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Does anyone else with Fibromyalgia get any of these symptoms??

Posted , 111 users are following.

princessemh89
princessemh89

My GP says he's pretty sure I have fibromyalgia after going back and forth to him with different symptoms for almost a year. I now have an appointment at the hospital in early December with a rheumatologist to discuss the symptoms further, have a full examination and hopefully receive a diagnosis.

Over the last few months my symptoms have gotten worse and more diverse and I can barely stand it anymore. I constantly feel tired no matter how much sleep I get and the minute I do anything like make a meal or go shopping I feel exhausted and have to rest. I get what my doctor says is tension headaches all the time and feel as though I am allergic to everything! My nose, ears and throat constantly itch (sometimes unbearably) and and I'm always sneezing. I always feel as though I am about to get a sore throat and ear ache and then it goes away. I have chest pains that feel like I'm having a heart attack and I get stabbing pains that feel as though they are underneath my ribs. My back constantly aches but when I try to sit or lye comfortably I get stabbing pains and can barely sleep in the early hours. My ankles feel as though they are sprained even though I haven't done anything to them. I bruise so easily and the slightest touch feels so painful. Even running a finger over my skin sometimes feels as though I have sunburn or something similar. My arms and hands and legs and feet go numb all the time and sometimes I get what feels like hot pin pricks in them. When I walk sometimes or am lay down I get shooting pains down my legs. My Doctor says I have IBS and I spend all my time either constipated or with diarrhea and horrible stomach cramps.

I feel like I am going insane and I can't cope. I'm quite sure I sound like a hypochondriac but I really do experience these symptoms on a daily basis. Am I alone in this or do other people with Fibromyalgia have these troubles?

I am on anti inflammatory tablets(pregabalin after gabapentin wasn't working) but they barely do anything. How can I live like this for the rest of my life?

I have had many blood tests to rule out any other defficiences etc.

14 likes, 159 replies

159 Replies

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  • alphavita
    alphavita

    Posted

    Julie: Thanks for those links.

    I've seen the info on the first link before but the news that some proper research is going ahead in UK at last is really encouraging and I must say the comments post in that link by Mel is a superb piece of summing up of what we all have to deal with regarding other people's perceptions of us.

    Princess. I'm glad my input has helped a little. I am a writer so when Yahoo asked me to write about Fibro' I jumped at it because when I was hit by this condition I didn't see how I could ever have a life again. The fear alone is overwhelming.

    At that time the only people posting anything much about it were entirely negative. I don't think I found a single success story and I was desperate to know if anyone had made a reasonable recovery. I have and took the opportunity to get that out there.

    People often don't realise writers never get a free hand to write for publication which is frustrating sometimes, especially when you'd like to cover more aspects. We are limited to a strict word count and have to be very careful about the legal aspects of giving any advice or making claims.

    The only way I was allowed to write the piece was from an entirely personal perspective ( which it is) in 650 words maximum ( I could write a novel on the subject trust me) and I was directed firmly to keep it pink and fluffy ( rolls eyes) which was a tall order.

    Julie is spot on that the piece is a brief overview with no science based research links ( word count restriction) but hopefully it could help some sufferers find a way forward by pointing them in the right direction.

  • alphavita
    alphavita

    Posted

    Just a quick comment regarding the deleted post: I didn't see it and if it really was advising using the drug I'd say that would be the last thing we need!

    However they 'may' have been talking about Hemp oil which is sometimes mistakenly called Cannabis oil which is in fact a perfume ingredient and totally synthetic, merely a smell. Then going by the same name, there's the real extract from the plant which is of course illegal. People can and do get muddled between the three.

    Hemp oil is a harmless organic health supplement with high useful levels of Omega 3. Nothing bad about that but it's not cheap. I stick with fish oils myself.

  • elaine85769
    elaine85769

    Posted

    Hello,

    I have had "FIBROMY"for over 6/7 years.And I don't think anything is off limits with this condition,some days rare a lot worse than others.When I feel completely "GOOD" I get worried if I am normal,smiles.

    I just finish a 2/month bout with my knees and not sure if it was related or just age related.

    My best remedy I find is EPSOM SALT baths,and creams I fine and others offer me to try.

    For your questions,I have had them all in one one way or another and you should keep your appt. to get

    relief for what you are dealing with-new products may be avali.I don't like taking meds for mine I rely on me

    until it gets unbearable(as it sometimes does)and my oils,baths etc...........

  • julie477Knit_natter
    julie477Knit_natter

    Posted

    Epsom salt is magnesium, but Himalayan pink salt contains more magnesium and other trace elements that help, it is available from west lab, I buy mine off the Internet a whole sack at a time, 250 mg in a bath of body temp water for no longer than 20 minutes, i3 times a week before bed.
  • princessemh89
    princessemh89

    Posted

    Well today was my rheumatology appt and after a long discussion going over my symptoms and some painful prodding and poking he told me there is no doubt about it, I definitely have fibromyalgia! Surprise surprise. Although I am grateful to have a diagnosis because I know for some people it is very difficult to get one. So now I have to wait for my doctor to receive word and then I have been instructed to go see him and get to amitriptyline. Anyone have any experience with that?? He wants me on it to get me into a better sleep cycle....
    • elizabeth59941
      elizabeth59941 princessemh89

      Posted

      Hiya hun iv had fibromyalgia now for ten years and suffer with the most horrible pain im always getting different infections and never seem to be away fron docters im on antidepressons and can never seem to pick myself up you always waiting for something to go wrong at the moment im in constant fear and anxious about everything no matter how small i just dont think there is enough help out there for suffers liz
    • charlene6774
      charlene6774 princessemh89

      Posted

      Amitriptyline didn't do anything for me, neither did gabapentin. I wish you luck. I have had fibro for 13 years and Lyrica and Savella twice a day 50mg of both morning and night. 
  • julie477Knit_natter
    julie477Knit_natter

    Posted

    I'm glad you finally have diagnosis, now you can move forward, Personally I don't like it. My sister takes gabapentin. I was prescribed nefopam and clonazepam by the late prof davies ( he wasrheumatologist from guys hospital London,, expert in fibromyalgia sadly he passed away in May) I also take paracetamol. You can only try it and see if it works for you
  • elaine85769
    elaine85769

    Posted

    Hello,

    Happy to hear you have a diagnosis,as well.Living with Fibromy.is a lot easier than living with other diseases.

