Does anyone else with Fibromyalgia get any of these symptoms??
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My GP says he's pretty sure I have fibromyalgia after going back and forth to him with different symptoms for almost a year. I now have an appointment at the hospital in early December with a rheumatologist to discuss the symptoms further, have a full examination and hopefully receive a diagnosis.
Over the last few months my symptoms have gotten worse and more diverse and I can barely stand it anymore. I constantly feel tired no matter how much sleep I get and the minute I do anything like make a meal or go shopping I feel exhausted and have to rest. I get what my doctor says is tension headaches all the time and feel as though I am allergic to everything! My nose, ears and throat constantly itch (sometimes unbearably) and and I'm always sneezing. I always feel as though I am about to get a sore throat and ear ache and then it goes away. I have chest pains that feel like I'm having a heart attack and I get stabbing pains that feel as though they are underneath my ribs. My back constantly aches but when I try to sit or lye comfortably I get stabbing pains and can barely sleep in the early hours. My ankles feel as though they are sprained even though I haven't done anything to them. I bruise so easily and the slightest touch feels so painful. Even running a finger over my skin sometimes feels as though I have sunburn or something similar. My arms and hands and legs and feet go numb all the time and sometimes I get what feels like hot pin pricks in them. When I walk sometimes or am lay down I get shooting pains down my legs. My Doctor says I have IBS and I spend all my time either constipated or with diarrhea and horrible stomach cramps.
I feel like I am going insane and I can't cope. I'm quite sure I sound like a hypochondriac but I really do experience these symptoms on a daily basis. Am I alone in this or do other people with Fibromyalgia have these troubles?
I am on anti inflammatory tablets(pregabalin after gabapentin wasn't working) but they barely do anything. How can I live like this for the rest of my life?
I have had many blood tests to rule out any other defficiences etc.
14 likes, 159 replies
ayjayster princessemh89
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julie56378 ayjayster
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I was just wondering what injections you have. I have had fybro for 4years. But due you allergies against medication I'm currently not on anything at the mo. I'm struggling with the pain and not get any relief or sleep
julie56378
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shon55391 princessemh89
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rose1941 shon55391
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victoria_59764 princessemh89
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I've been too scared to go to the doctors again because I still don't feel well, as I'm worried they'll think I'm a hypercondriac. There are so many symptoms to describe. I feel exactly the same as you. I too have suffered tension headaches for yrs. I too have IBS and battle with diahreea and constipation/abdominal pains all the time. I've been on anti depressants for 10yrs+.
I'm also having ongoing tests/ scans for a complex cyst on my ovary.
I just feel so exhausted!! I'm scared my dreams of becoming a nurse ( and starting uni as a mature student) this yr, are not going to happen. How can I be a nurse when I feel like this
I really hope you get some answers soon. If you ever want a chat I'm here.
Best wishes
Vicky
tamra_09502 victoria_59764
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You could put all of the symptoms from each one of us together and that would sum it up. That's fibromyalgia and it sucks. I used to be scared to see the doctor too. I would tell myself that I would have to be on my death bed before I would go back to the doctor or hospital. I eventually started to build a good relationship with my doctor. But first I had to find a doctor that I felt comfortable with. But really what does it matter? Because there seems to be no way to cure fibromyalgia. I understand getting recognition that we are not hypochondriac does help us feel better but it's not the cure.
cheryl06050 princessemh89
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rose1941 cheryl06050
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rose1941 princessemh89
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tamra_09502 rose1941
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I've felt the exact same way. It's frustrating because as soon as you feel like you can't take anymore all of a sudden the symptoms go away. Or if you start antibiotics you get better for a couple days so of course it is assumed that the problem was something else.
deborah55717 princessemh89
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I've been going through the same thing I feel if am going of my head started last year with sore feet then 5 months ago started two arms really painfull legs feet hands and body shaking and I am so tired went to my gp got blood test s taken they have come back saying there is not normall so I go to do or doctor at hospital next week just want to know what wrong with me deborah
Ivy33rd princessemh89
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Your not alone and I've been dealing with this illness for 30 years and it's difficult a lot of the times to deal with it. Yes, I too have the same symptoms that you your experiencing too. I think what bugs me the most about FM is when you have flair ups how they mimic real serious conditions like the chest pain mimicking a heart attack. I went to the ER this past weekend thinking for sure this time I was, and no thankfully I wasn't! I seen my doctor today and found out it's just inflammation in my chest and the doctor gave me a shot of inflammatory stuff that he says will take the pain away. Of course where the shot was injected in has caused my arm to be in a lot of pain. Urrr!! I'm still waiting for it to work but I still feel like sh*t. I know after dealing with this illness there will always be a rough go of it. I have heard people say that they go on special diets and read on it that it does help them live a better painfree life. I'm the worst in sticking to anything and not sure why I can't but I'm being honest with myself and you that I'm missing that dna to be more diligent in keeping to any program. What's sad about that too is I'm diabetic and my sugar levels are off the chart. I can't remember to take my meds or insulin most days and still eat unhealthy like candy and high carb foods that cause spikes in my sugar levels. I have even set my alarm on my smart phone and it goes off and it helps sometimes; or I just turn it off and say I will in a few but no I forget and don't. My memory is the worst and suffer with short term memory loss and think the FM is the culprit in it but I can't blame it all on the disease. I'm just not discipline enough or so dang tired or depressed I just can't bother to deal with one more thing. No one gets that and are always angry with me and hell I'm angry at myself. Sorry to share so much about my issues. I'm sure your just trying to deal with your own at this time. I can suggest to check online on the right foods and diet plan they have for FM sufferers to have and which ones to avoid. I need to do it too. I did years ago but lost it so guess it's time I research it again. One thing I can say about myself I do fall down a lot but do get back up and you will too. Best wishes and I hope the new doctor your seeing will help you. The one I saw wouldn't treat me due to my symptoms being so bad that he knew he wouldn't be able to help me. That was a very depressing moment for me to hear but that was over 5 years ago and I live in a new area since my divorce so maybe I can now find a new one that will help me more deal with this illness. I sure hope they find a cure for us. God bless and I hope you or are feeling better since you wrote this.
