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Does HSP every end

Posted , 6 users are following.

helen68654
helen68654

I am a 16 year old girl and I was diagnosed with HSP over a month ago. At first I didn't struggle too much because I was just very tired so i slept most of the time. However a month on atand i have only been back in school for 2 hours at most and I can't cope with that.

I am in year 11 and doing my GSCEs in the summer so I don't want to miss much school however every time I try to get back to normal life even just the tiniest little bit, I am exhausted and begin to feel sick,dizzy and the joint pain is horrible. 

I feel very isolated from my normal life because I struggle to go out to see my horses and I have a tight knit group of friends that I haven't see in a while.

The Doctors are not much help as they don't seem to much about the condition so I feel even more isolated because they don't see to be able to help.

If any teenagers are in a similar situation don't hesitate to write a reply because it would be nice to talk to people my age in the same boat as me!

Lucy 

0 likes, 24 replies

24 Replies

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  • lucynewas
    lucynewas helen68654

    Posted

    Emily and Lucy - did you both have any vaccinations at the start of term before you developed HSP?  Or did either of you have a severe throat or other infection?
  • helen68675
    helen68675 helen68654

    Posted

    Hi Helen

    My son is now 8 weeks into having HSP, he's 15 years old and in Year 10. He too can only manage 2 or 3 lessons for a couple of days then needs a couple of days rest. At the moment it's either swollen painful joints or abdominal pain, he can cope with the joint pain but the stomach pain really troubles him. He's been re-admitted twice, once when he had bowrl intersuseption but luckily this stopped & he didn't need surgery. Got protein & blood in urine. Can only have paracetamol. He's really fed up & just wants to be back to normal & seeing friends. He's such a sporty boy too & I have no idea when he'll be back to sports. How are your symptoms now? Hope you are improving & managing some more time with your studying.

  • lane79406
    lane79406 helen68654

    Posted

    Hi Lucy - I've dealt with HSP for over 15 years. I strongly suggest taking a daily dose of fish oil. I take about 5 pills per day (5 grams). This is the single most important factor in my managing this disease. Hope this helps.
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