Does anyone else have lichen sclerosus on their upper body?

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I have suffered from lichen sclerosus for a number of year, I first went to my Dr with a white patch of skin under my left breast, after being referred to dermatologist they also examined my genital area and diagnosed LS . from then on things have just got so much worse. I don't have as much discomfort in that area as a lot of people have, I split and get sore etc but the worst thing for me to deal with is that I have more and more areas appearing all over my upper body, mainly on my shoulders, neck and breast area but also have some on the top of my legs and sides, none of the creams that the dr prescribes help these areas and I feel totally alone and very depressed as nothing seems to help, most of the areas and not painful but do itch when I get hot etc. can any one out there relate to this and please tell me if you have found anything that helps.

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    I know this post is several years old but I am looking for help for my mother. She was diagnosed LS 9 years ago. She has it everywhere. In her face and scalp chest, legs, arms, and back. Hers is so bad she wants to have surgery to reduce her breasts because of the pain and discomfort. Has anyone found any treatments that could help?

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