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Does anyone else with Fibromyalgia get any of these symptoms??

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princessemh89
princessemh89

My GP says he's pretty sure I have fibromyalgia after going back and forth to him with different symptoms for almost a year. I now have an appointment at the hospital in early December with a rheumatologist to discuss the symptoms further, have a full examination and hopefully receive a diagnosis.

Over the last few months my symptoms have gotten worse and more diverse and I can barely stand it anymore. I constantly feel tired no matter how much sleep I get and the minute I do anything like make a meal or go shopping I feel exhausted and have to rest. I get what my doctor says is tension headaches all the time and feel as though I am allergic to everything! My nose, ears and throat constantly itch (sometimes unbearably) and and I'm always sneezing. I always feel as though I am about to get a sore throat and ear ache and then it goes away. I have chest pains that feel like I'm having a heart attack and I get stabbing pains that feel as though they are underneath my ribs. My back constantly aches but when I try to sit or lye comfortably I get stabbing pains and can barely sleep in the early hours. My ankles feel as though they are sprained even though I haven't done anything to them. I bruise so easily and the slightest touch feels so painful. Even running a finger over my skin sometimes feels as though I have sunburn or something similar. My arms and hands and legs and feet go numb all the time and sometimes I get what feels like hot pin pricks in them. When I walk sometimes or am lay down I get shooting pains down my legs. My Doctor says I have IBS and I spend all my time either constipated or with diarrhea and horrible stomach cramps.

I feel like I am going insane and I can't cope. I'm quite sure I sound like a hypochondriac but I really do experience these symptoms on a daily basis. Am I alone in this or do other people with Fibromyalgia have these troubles?

I am on anti inflammatory tablets(pregabalin after gabapentin wasn't working) but they barely do anything. How can I live like this for the rest of my life?

I have had many blood tests to rule out any other defficiences etc.

14 likes, 159 replies

159 Replies

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  • dukeofankh
    dukeofankh

    Posted

    Hi princessemh89

    I have FM and as with other the symptoms vary between people and day to day. I note your description of chest pain and whilst I don't have it I have known other FM sufferers with a condition called costochondritis which is inflammation of the ribs generally on the left and I am reliable told it feels like a baby stretching when your pregnant. This is usually self limiting but can last much longer than the "6mths" norm. Referrals to the pain clinic and/or the pain management centers of your local hospital may help control the pain. Best of luck dukeofankh

  • jan55189
    jan55189

    Posted

    I was told 4yrs ago that I had Fibromyalgia, & last year was told I have Polymyalgia. have found Gabapentin Does'nt help at all for the Fibro , so was put on other medication & none have helped at all. I'm on Prednisolone for the Polymyalgia, started on 30mg & got down to 5mg as I became Diabetic through being on such a high dose. Had a bad bout of Polymyalgia last week due to stress of having a new bath fitted. I haven't worked for 4yrs as the stress of my job (director of 3 business's ) just got to me, I was ill in bed for 3mths backwards & forwards to hospital , saw 3 consultants before I was told what I had. These illnesses have ruined my life,used to be very sporty & active working 24/7 & now I'm housebound, just wish I could find something to help me with the fibro. Thinking of taking Q10 vits, was told Cherry vits were good for Fibro so have been taking them, but don't think there doing any good. I started last March with a weird pain in my toes, had allsorts of tests done, now my feet are numb from the ball of my foot to toes, but I get really bad pins & needles & shooting pains, now its starting in my hands & the tips of my fingers are numb & pins & needles & terrified that my hands are going to go numb. Went to see my Rhumi 2mths ago loads of tests done & they don't know what the problem is, so I'm pushing now to see a Neureoligist. Does anyboby else have these problems as I was hoping it was a Fibro or Poly problem but my Rhumi says its not, so now I'm worried about what else is wrong ! Any info that anybody could give ? THANKS!!!!!!!!!!! XX
    • Pollybambi
      Pollybambi jan55189

