Do not get a cystoscopy Done

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Yes I had a cystoscopy done yesterday and I wish now I never had it done now I am still peeing blood and burning when I go the only thing he found was 2 red spots and he had said in his own gut it was not bladder cancer too me I don't believe he knows what he was doing and I sure do not feel comfortable on having him do the next scope another doctor will be taking over from here and he was being hateful toward me cause I told him my lower stomach was bothering me he said there is no infection. And him and the nurse never said this would have after effects of having it done.

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  • Posted

    Dear Patty,

    Sorry to hear that things did not go well for you. From your description I would say "operator skill" was lacking big-time. If he did not report strictures or other unexpected conditions that made the procedure difficult for him to perform, then I would suggest you go and find another doctor, if at all possible.

    I am male, which makes this procedure more challenging to perform, yet I've sailed though them without any bleeding or pain other than an unusual sensation. Oh, and in each and every case I have refused pain killers of any sort. Am I some kind of freak? I don't think so; just look through all the postings under "cystoscopy" and you will see many others with similar stories to tell. We were lucky in finding skilled and caring operators. You, unfortunately, were not!

    I hope you recover soon from your ordeal and not shy away from this valuable investigative tool should it ever become necessary in the future. In the meantime I can only hold your hand in an emotional sense only.

    Hang in there, Patty; they can't put the sun out!

    Warm regards, alan86734.

     

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  • Posted

    Hi Patty - I'm sorry to hear that you have had a bad experience.  Just for future reference, I can tell you about my experience.  I had a male cystoscopy last November to rule out bladder cancer.  I was given a lubricant gel mixed with lidocain in my urethra.  When the scope was inserted, I felt no pain, just a pleasant stretching sensation.  The entire experience was very comfortable, and I had no after effects such as blood or burning.  (My Urologist did mention that these two after-effects were possible, however.)  My doctor used a flexible cystoscope, but I have read that some doctors will try using rigid scopes on women.  My impression is that the flexible scope is more comfortable to experience.  So, for your next procedure, try to discuss with the staff what exactly you can expect, and let them know how you feel, based on your first experience.  I think it is essential that anesthetic gel  is used for a good patient experience.  I am very thankful for my Urologist, as she and her assistant did an excellent job caring for me.  I hope that you can have a similar experience, next time.    

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    • Posted

      Alan, lovely post!

      Are you by any chance interested in books? I have found one titled "Catheters, Slurs, and Pickup Lines: Professional Intimacy in Hospital Nursing" by Lisa C. Ruchti, Temple University Press. My wife managed to order the paper back version through Amazon for somewhere around $20.00, s.h.p. included.

      I am currently organizing (pressuring?) the Dana Medical Library (Burlington, VT) to buy some copies for their shelves. Would you like me to keep you informed of developments?

      Warm regards, alan86734.

       

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    • Posted

      Hello Alan -- Nice to hear from you again - thanks for writing.  I'm reading a book by a Swiss physician, Paul Tournier, who mentioned that intimacy between the physician and his or her patient is actually helpful in healing the patient.  It's the type and degree of a personal relationship that needs to be determined, and controlled, so that the relationship doesn't get out of control and ruin the physician's reputation.  Of course, physicians have to manage hundreds of relationships, while you and I need to work with just a handful of specialists.  With more women entering medical school now than are men, it's not going to be too long where men will need to learn to deal successfully with having a female physician caring for them.  We need to know how to behave properly.  It is very possible that, after having been attended by a very talented and beautiful doctor for several years, that a man will become emotionally attached to his woman physician.  I don't think it can be helped, especially if the patient has had good, effective care from his doctor over the years.  Regarding catheter placement or cystoscope insertion, the male patient experiences a very intimate procedure.  The female caregivers know this, but to them it is part of their job, and they just need to get it done properly to follow protocol.  But, I hear you - the effect on the male patient is quite profound, especially the first time.  

      Best regards - alan12675

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    • Posted

      Hi, Alan. Happy Easter!

      Right on the money! My Fluoroquinolone Toxicity Syndrome, which until now manifested itself only as tendonitis in both wrist, was creeping down to involve my reconstructed left shoulder. This was another ploy of mine taken from the mariner's world. I eventually dislocated my shoulder 27 times, providing an excellent incentive to stay close to hospital help should my resolve flag in any way.

      This all happened in Merry Old England. The time came when there was nothing further I could do so I had no alternative but to sever the tow (another mariner's term).

      I duly presented myself at the Royal National Orthopedic Hospital in London, England where I underwent what is known as a Putti-Platt reconstruction. I was in recovery (darkened room) when a nurse, who had just walked in picked up my chart. In those days medical charts were hung on the foot of the bed. I heard her exclaim, "Oh my God, its Alan!" , then a gentle kiss on my forehead, and she shed tears. Then she vanished into the night. Who was she? I shall never know. This hospital was miles outside the range of my usual stamping ground, so I was left with the question, "Do Angels cry?"

