Does anyone else with FM recieve DLA/PIP/ESA??

Hello,

I have had fibro since I was about 13, this was misdiagnosed as growing pains. I've only been diagnosed about 6 months ago. (I'm now 21) I was on income support originally and was advised to move to ESA. I did so and applied for PIP 15 weeks ago. I have just had my face to face assessment and will know in 4-6 weeks whether my claim for PIP will be accepted or not. 

I know many people who have fibro and are claiming the higher rate DLA (they applied before PIP was active and haven't been transfered to PIP yet.)

You should deffinatly apply for PIP especially if your receiving ESA. If you can not get around and meet enough criteria you will be accepted.

Hope this has helped ox

Had my PIP assessment last week.  Intensive hour that was! By the end of the hour which she rushed because I had been laid on their office floor trying to answer their questions for the last 15mins.  The stress and sitting still for so long had got to me too much.  My lower body and started 'locking up' and my head was swimming.  At least they got to see me when my condition is obviously at a state I cannot look after myself.  At least the carpet was clean as it was only a few days old (shame it wasn't a nice comfy thick pile).

Fingers crossed I now get some money to pay for some help around the house.

Dear Princesse. Lie! Lie! Lie!. They do. I've just been refused P.I.P. And I can hardly walk.The reply report read like it was for an Olympic contestant. I'm going to go mad if I don't get a decent response. They even said they phoned me. Guess what!  No missed calls on my phone.  If I don't get an answer I'm going to borrow a car and drive it through the DAY front door. Watch this space.  I am that angry.

I have had a successful result through pip and esa for fibromyalgia I think it depends on the assessor and what they put down some don't put everything you say down so if you get refused always appeal.

Hi Princessemh89

i have fibromyalgia & i have filled in all the forms for pip ... i have been waiting 3 weeks but apparently it takes up to 16 weeks

it is very scarey not knowing if i will have any money to live on over the next few weeks ... i have to have an essement but i dont no when that is likely to happen ....i will let you no what happens

i cant work as the tiredness is unbelievable plus the pain which is all over ...plus it is different every day i cant remember the last time i had a good day

i wish you all the best with your pip

regards x

Hi

I had a PIP assessment in the summer and was refused and had an appeal a few weeks ago and was refused at the appeal stage. They concontrate on what you can do rather that what you cannot, at the appeal stage I really felt that I was being interagated, as much as i am in pain and really struggling to work full time I dont think I would put myself through it again, everything I said I struggled with they had a reason for it, I wish you much luck with your assessment and really hope you receive it and take tips from what people have said as I wish I had,

Gentle Hugs xxx

My friend gets a PIP for her FM, however her condition has deteriorated to the point that she is in a wheelchair mist of the time and requires sticks when trying to walk very short distances.     havung previously been awarded ESA and high rate DLA she lost her entitlement to a PIP initially and has had to jump though ( no pun intended) huge hoops to win at appeal.    

i understand that FM as a diagnosed condition is not sufficient medial need to gain aPIP award, it is wether or not that a qualifying ckndion is being suffered in conjunction with your FM.

i too have FM and was diagnosed in 2008.  I have learnt that I also have a liver condition AIH. auto Immune Hepititis which has all the same symptoms  FM displays,whilst I could not have claimed a PIp with the FM alone, I am now led to believe that the diagnosed AIH could be classed a qualifying condition.   Seems very unfair really.

Good luck getting sorted.

Did you get granted the pip hun x

hi looking for advice did my esa claim over the phone today does anyone know when I should receive a payment or what will happen next I'm confussed

I have so many different symptoms of fabromyalgia I've, migraines athritist, diverticulitis IBS exhaustion ,pain everywhere, depression etc.

i went for a pip appeal and was the most nerve wrecking day ever, the doctor had gave me Valium to help me cope and still I fell to pieces. They try and trick you, eg,I have bad athritist and can't walk far, they deliberately made me go to the tribunal room which was the furthest away, I was in so much pain, but, they said that I walked fine. To cut a long story short, they needed my medical records as I have also previously had a stroke. They said they couldn't just take mine and my sons word for it! I gladly signed the disclaimer form. My doctor has now had to increase anti depressants and written a letter to tribunal advising that my health is at risk if I attended again, my son has thankfully offered to be my proxy. So will see what happens. The tribunal made me feel out of my depth. Bad.Bad.Bad

At the moment I get esa for my endometriosis which I just done a medical form for renewal pip is hard to get I was classed as disabled with my endometriosis but not with fibromyalgia they first said I wasn't on paracetamol I wasn't in pain but since taking it I feel worse now they say it's because my BMi is high even though I've discussed diets with my dr he said the only thing would work it surgery which I can't have as I'll end up in more pain