Does LS necessarily have to cause itchiness?

Posted , 11 users are following.

I was diagnosed with Vulvar LS two years ago after a biopsy. Was given Clobedasol cream and ointment. Symptoms haven't been too noticeable over the two years until now.

The thing is that I'm not experiencing any itchiness, rather just mild soreness and some pain

I'm thinking maybe I have something very serious going on and am quite worried. I'm going to my regular doctor in a few days.

I wondered has anyone had a flare up minus the itchiness? By the way I'm in my 60's.

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  • Posted

    Hi carol

    Whenever I have flare ups I never have the itchiness. I actually have never had the itchiness as part of this condition. I only have the soreness and pain. Almost like a cattle prod. I am going to see my specialist in 3 weeks. But I hope it helps not sounds like a flare up to me.

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  • Posted

    Hi Carol,

    It's always good to check with your doctor.  My flareups are not itchy.  Soreness I've had along with the white patches and leisions at times.  I'm in my 70's.  Take care and let us know how you're doing.  

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  • Posted

    I have been having a flare for the last few weeks. Brought on by stress and flux in hormones. No itching just dry and burning. Using clob., Estradiol and essential oils mixed in a carrier oil. Seems to be helping. The tear which occurred independently has healed and the skin seems better but still have a lot of heat. So tired of all this

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    • Posted

      Hi Dianne, Wanted to ask you what is the greatest amount of time a flareup has lasted for yourself before there was any relief? Im using Clob but its been almost a month and not much change. Im currently waiting to see a specialist through referral since my former one has moved his practice.
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  • Posted

    I was diagnosed with LS early this year after having a biopsy  but that was after suffering itching and soreness for quite a while.  At the moment it's not a problem, I use Dermovate twice weekly and Hydromol daily that seems to work for me at the present time and I am in my 80s.

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    • Posted

      Yes I had the itching and soreness for a while before seeing a doctor. At the time I hadn't even heard of LS. It was very troublesome waiting for the biopsy results I might add. Now almost 2 yrs later it's acting up again so I have another referral to a specialist. The Clob I still have but isn't providing any relief this time plus it might be expired for all I know.

      I'm glad you're doing well .

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  • Posted

    Dear Carol, I'm 63 and was diagnosed very late and have been completely freaked about this thing and the architecture is not pretty at this point.  I have also decided to take as much control as I possibly can so I am not left wondering about ANYTHING. To start, I have been reading and reading and reading the scientific and medical literature and I implore all my sisters on this site to do the same. But as a patient I am also determined to employ my physician and question, and ask and ask and ask because there is a ton about this condition that is still not understood or adequately explained by the physicians from GPs to dermatologists. The protocols for steroid use are still all over the place although the consensus is that super-potent steroids are -- at this point -- the only thing that slows the progress of the disease and seems to greatly reduce the likelihood of cancer - and it's a very nasty cancer.  At my most recent visit to the dermatologist - this the second dermatologist in less than a year because the first one was a dead loss - I asked the resident who was working wtih her to show me - with a mirror - EXACTLY how to examine my vulva, what to look for and how often. My dermatologist told me I should be examining myself every week. Every week. So, Carol, I want to give you all the support in the world when you go to see you doctor to get her to show you exactly what is happening down there now, at least according to her, and to ask her very specific questions about how to recognize things that should be attended to immediately. And if you are not satisfied go somewhere else. Courage! 

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    • Posted

      I completely understand what you mean.

      We have to take control of our own health and get these doctors to take more time educating us instead of whisking us out the door. I commend you on your reading and research on this disease. I will surely make a point of asking the doctor to show me what to look for that might be astray from what I'd only known. That's the problem right now. I'm worried it's developed into a much worse situation and I've already let it go for 2 weeks.

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    • Posted

      Hi Mysticat,

      Just an update. My doctor gave me a referral to a dermatologist but prior to this I had been to a gynocogist . The appt won' t be for 2 more months!

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    • Posted

      Hi Carol, thanks for the update. I am sorry you have to wait and all I can suggest is that you call the dermatologist's clinic and see if they can squeeze you in earlier, there are always people who can't show up for their appointments and if you are ready to go at the drop of a hat they might be able to see you much sooner. Also, there is no harm in explaining to the reception that you are concerned and in pain and anxious for that  reason, and find out if there is a wait list for this purpose. Take control take control, take control. If there is any changes at all in the look of your skin call your doctor and don't take no for an answer.  Stick with your medication and hang in there. We're all in this together!    

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