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Does anyone else with Fibromyalgia get any of these symptoms??

Posted , 111 users are following.

princessemh89
princessemh89

My GP says he's pretty sure I have fibromyalgia after going back and forth to him with different symptoms for almost a year. I now have an appointment at the hospital in early December with a rheumatologist to discuss the symptoms further, have a full examination and hopefully receive a diagnosis.

Over the last few months my symptoms have gotten worse and more diverse and I can barely stand it anymore. I constantly feel tired no matter how much sleep I get and the minute I do anything like make a meal or go shopping I feel exhausted and have to rest. I get what my doctor says is tension headaches all the time and feel as though I am allergic to everything! My nose, ears and throat constantly itch (sometimes unbearably) and and I'm always sneezing. I always feel as though I am about to get a sore throat and ear ache and then it goes away. I have chest pains that feel like I'm having a heart attack and I get stabbing pains that feel as though they are underneath my ribs. My back constantly aches but when I try to sit or lye comfortably I get stabbing pains and can barely sleep in the early hours. My ankles feel as though they are sprained even though I haven't done anything to them. I bruise so easily and the slightest touch feels so painful. Even running a finger over my skin sometimes feels as though I have sunburn or something similar. My arms and hands and legs and feet go numb all the time and sometimes I get what feels like hot pin pricks in them. When I walk sometimes or am lay down I get shooting pains down my legs. My Doctor says I have IBS and I spend all my time either constipated or with diarrhea and horrible stomach cramps.

I feel like I am going insane and I can't cope. I'm quite sure I sound like a hypochondriac but I really do experience these symptoms on a daily basis. Am I alone in this or do other people with Fibromyalgia have these troubles?

I am on anti inflammatory tablets(pregabalin after gabapentin wasn't working) but they barely do anything. How can I live like this for the rest of my life?

I have had many blood tests to rule out any other defficiences etc.

14 likes, 159 replies

159 Replies

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  • princessemh89
    princessemh89

    Posted

    Thank you for answering my post. Why has the doctor prescribed me anti inflammatories? No wonder they aren't working for me. It is horrible living with this and I am desperate for my app with the rheumatologist next week just to get some answers because right now whenever I try to explain to anyone what's wrong with me I get the awful feeling they think I'm jut lazy or some sort of hypochondriac.

    I am glad to hear my symptoms sound familiar to you because others I have tried to get advice from have told me these symptoms are nothing to do with fibromyalgia an yet others have said they are so it is quite confusing.

    • david48006
      david48006 princessemh89

      Posted

      My wife needs all the advice and help she can get, she has all the same stuff she has pain meds, doctors but there has gotta be something more that we can do..

       

  • alphavita
    alphavita

    Posted

    I really relate to what you're saying here. In some ways the worst thing about Fibromyalgia is the vast variety of symptoms. It kind of helps to realise it is a syndrome and therefore frustrating to get advice or treatment as you tend to need input from many different specialists none of whom are relating their 'take' on it to each other.

    This article gives a fairly simple overview and is a good starting point for diet management:

    http://uk.lifestyle.yahoo.com/live-fibromyalgia-m-e-144500828.html

    Self help and a holistic approach helped me make real improvements and gain some quality of life back. Also knowing how to recognise what's happening especially during severe flares and actually 'do' something about it is so much better than feeling overwhelmed and helpless.

  • princessemh89
    princessemh89

    Posted

    Thank you I will read through that info. I am really glad to be able to hear from people who understand.
  • julie477Knit_natter
    julie477Knit_natter

    Posted

    http://chronicfatigue.about.com/od/managingyoursymptoms/a/fibroclothes.htm. This is this best information and advice you will read anywhere, with weekly updates. Using this website has helped me tremendously. One word of caution read a little section each day or it can be overwhelming, I love the advice about clothing applied what I have learnt, changed items of clothing slowly, what a difference. Hope you find it as useful as I have. Hope you have a better day soon ! Xx
  • julie477Knit_natter
    julie477Knit_natter

    Posted

    I have looked at the yahoo link for fibro, the information is incorrect, no inflammation is involved, it is a a problem with the brain and central nervous system, many many research documents to prove this, scans etc also I wonder if this person had their inflammation levels checked by GP . Nowhere does this article quote any doctor input or research or where their information came from..
    • stephanie0808
      stephanie0808 julie477Knit_natter

      Posted

      Research does say fibromyalgia has nothing to do with inflammation , but i definitely need my inflammitory meds, because my legs and feet constantly swell when im on them to long ,my hands swell bad sometimes so bad i worry im going to have to have to jewelry removed, and i know its not all water because i do take water pills and a very low dose because my doctor really thought that's what the swelling was i had so many test done and its really swelling. and they do help with my menstrual issues caused by fibromyalgia and my disc issues caused by fibromyalgia and my planters fasciitis caused by fibromyalgia, so what it is , is that it has nothing to do with fibromyalgia itself, its the problems and dieses that stem off of fibromyalgia that we ne inflammatory meds.
  • alphavita
    alphavita

    Posted

    I have to disagree somewhat with Julie. The entire syndrome is multi faceted and sufferers will experience variable symptoms. I personally have inflammatory pain related problems which anti inflammatory medication did help but the side effects were hideous. Realising that stress is a trigger ( as with any illness) and supporting the immune system makes sense too. I now take no medication at all but I listened to my body and noticed I was less inclined to eat some foods than before. When I came across that kind of anti inflammation diet guess what? Many were on the list.

