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Does anyone else with Fibromyalgia get any of these symptoms??

Posted , 111 users are following.

princessemh89
princessemh89

My GP says he's pretty sure I have fibromyalgia after going back and forth to him with different symptoms for almost a year. I now have an appointment at the hospital in early December with a rheumatologist to discuss the symptoms further, have a full examination and hopefully receive a diagnosis.

Over the last few months my symptoms have gotten worse and more diverse and I can barely stand it anymore. I constantly feel tired no matter how much sleep I get and the minute I do anything like make a meal or go shopping I feel exhausted and have to rest. I get what my doctor says is tension headaches all the time and feel as though I am allergic to everything! My nose, ears and throat constantly itch (sometimes unbearably) and and I'm always sneezing. I always feel as though I am about to get a sore throat and ear ache and then it goes away. I have chest pains that feel like I'm having a heart attack and I get stabbing pains that feel as though they are underneath my ribs. My back constantly aches but when I try to sit or lye comfortably I get stabbing pains and can barely sleep in the early hours. My ankles feel as though they are sprained even though I haven't done anything to them. I bruise so easily and the slightest touch feels so painful. Even running a finger over my skin sometimes feels as though I have sunburn or something similar. My arms and hands and legs and feet go numb all the time and sometimes I get what feels like hot pin pricks in them. When I walk sometimes or am lay down I get shooting pains down my legs. My Doctor says I have IBS and I spend all my time either constipated or with diarrhea and horrible stomach cramps.

I feel like I am going insane and I can't cope. I'm quite sure I sound like a hypochondriac but I really do experience these symptoms on a daily basis. Am I alone in this or do other people with Fibromyalgia have these troubles?

I am on anti inflammatory tablets(pregabalin after gabapentin wasn't working) but they barely do anything. How can I live like this for the rest of my life?

I have had many blood tests to rule out any other defficiences etc.

14 likes, 159 replies

159 Replies

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  • bluesman
    bluesman princessemh89

    Posted

    Oh! I forgot to mention. Epsom salts baths for the pain. Epsom Salts is magnesium sulphate and is absorbed through the skin. A cup of Epsom Salts (available in a 25kg bag on Ebay for around £20) in a hot bath at night will ease pain and assist sleep.
  • jenifer59179
    jenifer59179 princessemh89

    Posted

    Hello there, I wonder if you got a diagnosis and how your condition is now? I too suffer many similiar symptoms and would be interested in how you got on.    

     

  • mandy12133
    mandy12133 princessemh89

    Posted

    Hi , this sounds just like me ive just been diagnosedso looking for advice . Ialso get very itchy nose and itching at the top of my arms !! Went bowling and swimming yesterday but today in total agony im onlyv45 and want to live my life nit be in constant pain !! Due to go to dr to stsrt meds not dure what yet though and going on a fibromyalgia course at bath mineral hospital , then some physio. Im pleased to b diagnosed but not sure tge pain will ever stop , already on antidepressants have been for years so have that side covered, but struggling with my job as a housekeeper at center parcs , so hoping dome meds will gelp me cope !! Heres hoping mandy
  • lyn45943
    lyn45943 princessemh89

    Posted

    Hi there.

    I know this post is from a year ago but just wondered how things are now and what you did. i am getting lots of the symptoms that you descrbed here and the chest pains are really scaring me. Any help would be really appreciated

  • linda90335
    linda90335 princessemh89

    Posted

    Hello Princessemh89 l can assure you, you are not insane and your pain is real. So sorry to hear you are in a lot of torment with pain. I too have fibromyalgia I have been given morphing to help with the pain, but like you said everything we try stops working after a while.the reality of Fibromyalgia I was told, there is nothing the nhs or anyone can do to resolve this. I was told by a lovely pain nurse who almost cried when she said there is nothing no-one can do and somehow we have to learn how to manage the pain and live with it. If at anytime you would like a listening hear please know I am here. 

    Take care

    linda

  • sharon441
    sharon441 princessemh89

    Posted

    Hi princess i have everything i have and more i feel your pain and feel very teary as i know what you are going through. people look at me and say i look weel, I HATE IT SO MUCH!!  I am in constant pain and feel like no one understands what i am going through besides those who suffer from it. I have polyalgia rheumatica, Fybromyalgia De' quavains and Joint hyper mobility syndrome. My joints come out all the time and its so painful. My wrists are so weak i need 2 hands to do simple lifting tasks. My memory suffers terribly, especially during conversation. I have been hounded by the job center to come to interviews for work. When are these people going to take us seriously. The government needs to highlight our illness more and educate those people out there. 