      Posted

      I was diagnosed with polymyalgia 20 years ago when I was fifteen after a horrible car accident where I broke my back in two places I had to learn how to walk again and I thought I was in the clear but then the symptoms started just like yours and I felt like my life was over I am currently 35 I've been diagnosed with MS then that diagnosis was changed to NMO which most people do not know what that is basically my immune system is attacking me and it has paralyzed my right leg I am losing my sight along with my hearing and other motor functions I am constantly at the doctors and they are still finding new things wrong with me a year ago I was hospitalized twice and now I am permanently in a wheelchair. I have all of the symptoms that you have. for many years I was told basically that I'm crazy and they couldn't find anything don't give up continue being your own advocate and find the answers I hope that you soon find something because not knowing and feeling like you're crazy is one of the worst possibilities out there when you know that there's something wrong with your body but the doctors who we rely on can't find it you need to keep digging and making them also, making them dig deeper and find out what is wrong because you know your body you know that you have these symptoms you know that they're not in your mind and don't ever let anyone tell you that and make them be better Dr's than what they are giving you right now, before your life is truly over, if the many doctors that I saw over the years would have fought for me and found my diagnosis I would not be in a wheelchair today if the doctors would have acted and found what was wrong my life would have been different I'm in this wheelchair because the doctors did not give me proper treatment at the proper time so do not ever quit fighting making them be accountable making them be the doctors there supposed to be!!!!!!
  • elaine85769
    elaine85769

    Posted

    I have never heard of "POLYMYALGIA" what is it and the symptoms?Is akin to Fibro?
  • geri48283
    geri48283

    Posted

    I just found out today i had fybromyalgia ( or whatever you call it) and I hate taking pills! do i need to take pills? I walk 2 miles every single day! I am extremely active, but notice i am always tired, ,and already have bloating problems without lyrica, that's all i need is to double up on the bloat! really. so do i NEED to take medications? , I only noticed two symptoms right now always tired all of a sudden, andmy hands have artheritus and i get injections, all other symptoms of fybo I do not have, help me out here.HATE taking pills.!
  • moyra94678
    moyra94678

    Posted

    Hi Terry 919,

    It's 4.45 am and tonight has been a bad one,woke up after one hour of sleep gasping for air,this is only recently that I have sleep apnoea.

    Your email mirrors much of my symptoms.I have been to A&E too much over the years,thought I was having a heart attack,but after tests this was not the case.

    I also have jaw problems and can only open my mouth a small amount,as though I have lock jaw,the Dental Hospital put it down to night grinding of my teeth.

    Sometimes when I write on the computer my words come out backwards, and I have to correct so much after slowly going over it again,as I have with this email.

    I had to give up my work after 35 years as an air hostess,luckily the airline paid for all the specialists,but it still took 3 years for full diagnosis,that was 15 years ago.

    I am 63 years old now,and sadly have to say it seems to get worse with age, the normal ageing process adds to the Fibromyalgia.I had a hip replacement 3 years ago and it took 2 years to recover!

    It is my first time writing about my Fibro and now would like to join a local group and will be looking to see if there is one near me.My family do not understand my illness and think I am a depressive hypochondriac.I would like to meet other sufferers.I can go months being nearly normal,but then something small just triggers it off and for a couple of weeks I am hurting so much, my eyesight is affected very much when I get an "attack",everything become blurry.But it is clear the rest of the time in the good months.

    Lots of cashmere hugs to everyone.

    Moyra.

    I found using satin sheets helped me,much easier to turn over when restless in bed.

    • barbara14024
      barbara14024 moyra94678

      Posted

      Bless you for sharing. I am now a young 71 but in dreadful pain more so of late. Yes eyes go blurry sweat and smells odd when I can get sleep. Always an hour then awake inspite of 10 mgs of Endep. Had Fibro for over 30 years and bouts come and go . Now have foot pain in one foot even sore to touch and I walk when possible as I feel we must.do something to keep fit. Like you I have always been active had also worked for the airlines and retired at 65. Have spent athousands over the years on help now waiting on Dr Grundy to send me something for the fatigue and loss of energy. He has a web site in the US and know he has helped many. My chest pains thinking yes monor heart attacks but no even sharp pain.in left breast quite often But seeked help and a darling nurse told me it was the FM as it affects the nerve endings. All you have described plus have many blood red pin points all over my upper body and arms whenever I have a bout and these temps. Lots of Lung infections and feel I cant breathe as chest muscles inner and outer costal feel like they seize up and I get a choking feeling. Always at Specialist getting illnesses ruled out.

      Feel as if I have had a steam roller run over me.