    Ultimately we are all individual in our manifestation of the illness and it is extremely complex.

    Certainly some major trauma happens to most sufferers I believe which triggers a drastic change in our pain sensitivity levels.

    Chemical imbalance is cited as a factor and there's some fairly unexplored research going on into a notion that we are carrying a viral infection inside the cells so the immune system is constantly fired up trying to eliminate something which can't be dealt with.

    My life was destroyed and I was paralysed with pain in a wheelchair. I too took a path of healing, diet and ditched as much stress inducing factors as I could. I wouldn't say I'll ever be 100% again but I can dance, take long walks and do all sorts of things I thought I'd never do again. I still have relapses and need to sleep a lot when I get so much as a cold and my muscles and feet stiffen up and hurt. Any kind of virus or infection brings major symptoms back but oh boy is my life so much better than it used to be.

    • h_g
      h_g alphavita

      Posted

      To all,

      Have to agree stress is a major cause of all sickness, try and checkout night shade vegetables and stay away from them, try using a nutri bullet and have smoothies with raw vegetables add tumeric, ginger, lemon, cinnamon in the smoothie some swear that the cinnamon and certain vegies mixed together have helped them with artheritis, nothing like trying, I have just started using raw vegies and making smoothies, and have noticed that I have more energy, if I have this in the night it keeps me awake so do this in the mornig empty stomach and you dont feel like havig coffee or even breakfast as it is filling or during the day, I don have fibromylagia, but has a friend who, does and also another who had artheritis and who mentioned this has helped, I have other issues like sinus hayfever and feel this has improved, if you cannot afford a nutri bullet just belnd it with water add honey (manuka) anything above 5 the higher it is the better, I also add very well crusheshed, almond, linseed, and sunflower mix into the drink  as wellas start taking krill oil, and let me know how you feel, see a doctor but continue to change your diet, it helps, eating white meat is beter than red,  Good luck, and hope you all start feelig the differece

      ps. I dont have a nutir bullet but I use my Ninja blender theis does not give a smooth consistency ,but I just take it like that

  • princessemh89
    princessemh89

    Posted

    Thank you 'alphavita'. I realise a lot of research on my part is needed to try and understand this illness and the different ways I can deal with it. I am glad to hear you have regained some quality of life back and i hope to do the same at some point in the future. Thanks for sharing xx
  • julie477Knit_natter
    julie477Knit_natter

    Posted

    Princessemh89 when my last post is approved for the link you will have all the latest info and help you could ever want. How to cope, how to explain and talk to your GP, etc all the information is gathered into one easy place. All the information can be be verified and linked to research, which is the safest way of self help. I do agree that diet and supplements help especially omega 3, b12, magnesium maleate, vitamin c. Also whaet can cause a huge problem. I also agree that aspartame causes damage. What also helps is tonic water for restless legs. My best friend is my hot water bottle, forget wheat bags they do not hold the heat like a hot water bottle. I use it on my most painful spots of the day. Fibromyalgia is an illness of endurance and personal determination. First I went through denial, I couldn't accept this was happening to me, then I grieved for the life I once had, then acceptance not resignation, acceptance because I had to alter my life control the pain and not let it control me. I hope you feel better soon and take each day as it comes , learning new coping strategies in little steps so that you are mot overwhelmed, enjoy reading and learning and I hope you get along well xx
    • aatif18227
      aatif18227 julie477Knit_natter

      Posted

      Hey julie.

      I need your help. I am suffering from the same situation mentioned by princess. I have these symptoms since 2 year. I am taking b12 dose since 1 year twice a week. Initially it makes me feel better but now b12 dose doest work. I feel like i m tired with life. Everything is finished. No friend no social life nothing.

      My body pain like hell. Eyes have dark circles since 2 years. Continuous pain in legs. When i woke up i m extremely tired. Back pain, when brain gets stuck due to sleep. My eyes gets close while driving due to sleep..etc etc

      Help me out to get rid from this problem, i want to enjoy my life like everyone do.

      Waiting for your response

  • princessemh89
    princessemh89

    Posted

    I will ignore that last reply about cannabis!

    Thank you julie477knitnatter. I will definitely investigate all the info people have put before me.

  • Emis_Moderator
    Emis_Moderator

    Posted

    I have deleted the post about cannabis and deactivated that user.

    Regards,

    Alan

    Emis Moderator

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