    Do you have constant ear and throat pains and pains in your jaw. 

    I had an MRI and i have been told there are legions on my brain.

    Speaking to ppl like your self makes me know im not alone.

    • bobsgirlz
      bobsgirlz sharon441

      Posted

      have you looked into ehlers danlos syndrome ? with the joint hypermobility i wonder if they have checked into that ? just a thought 
  • sian77255
    sian77255 princessemh89

    Posted

    I suffer a lot with allergic reactions as a result of fibro (never had them until it all started) ,if someone is cooking something thats a trigger to me, thats it my nose is running, eyes itching face sweling, its awful. But i also have allergic reactions to foods and get feverish along with lots of other things. My Dr told me to take piriton or the supermarket equivilant and they generally help me a lot. Everyones different though. 
  • Hollymayshipton
    Hollymayshipton princessemh89

    Posted

    You sound exactly like me, I went to my doctor a ridiculous amount of times until my rhumatologist diagnosed me with fibro. I get all of the symptoms that you have described and have bad health anxiety which makes everything worse because I always think I am dying of a terrible illness, but it always turns out to be my fibro playing havock. Inflammatory medicine and painkillers do nothing to help me but i have found a combination of sertraline and ametriptaline help me rationalise things and sleep better, but of cause this can vary from person to person. What else has helped is coming on here and taking to people who are going through the same things as you, it really puts my mind at ease so you have done well to take the step to write on here. There are loads of people with really good advice and experience on here, if I were you I would ask to be referred to a rhumetologist as they specialise in fibro and can help eliviate your symptoms. Try and stay positive also, which I know can be extrememly hard at times !! best of luck with your diagnosis smile Holly
  • barbara93101
    barbara93101 princessemh89

    Posted

    I have the symptoms that you have shooting pains down the legs and constipation. Stomach aches. I was taking Aleve but doesn't seem to work. I have headaches almost every single day. My job is starting to suffer cause again I had to call off today.was so sore could hardly move,

    . no your not going insane and your not a hypochondriac. I take it day by day. A lot of people don't understand what we go through. My job is so physical don't know how long I can do it. I'm only 51. My advice to you is take it day by day. Sometimes easy exercise helps.. A hot shower helps tremendously. But your not alone.. fibromyalgia is a very painful disease. Some days when it's raining I feel like I got hit by a truck. You probably feel Luke you can't cope but if you can do it one day at a time like I started (and I can't stand pain!) you'll be ok. I would love to talk further with you about this.Please contact me

    • megan1111
      megan1111 barbara93101

      Posted

      Hi Barbarasmile. Were you diagnosed with fibromyalgia or are you still looking for help? I have an idea if you are interestedsmile
  • HOTpicks99
    HOTpicks99 princessemh89

    Posted

    Youare not alone i started having terrible pains a few years ago the doctor at the time didnt even mention fibromyglia he kept giving me all sorts of painkillers in the end i beacame allergic to a couple of them. I was having pains in my hands fingerships neck back u name it it was painful.Along came a new doctor i was going back and forth and having blood tests xrays fair play i had everything done,found out i had oesteoporosis on my 50th birthday still having the pain so she referred me to a rheumatologist he wasnt much help cos he thought ot was fobromyglia he didnt want to know now im on morphine and zapain .
  • megan1111
    megan1111 princessemh89

    Posted

    Hi! Are you still experiencing these symptoms? The same thing has been happening to me for 2 years and No one could ever help me! It has been awful but I recently was diagnosed and would love to share if you still need helpsmile. Reply if so!
  • cheryl12324
    cheryl12324 princessemh89

    Posted

    HI, have just come across this -I know it was about a year ago these symtoms are exactly the same as mine. I am going to to see a  rheumatologist still waiting for an appointment. This is so hard to explain to others how you feel with this. Was wondering how you are now and how you cope with this ?
  • debbie_1966
    debbie_1966 princessemh89

    Posted

    Reading your post was like reading a post I wld have done as I get all these symptoms my leg also gives way sometimes n I have fell a few times I also have tingling in my face n get palpitations it is hard to accept but I refuse to let it rule my life I am still working which I find very hard but have read about the troubles people have getting benefits and am frightened incase I am left with no money hope u get some comfort knowing others have the same thing going on 😞 x
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