judy1947 princessemh89
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You sound like me. I live in California. I was diagnosed with COPD and Fibromyalgia. My complication is that it's hard to tell to which ailment my symptoms correspond. Today my grandkids are playing football not very far away. I wanted to go, but didn't sleep well again and am having pains under my ribs, probably my lungs, and I'm coughing a lot and blowing my nose. My symptoms have gotten worse lately and I'm beginning to wonder if I'll ever feel OK again. Sound familiar?
aliza99754 princessemh89
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This is an old post but I can relate to your symptoms 100% I haven't been diagnosed but IV had test ran catscan, xrays,blood test, next mri. Dr says I'm A Okay , I'm a young mommy to 5 children, 12yr,10yr,7yr old and my 4yr old who is severely autistic w/adhd spd and is non verbal, only drinks liquids not yet potty trained, and my 2yr old
I was happy only suffered from migraines I thought that was bad, pls be patient with me I'm also bipolar, ocd and go off subject often. Here it goes I feel like I'm dying slowly, I vomit all the time after every meal since I was a teenager that's when I had my gallbladder removed i was 16 in 2006 , my body aches, I feel as if I was ran over by a semi most mornings , IV became depressed in Jan 2012 that's when migraines started. I had an ER C-section aug2012 my whole pregnancy I was depressed weak always slept and migraines. Well Oct2015 I broke my hand, I hit the wall (I know not smart) well to make a long story short I was unable to have the metal rod put in last yr 6 weeks after . About 8 weeks after my hand was injured my 4yr old broke it 2 more times, well I stuck it out and noticed redness swelling every time I use warm or cold water. Feb 2016 I fell walking through Walmart my knee caps were bright red and really hot to the touch super stiff . My knees locked up I fell with my daughter..well since then I'm getting these excruciating pains like if I'm being stabbed from the inside out , and in my thighs my neck my ribs my tsilbone ..since Feb 2016 my hands feet swell when I'm in the heat turn bright red ..arteries in my neck hurt, I feel like unhappy Iv had some bad thoughts, Im losing my hair I'm bein tested for cancer in my kidney , I run 101.-102 fever every day since May 2016 I have had blood in my urine for a yr now...it's getting bad I do look like a hypochondriac IV been in the ER more frequently, I can't eat I'm losing feeling in the hand I broke, I can't stand for more than 30 min before I lose feeling in them. Iv been hospitalized for the pain and my migraines but I'm tired of no answers I want to end it. IV been told I have anxiety/panic attacks 3 weeks ago. I went to ER for tightening in my chest nothing, my son punches me in the spine/headbutts me there to and he jumps on my head he does it unexpectedly if I'm sleeping or watching tv, he'll be hugging me and just change to be rough. I'm 114lbs 5ft tall he's 3 1/2 ft tall 55lbs I thought maybe he hurt me so I asked for the xrays...these last two weeks have been the worst with pain all over I can't even hold dwn fluids or food I went in and BP was 152/101 I cried when I left hospital yesterday because I was told to alternate between ibuprofen/tyleno an IV been doing that but then I end up back there for internal bleeding. So they did what they do best gave me toradol,Reglan,benadryl and sent me home..
no prescriptions not even to hold down food..I'm a single parent as of March this yr This is horrible..I'm at a loss I don't know where to turn. I can't even get out a bed to put my hair up. My toddlers bring me pampers in wipes I keep snacks and Lil dinners in my room..but there are times where I don't feel IL be walking up the next day. I don't want to be here and it hurts to say that because I loved life I love my kids they need me and I'm broken. I'm getting pale by the days kinda yellow tint I have an orange brown color around my eyes from lack of sleep and being sick it's been a week IV had diarrhea,high BP, haven't eaten but two crackers nd a toast in a wk I'm hungry but can't eat and that hurts.
tamra_09502 aliza99754
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