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I am a 16 year old girl and I was diagnosed with HSP over a month ago. At first I didn't struggle too much because I was just very tired so i slept most of the time. However a month on atand i have only been back in school for 2 hours at most and I can't cope with that.
I am in year 11 and doing my GSCEs in the summer so I don't want to miss much school however every time I try to get back to normal life even just the tiniest little bit, I am exhausted and begin to feel sick,dizzy and the joint pain is horrible.
I feel very isolated from my normal life because I struggle to go out to see my horses and I have a tight knit group of friends that I haven't see in a while.
The Doctors are not much help as they don't seem to much about the condition so I feel even more isolated because they don't see to be able to help.
If any teenagers are in a similar situation don't hesitate to write a reply because it would be nice to talk to people my age in the same boat as me!
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