      A friend said I need to get my seratonin up and endorphins and best way is orgasmic sex. No Dr has told me to be sexually happy maybe worth looking into tried everything else haha. But at 71 will be just me involved.. Too many of us suffer in silence as I was told often it was all in my head or I was looking for sympathy. Few ftiends or ex husband understood. Mother had it along with RA I have been tested but have now osteo arthritis. Take magnesium bathed in epsom salts, take VitD C also Zince some boron Tumeric cucurim for pain. And also wee a lot when I am having a bout anyone else notice this Guess its the nerves to or from the bladder. IBS on Fodmaps tried elimination of foods. Guafenison helped. Difficult and expensive regime. Laughter helps being busy as much as possible helping others . Very gentle massage and yes a B12 but my Dr says I dont need it but I will find a Dr to give me the injection or script.

      You have suffered so much physical and emotional pain as we are sensitive people so I am learning. Stress is bad for us and sadness.

      Best with your search for relief..

      Love and yes cashmere hugs other hurt ouch!

      Barbara oh sorry for any typos.

  • princessemh89
    princessemh89

    Posted

    jan55189

    Mine is probably not as severe as yours but I too get numbness in the arms, hands, feet and legs as well as pins and needles and shooting pains but I also get burning on the souls of my feet. I assumed it was due to the Fibro but maybe not? I am thinking poss MS? My uncle has MS and that is one of the first signs - numbness in the limbs and shaking hands apparently although I don't experience the shaking - do you?.

    I would push to see a Neurologist if I were you and let us know how you get on. xx

  • terig
    terig

    Posted

    hello princess...i have just joined this site...i was diagnosed in 2000 with

    fibro...and in 2006 sarcoidosis....i have been walking with a waker since

    this time last year (2013) i have fasciculations/twitches from tongue to my left wrist and right leg...just started to get them in my neck and throat....i am currently being investigated for MS but they say more than likely its still the fibromyalgia...i feel your frustration...no one told me 13 yrs ago it could cause such debilitation ! i refused to believe it and has subsequently had any number of grueling tests...but to no avail i think i have to succumb to their conclusions...fibromyalgia with myofascial pain syndrome...really just means extreme fibro....good luck to you and all of us...tg

  • andrea43829
    andrea43829 princessemh89

    Posted

    Hello, I pretty much have all of the same symptoms but, I have migraines along with the other types of headaches. I can have 4 different types of headaches in one day, all leading up to a migraine.

      My GP tells me try not to let it take over, how do you do that, when you are unable to do the things you are used to on a daily basis. I'm sorry anyone has to go through this.                          

     

    • vickylou81
      vickylou81 andrea43829

      Posted

      Me too and now I have started to get blurry vision and double vision with the migraines as well as numbness  - I have been told it is migraine aura. I have a headache every dy and take pain killer for it every day.
    • bobsgirlz
      bobsgirlz vickylou81

      Posted

      i also get the blurry vision and migraines as well as other types of hedaches all day long. Just had a CAT scan last night so im waiting on the results as my left side brain is not usually affected by migraines. Ive been almost three weeks with a left side and right side migraine.  My fibro is really bad right now as i have just aquired a cold and im aching terrible all over . ugh 
  • hugh07153
    hugh07153 princessemh89

    Posted

    hi i have just joined this can you read my post called do i have fibromyalgia syndrome and see if you have similar issues, any adive or info would be very helpful kind regards
  • Sezlew
    Sezlew princessemh89

    Posted

    Hi I was diagnosed with fibro 2 years ago and today diagnosed with costochondritis the chest pain is severe today and I broke down in tears with my gp she sent me for an ECG which was normal and a chest X-ray which I've to wait 5 days for the result to b sent over it really does feel like ur having a heart attack with a stabbing pain what feels like it's goin thru ur heart it's actually the chest wall and cartilages that r inflamed I get the bad migraines aswell the pain is so bad sometimes I do hope all you fibro sufferers can relate to this 
    • princessemh89
      princessemh89 Sezlew

      Posted

      I keep getting these heart attack like pains in the chest. It feels like you are being stabbed in the heart and can't breathe. I'm glad I'm not the only one to exoerience this! It can be quite frightening
    • bobsgirlz
      bobsgirlz Sezlew

      Posted

      YES ! I can totally relate to the chest pain, i also get collarbone pain that nearly brings me to my knees . it just comes on at the cartillage attachements spots . I asked my doc but she had no idea , i have not been injured either 
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