      Anyway here I was, 46 years later writing to the surgeon to thank him for his work. I never suffered even the slightest pain! I guess I am a hopeless romantic at heart.

      I'll do my best to keep you up to date on this one.

      Warm regards, alan86734.

       

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    • Posted

      Hello Alan -- 

      A very happy (and belated) Easter to you, as well!

        

      Wow - this was quite the story.  I wonder if the kiss you received came from someone you knew in high school, that you never realized went into medicine?  At any rate, she certainly knew you.  These are the sort of things that really touch one's heart, and make life so interesting!  

      One can wonder, as one travels through life, exactly how our actions affect others around us.  It appears that you made quite a favorable impression on a young lady, many years ago, and she didn't miss the opportunity to return the favor.  I hope you can find out who she was. 

      Best regards,

      Alan   

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    • Posted

      Thanks for the messages yes it did have wedges in it but now I don't hurt just nervous about having that done again and he did tell me he is checking that there under a microscope too make sure that is not bladder cancer myself I want it done.

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  • Posted

    Patty,

    I am not sure where you live but my biggest concern would be, and I am not a doctor, is that he actually said, in his gut it was not bladder cancer but you had two red spots.  Did he do a biopsy??  I would for get a second opinion and make sure you get a full copy of your medical file from the first doctor.  

    I hope you are feeling better and believe me when I say not all doctors are the same, I found that out the hard way but the doctor that care's for me know is great.

    Debbie

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    • Posted

      He has been a urologist along time now and he did say it looked like when he ran the scope that it had some sort of inflammation too that he really did not think it was bladder cancer and there has to a family history of that and no. one in my family ever had bladder cancer. I can get a second opinion on this it's up too my family doctor on that as well I know I was still peeing blood after he did that and then it stopped the next day.

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    • Posted

      Plus quite a few doctors are getting sued over this for leaving me sit here and still kpet on having blood in my urine stating o your just dehydrated No it is not from that.
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  • Posted

    I did that cystoscopy and biposy today and the doctor told my husband I do not have bladder cancer the only think I got was bleeding from having that done and cramps that is all. And pain medicine was prescribed the entire staff was nice and friendly. He will have my results on either next Tuesday or Wednesday.
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    • Posted

      Hi Patty -- thanks for getting back to us about your experience.  I'm pleased to hear that things went OK for you.  I also have blood in my urine for no apparent reason.  The last check I had with my nephrologist showed a bit less than before, but it's still there.  

      It's also good to hear that your urologist's staff were friendly - that makes a big difference, doesn't it?  I am lucky in that both my urologist and nephrologist staff members are very personable and helpful.  When you go to see a doctor, and you are already upset with concerns about your health, the best thing is to have a nurse to help get you going in your appointment - who is kind and compassionate, and then a doctor who understands.  I'm glad that you had this experience.  

      Best regards,

      Alan 12675

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    • Posted

      yes I am happy I did it though it's over with the staff was great and what ever he did I am not going as much to the bathroom he came out and talked to my husband and yes he did a biposy and there was no bladder cancer there which I thank god there is not he took the 2 red spots off and there was like a inflamed part on there and he said he did not know what that was he had never had any patient who had this before I guess I say it was caused from having a baby and ripping all the up where I urinate at and that did happen with my third child now it's time to get my colonoscopy done so I will probably post on that as well. Thank you all for your advice and your input on how it was for you and your experience I appreciate that.

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    • Posted

      Hi Patty -- 

      Thank you for your update, and I'm glad to hear that you do not have bladder cancer.  Having the two other areas treated apparently has helped.  Having a good urologist can be a wonderful thing!  

      You mentioned colonoscopies - I have had three routine ones done over the years.  I seem to have polyps that are somewhat more likely to develop into cancer than other types - so I have this done more frequently than do people that have no polyps.  The intestinal mucosa above the dentate line does not feel pain, so you should be able to relax, and watch the monitor along with your doctor - I think it's fascinating to see the inside of one's body like this. 

      I'm also happy that you appreciated my input - I really have to give all the credit for my experience to my urologist, who is an excellent doctor, and treats me with such compassion and kindness.  I enjoy telling people about her, as I feel very fortunate and privileged to be her patient.

      Thanks again, and I wish you all the best of health in the future.

      Best regards,

      Alan 12675

      Best regar   

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    • Posted

      I had my colonoscopy done yesterday cause the first time I was not all the way cleaned out and that doctor her dumb nurse was telling me come in and do it anyway. No I am having dizzy spells holding onto things and a slight headache from it they could have said it was cause possible side effects they have to give me something to stop this I can't put up with this today like yesterday now I can't even lay down without getting dizzy I will probably just go too the DR and they can give me something for it then. I am mad about this.

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