    Its kinda like you know what to do,how long to do and when to do things according to your "body"that will talk

    to you for what is bothering you the most on any given day-time.

    I look forward mostly to know attacks in one area or another- you must monitor Computer Use,if not a day or 2

    later you will wonder why your arms/elbows hurt etc....

  • princessemh89
    princessemh89

    Posted

    Guys...I have had this "virus" I caught off my friend 2 weeks ago. Hers went after 3/4 days. 2 weeks later I still have it as well as this awful cough. Does anyone else find that mild illnesses last a lot longer for them?? I honestly felt so ill last night that I called my mother in tears. Still whimpering, I made a doctors app for today. Everything hurt so much and I could barely breath without excruciating pain. I actually considered going to the hospital it was that bad. I just wondered, is this something I should put down to the fibro??
    • igazilolli
      igazilolli princessemh89

      Posted

      Yes it is definately.. i experience more severe pain and extreme weakness all over,when i have flu or other viral infection i went to ER a few times because of the pain, but no one was able to help  
    • anne90395
      anne90395 princessemh89

      Posted

      Hi,

      Only thro talking to other people have i realised that those with Fibro suffer more and last longer with other illnesses.

      Take care, Anne

    • snotty
      snotty anne90395

      Posted

      I agree with pain and sickness lasting longer it also doesn't help if you have a low immune system I've found out I have had a low immune since I nearly died from my skin in 2011.

      Every small sickness big sickness all becomes more severe and long lasting with fibro. One of the major things I hate about having the fog though is how many appts I miss because I can't remember when I made them for or where I wrote down the appts. If the Drs or specialists don't text me I'm ringing places left right and centre to find out when the appts are or if I've missed it and do I need to make another. Do others get fustrated by this?

  • meesh202
    meesh202

    Posted

    Hi all, after being given the diagnosis for Fibro in October I was given amitriptyline too. After discussing the symptoms with my mum I think i have had this for at least two years. I read an article by a doctor who had this and she found that food also had an effect, citrus fruits, berries, potatoes amongst many other things. I have since found that oranges do not help, nor the cold weather. I was wondering if any of you had been offered B12 injections? I have had my first one and it helped with my energy and fatigue tremendously. I can highly recommend it.
  • Terry919
    Terry919

    Posted

    Hi There

    I have was told I had Fibromyalgia by a rheumatologist last March after a GP said I had it the year before.

    I get very down with it....I think most people do from what I have read about the condition.

    I have aching, a stabbing pain in my shoulders, tops of arms, I feel sometimes as though I feel off balance!

    sometimes, I feel like as though my throat is aching and closing up..... I get chest pain, and a heavy type feeling as though I am having a heart attack... with feelings like am not here and can't coordinate properly.

    I have ended up in A&E about 5 times because I thought I was having a heart attack... but after having

    ECGs blood tests, Chest Xrays, MRI Scans with Brain Scans.... they say that I OK!! but of course even

    though I know I have Fibromyalgia....it still freaks you out when I have these panic attack type episodes

    it is a nightmare this condition.... I even when to a Sleep Apnoea unit within the hospital, and they told me

    that I do have mild Sleep Apnoea as I had to wear a breathing oxygen monitor on each night for 2 nights

    and they also said that this also happens with people with Fibromyalgia and a lot of people with Fibromyalgia don't even know they have this..... I know exactly what you are going through with all your symptoms,

    it is just hell sometimes... so rest assure you are not alonebiggrin

    • kelly84195
      kelly84195 Terry919

      Posted

      Hi could I ask do you get the pain and heaviness in your chest everyday I get a feeling like a air bubble is s trapped behind my sternum
    • laura33655
      laura33655 Terry919

      Posted

      Hello. I realize that this post was written 5 years ago, but figured it cannot hurt to try. I have all the symptoms you mentioned, and more. The last week or so has been the worst for me. The worry, and panic attacks because I am worried over every single thing that I feel that is off.

      I don't know what to do, or where to turn. I work a full time office job, so sitting at this desk every day I think is truly not good for me. I feel like it is contributing to the pain that my neck, and shoulders feels, and today my hands and arms hurt so bad. I hope that you are doing well, and after 5 years possibly found a way to manage symptoms. Thanks for listening,

    • laura33655
      laura33655 Terry919

      Posted

      Hello. I realize that this post was written 5 years ago, but figured it cannot hurt to try. I have all the symptoms you mentioned, and more. The last week or so has been the worst for me. The worry, and panic attacks because I am worried over every single thing that I feel that is off.

      I don't know what to do, or where to turn. I work a full time office job, so sitting at this desk every day I think is truly not good for me. I feel like it is contributing to the pain that my neck, and shoulders feels, and today my hands and arms hurt so bad. I hope that you are doing well, and after 5 years possibly found a way to manage symptoms. Thanks for listening,

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