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Does anyone else with FM recieve DLA/PIP/ESA??

Posted , 39 users are following.

princessemh89
princessemh89

I have a PIP (Personal Independence Payment) assessment next week. I receive ESA but I was told to apply for PIP which is supposedly replacing DLA and now I have an assessment. Does anyone know what to expect? Has anyone else with Fibromyalgia had a successful PIP/DLA assessment?

2 likes, 75 replies

75 Replies

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  • kerryanne1978
    kerryanne1978 princessemh89

    Posted

    It's a joke! I was penalised for turning up,to the assessment alone. They told me to go to Barnsley for first appointment with atos, until I called and them and said have you read my form I can't plan journeys and don't know where Barnsley is! They changed it to doncaster where I am familiar with, but this went against me as this obviously shows I can plan a journey. They also have said that because I am at work it means I am sociable. In the assessment they asked me to remember 3 words to prove I forget things - don't know about anyone else but when asked to remember 3 words I have them swimming around my head and can't think of anything else! Brain fog caused by fibro doesn't work like that in my experiences! 

    Anyway have aver had to wait for a reconsideration, have reported this to my local mp  as well. Absolutely disgusted! 

  • shazmill
    shazmill princessemh89

    Posted

    Hello princessemh89. I have fibromyalgia and receive DLA
    • glen33354
      glen33354 shazmill

      Posted

      Hi my doctor has writen me a letter but apart from that he is pretty hopeless just gives me my meds and sends me on my way I also got a letter from my consultant so hopefully this will help but am already getting panick attacks thinking about it was bad enough going for my assetment x
    • glen33354
      glen33354 shazmill

      Posted

      Hi my doctor has writen me a letter but apart from that he is pretty hopeless just gives me my meds and sends me on my way I also got a letter from my consultant so hopefully this will help but am already getting panick attacks thinking about it was bad enough going for my assetment x
    • JulieBadger
      JulieBadger glen33354

      Posted

      I also submitted 2 letters from family members who are affected by my condition and a friend who has know me for over 5 years.

      Got my face-to-face interview in 3 days time and I'm stressed about it! 

    • shazmill
      shazmill glen33354

      Posted

      Hi glen33354. If your doctor is not supportive ask to see another one in the practice.  I changed three times until I found one in my practice that would take me seriously. It took a while but now feel like I am in charge of my treatment.  Don't give up keep plugging away and seeing doctors on a regular basis. Take pictures of swollen joints and keep a journal of how you feel day to day.

      Good luck Hope this helps

    • shazmill
      shazmill JulieBadger

      Posted

      Hi juliebadger. I know it is really stressful but try to not  worry too much. If they ask you to something and it hurts tell them so. Explain how bad its gets and how it feels. How it affects your quality of life on a worse case scenario. Letters from consultants and all other services involved in your care are useful. Good luck hope all goes well.  If they say no appeal. Take care 
    • glen33354
      glen33354 shazmill

      Posted

      Go to the tribunal tomorrow let's hope all these appeal's have been worth it as I have no more fight left in me x

  • glen33354
    glen33354 princessemh89

    Posted

    Hey I've just join here today I have fibromyalgia think I've had it for years but was just got diagnose with it in Jan this year after going for lots of test I lost my job in oct 2013 I was on sick for just over a year I put a claim in for pip and had my assment in November 13 I got turn down when I read the report it was a joke is as if she was only half listen and her right up about mixed up in short o said I was lazy and played on my phone all day and walked my dogs first thing and last thing at night I can't get out of most days and am back in bed at 6 most nights.so I appealed I got to speak to someone on the phone phone call was about 10min long I got turned down again the report was another jpke so I appealed again so now am waiting to go to a tribual in DEC even tho its a over a year since I put my first claim in am so gald as I've been sent everything they have wrote about me and believe me am so gald I took someone with me to my assment coz in they report it says I refused yo be examination (lies) report said I past some test (I didn't even have any test.lots of other little things so I no its hard and stressful but don't give up..I will let u all no how I get on in Dec..xx 

    • shazmill
      shazmill glen33354

      Posted

      Hi glen33354.

      Sorry you are having soo many problems.  I was assessed by Atos and had no problems.  I also asked for an assessment at my home.  They sent one of their doctors to see how I manage at home.

      Is your doctor / consultants supportive? Both wrote a report about how the illnesses affects me day to day. Another thing to do is to keep a copy of all hospital appointments for evidence. Ask consultants  for a copy of the reports they send to your doctors. 

    • shazmill
      shazmill glen33354

      Posted

      Hi glen33354.  Forgot to mention take a dicaphone in with you to record conversation as its always your words against theirs. 
    • glen33354
      glen33354 shazmill

      Posted

      Hey I go for the tribunal today I just hope all these appeals have been worth it as I haven't got much fight left in me......its a joke xx
    • glen33354
      glen33354 shazmill

      Posted

      It was a joke was in the room for 2 hours and I got pulled to bits eg this doctor said you have walked in here OK and you've sat here with out a break and everything I said one of them had a anwser for and to top it off I have to go back as they couldn't come a decision so its not looking good makes you feel low and some of the thing there ask you just no need xx I had a letter from two different doctors but they didn't seem intrested in them it was all about walking !!!!

    • shazmill
      shazmill glen33354

      Posted

      Hi glen33354.  I am so sorry you were treated so badly. The DLA or PIP work on similar principles. Both have components for mobility and care so this is what the assessment will be based on. They don't look outside the box so you have to prove that you are struggling to deal with everyday tasks. Give  examples based on the worst you have ever felt. Take a walking stick with you. Take your time let them wait. If all else fails appeal. Write to MP , the papers and shame them. Hope all goes well.  Take care

      Shaz

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