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does anyone get the same symptoms

Posted , 9 users are following.

ingrid19972
ingrid19972

I just wondered if other people were the same. Some days I feel like I have nothing wrong with me but this week I can hardly move and in agony.I'm

Still struggling to go to work because haven't been able to claim anything.

Really struggling to know what to do

0 likes, 49 replies

49 Replies

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  • tiswas24537
    tiswas24537 ingrid19972

    Posted

    we all have those days you just have to learn to live with it i am in a stage of chronic fatigue now yet two weeks ago i couldnt sleep
    • nitropilot
      nitropilot tiswas24537

      Posted

      Re: foods. Oh how I know what you mean. WTF is that about anyway? One day its fine and the next hour body has an allergic type reaction...to the same exact food. Makes an elimination diet difficult. Lol

  • arual2014
    arual2014 ingrid19972

    Posted

    I feel exactly the same. I can change in a day. I feel groggy and stiff in the morning, fine by lunchtime and in a lot of back pain by the afternoon. By the time I finish work I feel exhausted. I have only just been diagnosed though and only taking over the counter painkillers at the moment
    • nitropilot
      nitropilot arual2014

      Posted

      Sounds like Adrenal Fatigue. Medical diagnostic methods don't detect this type of disorder until it becomes a full blown disease. They just give you pills anyway, that happen to only make it worse.

      Check out info on the HPA Axis, Chronic Fatigue, Fibromyalgia, etc. They all have a common theme. Biochemical imbalances that affect the nervous system. Hormones. They control every process in our body. One jacked up producer or receptor and everything else on down through the processes is doomed. Sounds catastrophic but its just biology, the endocrine system. 

      Taking care of yourself is the best thing you can do. And don't stress the blank out when you don't meet your own expectations of how you should be! 

  • brenda59210
    brenda59210 ingrid19972

    Posted

    hello ingrid 19972

    I certainly experience times when the pain level changes to some extent but am convinced that there is an element of allergic reaction, e.g. I am usually much worse in cold weather, like now; in england anyway, but apart from cold and damp making arthritic pain worse in general there seems to be a link to something connected with the weather change like, possibly, some additive in the gas supply. I have had 25 yrs to weighit all up and  something causing extra sensitivity seems definitely to be a part of it.

    Just try to think if there is anything different going on when you have the pain at it's worst. I am trying to collect info on this. How about food and/or water?

    I can only hope that things improve for you. More is gradually being learned about fibromyalgia so hope is never gone.

    Brenda

    • Tigs
      Tigs brenda59210

      Posted

      Hi Brenda, I have read some of your posts before about being away from the house etc and I have been wondering about these things myself. I have just come back from a five day trip to Rome - sightseeing on my feet every day with my husband who makes no concessions fo my FM. I really struggled during the first two days but gradually felt better until I felt almost 'normal'. I seemed to be able to tolerate food that I don't usually eat too. It might have been that all the consistent, steady walking strengthened by back and my faithful spongy Croc flip flops absorbed all the pressure, or it might have been the fresh air and the climate. I wish I could work it out!
    • tiswas24537
      tiswas24537 Tigs

      Posted

      its being in new and stimulating surroundings and free from the stresses of home . plus the climate is warm and dry  and not humid like it is in england 

      the past summer nearly killed me it was so hot and humid i was house bound, now its cooled down and gone damp so its just as bad. give me dry heat .or crisp frosts and i am fine but humidty and damp kill me. we dont realise how weather sensistive we are . glad you had a nice holiday.cheesygrin

    • Tigs
      Tigs tiswas24537

      Posted

      Thanks Tina! Yes I have wondered about the weather thing as I have noticed it before in warmer places.
    • nitropilot
      nitropilot Tigs

      Posted

      As painful as it is, exercise is excellent for FM. Plus, your brain was happy and less stressed. I always feel better away from home. Here I have too many countless memories of suffering. Consciously you may not think it matters, but our other part of the brain remembers and reacts.

      I was thinking of rearranging slash redecorating often to make things feel different in my room. Where the suffering is most prominent. IDK. 

      Glad you had such a great trip & I'm sorry you don't have the support. My family took eight years to understand how severe FM is!

    • tiswas24537
      tiswas24537 nitropilot

      Posted

      i have also noticed that getting out side or out and about is a struggle and some times takes a hughe effort , but once iv done it i always feel better . tired but better mentley .neutral
  • Angel51
    Angel51 ingrid19972

    Posted

    Hi Ingrid,

    Yes I am the same, absolutely! I think its when I have rested for a few days and the pains have subsided slightly that I start to think either A its gone or B I never really had it in the first place, lol. Its just so unpredictable, dont you think? And then when you have a bad day it can bring me crashing back to reality, leaving me upset and angry. I take my hat off to you for working, I really dont know how you do it, well done. I gave up work gradually as I was getting more and more fatigued and never had a clue what was wrong....got my diagnosis this September. I am sad at needing to leave though. Also you should try claiming again, send as much evidence as you can and dont give up trying. All the best Ingrid and let us know how you get on. Regards Angie x

    • tiswas24537
      tiswas24537 Angel51

      Posted

      if you look on line at the gupa programme it tells you why you feel the way you do ,it explains things and it all makes sense . there is a free sample . you dont have to commit to the programme .

      although i am going to within the next few weeks .iv always inteneded to beat this and get well and this is the only chance that i can see at present of doing it.  take alook it cant do any harm listening and looking at the info.lol

    • ingrid19972
      ingrid19972 Angel51

      Posted

      Thanks for your reply.I'm afraid I have to work because I have a mortgage and can't claim anything so would loose my house.I will try again I don't want to give up work just wanted to do less hours.because I think I would get too depressed at home x
    • jackie20702
      jackie20702 ingrid19972

      Posted

      I have no choice Hunny im bad ive put a claim in for disability p.i.p to help me with my every day living my neighbour comes in and helps me I can't walk more than 50 yards with out being in so much pain I just want my normal life back its took over my life but I'm still fighting it xxx
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