tell what the problem is. Although we share similar symptoms Fibro is different for all of us. A diagnosis of fibro is usually only given after everything else has been excluded. It may take years so be prepared for a long haul. I started suffering in the 80s and have only been formally diagnosed about 4 months ago. Don't want to depress you and I can assure you that not many wait as long as I have but I have shared it just to make you aware just how long things can take. In the meantime you could try various things to help. Epsom salts in baths helps with muscle problems and sometimes the tiredness too. I changed my diet and found it helped. No refined sugars and no gluten. Gentle exercise even when you feel you can't has its benefits. I use supplements and hypnotherapy and take no drugs as most seem to have adverse side effects on me. Keeping a positive mental attitude is the only useful thing my rheumatologist said to me before discharging me back to my GP. Good luck in your quest to find out exactly what the problem is.
han75
Posted
I forgot to mention that I also get pain in my upper back. It's along the spine from my neck down. It comes on for a few days then will ease off again. I've had pt a few times and she said other then being stiff the muscles etc felt gd.
I exercise when I'm having a gd day, I do a jazz class and on a gd day can do high impact! On a bad day I've no energy and I'm in pain so either go and go low impact or stay home!
I've also taken a supplement of magnesium citrate.
I have been to the gp several times who says to go see rheumatology and I've had several apt with them. They said to wait and see if a diagnoses becomes more obvious. Then at my last apt I see a different consultant who said to think about fibro.
I have thought it was nerve related for awhile but as it's all so weird and random I never mention everything to doctors. They don't ask to be honest and i feel embarrassed to list everything.
I can't believe how long it can take to get a formal diagnoses, that's the hard part just not knowing what's going on! Telling people I don't feel well or I'm not having a gd day but not being able to explain..
Take care all and wishing you
A good day!
Maggers han75
Posted
bronwyn97278 han75
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katmaha1012 han75
Posted
Definitely speak with your GP, only they can help find answers. It is so frustrating at times, but God is with you and can help ease your suffering. Today I have no energy whatsoever, do I have fibro? Who knows? It's so hard at times, try and relax. Hugs. Xx
kaz_40 han75
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kaz_40 han75
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Maggers han75
Posted
han75
Posted
I have had vit d test the results were - d3 32.5 & d2 <5 i've no idea what it means but i didn't hear back from hospital so assume it's ok!
i wilbe keeping a diary and will make sure i tell gp everything this time.
i've="" no="" idea="" what="" it="" means="" but="" i="" didn't="" hear="" back="" from="" hospital="" so="" assume="" it's="" ok! ="" i="" wilbe="" keeping="" a="" diary="" and="" will="" make="" sure="" i="" tell="" gp="" everything="" this="" time. ="">5 i've no idea what it means but i didn't hear back from hospital so assume it's ok!
i wilbe keeping a diary and will make sure i tell gp everything this time.
>
kaz_40 han75
Posted