Does anyone else have lichen sclerosus on their upper body?
Posted , 9 users are following.
I have suffered from lichen sclerosus for a number of year, I first went to my Dr with a white patch of skin under my left breast, after being referred to dermatologist they also examined my genital area and diagnosed LS . from then on things have just got so much worse. I don't have as much discomfort in that area as a lot of people have, I split and get sore etc but the worst thing for me to deal with is that I have more and more areas appearing all over my upper body, mainly on my shoulders, neck and breast area but also have some on the top of my legs and sides, none of the creams that the dr prescribes help these areas and I feel totally alone and very depressed as nothing seems to help, most of the areas and not painful but do itch when I get hot etc. can any one out there relate to this and please tell me if you have found anything that helps.
0 likes, 16 replies
vicki04
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vicki04
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andrew2527 vicki04
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You replied to my earlier message, thank you. Did you ever find anyone else with LS on their body? I have it on my chest, back, sides, arms and groin/tops of legs. And it seems to be spreading by the week. In the past year I'd say I have gone from a couple of small patches to about 25/30 individual areas of red patches. I have lots of other small patches I am scared are going to develop.
Some patches itch like crazy. GP suggested antihistamines which don't seem to have helped. Protopic and Dermovate haven't helped and I've only recently started moisturising properly as the dermatologist suggested it. Although she is not a great help at all, not seeming to worry at all about how it's spreading.
I'm going to my GP this week to talk to him about depression, as it sure is getting me down.
I hope you are finding some relief, and look forward to hearing if there are any more of us with it on our bodies as well.
All the best
Andrew
silviap vicki04
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andrew2527 silviap
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silviap andrew2527
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andrew2527 silviap
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silviap andrew2527
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an29753 vicki04
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my 1st post here!
I was diagnosed by going to a dermatologist to check a white patch on my lip. He thought it was vitiligo, I insisted on getting a biopsy, thinking it was morphea and the result was LS. I have checked myself "downstairs" and found another white patch... now I am waiting to get a return consultation and start a treatment.
Julia12389 an29753
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Hi there! Was the spot on your facial lip? Just want to make sure as my I was diagnosed with LS 2 years ago (vaginal and anal area), and at that time I was also experiencing weird symptoms in my lip area and under my chin (itch, soreness, some discoloration). The doctor didn't perform a biopsy and told me that it wasn't LS or vitiligo but atopic dermatitis. now 2 years later I'm having the same symptoms all over again..going to see dermatologist in 2 weeks. The doctors I spoke to, two years ago said LS doesn't typically affect the facial area....would be glad to hear back from you! As I want to insist on getting a biopsy.
an29753 Julia12389
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Sorry for the 2 year delay : (
It was on my face lip, my first thought was that it was related to me smoking back then, so it helped me quit! I also have gum retracting on a tooth just behind the area, I am not sure it is related.
After the biopsy that took away most of the patch, I treated with dermovate and it completely went away on the lip, I just do it once a week now to avoid it returning.
On my labia it never went away so I keep using dermovate, but it does not itch, only rarely when I am about to get my period. I started to have some itching on my anus but I cannot see it! So I have used the cream a bit and helped.
Hope you are doing ok with it!
caz08410 an29753
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I had a patch on the back of my knee first, with that strange silvery skin, and then i got lots of little patches all over. I was very stressed at the time and I think that stress could have sparked off my immune system to start it off.
The last thing I would have thought of doing was to check my "sit-upon" as I didnt have any symptoms there, but then, I dont have much itching; mainly soreness. So I dont know if I had white patches there then too.
Steroid cream sorted out my body patches last year and the Clob is now soothing my vulval patches.
I hope the body patches dont return, but I know I can zap them with Clob cream the moment I spot anything.
There must be many more people out there with skin patches which have been dismissed as simple eczema .....
Best wishes for a healthful 2018 to everyone!
jess07913 vicki04
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kay70189 vicki04
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I have had a patch on my bottom it sort of itches then went away. Recently I have a patch under both breasts it isn't itch just feels odd
My fore arms have silvery marks but don't feel anything. If a were a bra it's uncomfortable. So that's a problem.
Really challenging disease you never know what will happen next.
Haven't started dealling with skin on body still trying to sort out problems below. I'm 55 this started with the menopause.
All the best
Kay
eyebtwinkle vicki04
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I had a few patches on my body that didn't really bother me. Then a systemic reaction (according to my dermatologist) to the steroid cream or elidel caused it to suddenly go out of control. I am healthy in the genital area at present by using the borax water and no medications. I am in contant burning and itching misery with the reaction, addiction and withdrawal of the steroid cream but I hear there is a light at the end of the tunnel. Do a Web search for topical steroid addiction and things may start to fall into place and make sense. Good luck.