Does Physical Therapy Help or Hurt

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Hello everyone.  Looking for some insight here.  I am not the typical  Chiari 1 patient, as far as I can tell.  I am 48, and just recently was diagnosed.  On top of the Chiari I also suffer from limited mobility in my neck, from scarring.

Looking back, I have had some symptoms of Chiari for about 2 years now mainly, vision, fatigue, and headaches, I assumed it was just stress, but it was not until recently when I took a job in a factor, when symptoms got worse.  I collapsed twice while on the job.  So now I am currently on sick leave till September. 

I have had 2 MRIs and a CT scan.   I have 5mm cerebral ectopia and a binine tumor.  Yes sometimes I have wondered if I have rocks for brains,  this just confirmed it.

My symptoms are aggravated by physical activity.  I am carefull not to lift any thing too heavy.  I find it very difficult sometime to walk on hard floors.  I've been haveing to use the motorized carts at the grocery, and now I constantly see flashing spots in my vision.

Currently my neurologist has me seeing a physical therapist and a massage therapist.  I have been going now for about a month and I am getting stronger, but I am not sure better. The therapy has been concentrating on my neck, arms,  and back.  Unfortunately my back is now hurting, and I am still having fitigue and dizziness symptoms, which has me doubting PT.  

Sorry this is getting long winded.  I guess my question is.  Does anyone here else have experience with  physical therapy as a treatment and does it help.   Thank You, and please forgive my awful spelling.

 

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  • Posted

    Hi Tanya,

    I just started in this this group, did your neurologist diagnosed you with Chiari 1 yet?, its look like that was the symptom, yes, I have exactly the like wise symptom as yours, but mine just getting worse-as I was tubborn kept working, in the end my body telling me to give up...and I was collapse one day, I was in the state of house bound for sometime and a waiting for surgical now, I have physio therapist, accupunture, durgs - and drugs and drugs (did not help at all) until I found this website..so I have been taking this certain supplements which helped me a lot..I did not believe at first ..I though it was scam.,but after taking it for 2 months and change my life style..I stopped taking my drugs..and start having less pain..and getting walking again...(slowly..slowy..catcth a monkey..though...) but I have to resign from my work...well I hope you getting better..I am now trying to get a support group in my area and also try to raise the level of awareness by putting seminar for all my health care professionals in Dorset...coz they have not got understanding what CM is

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  • Posted

    What supplements have you been taking if I may ask?
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    • Posted

      I took sev eral of them selenium, EFA and health pack 90D, its quite dear but its helping me to have energy and encourage me to wanting to do more and help people like me
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  • Posted

    Hi Tanya,

    I would think that physical therapy on a neck with chiari would have to be very caeful.  Neck stretching caused me to have more symptoms and massage would aggravate the nerves that are already inflamed.  I did find that static neck exercise (where you push your head against resistance without moving your neck) is very helpful to me.  I started doing it as soon as I knew I was going for chiari decompression surgery and resumed as soon as I could after my surgery.  I think that strengthened my neck muscles and have made my recovery go quicker.  If I don't do the exercises now I start to get the symptoms again.

    Just be careful with the therapy.  Best wishes!

    Laura

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    • Posted

      Hi Farmerlady,

      So my understanding is that you already had Chiari decompression surgery...please could you share with me..do you think you have done the right thing by having that surgery?, so you still having the symptom if you do not do exercise?..onn the other hand can you suggest me what do I expect or ask my neuro surgeon when I see him next month for first initian of appointment to discuss what next step he should do (I really like the idea of operation) as I have enough of spending so much many with lots supplements (when I stopped taking the supplements = the symptom start again)

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    • Posted

      Hello,

      I am glad I had the surgery bc my symptoms really got bad.  I was lucky bc I only had to wait a month to have the surgery from the time my symptoms got bad, and my surgical experience at Duke U. was very good.  And my symptoms were better immediately.  I still get to feeling kind of bad if I do too much now after 4 months so I have to be careful of my activities or pay the price of a week of feeling bad.  

      I would ask where they will get the patch for your surgery (they cut the dura and add space to it with a patch).  How many of these surgeries have they done?  My surgeon said something about women having some neck problems after surgery so I would ask more questions about neck problems after.  My Dr. put all kind of nerve blocks in the area of the surgery while I was under so after surgery I had minimal pain for almost 2 weeks.  You could ask about that.  When the blocks started wearing off I felt some old symptoms and that worried me but they went away. 

      I believe the neck exercises really help me bc my longest standing symptoms were pain on one side of my head in the ear and the temple area where the nerve for that area comes from the space between the first and second vertebrae.  So I figured strengthening the neck muscle would help that and it really has.  I do "static" exercise which is pressing the head against an object that doesn't move.  I do all 4 sides of my head.  I get down on all 4 and lean my head against the couch or chair cushion pushing for a count of 20.  

      That's all I can think of.  I wish you the best!  Hope you feel better!

      Laura

       

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    • Posted

      Dear Laura,

      Thank you for that, so just to summarize if you have not done the surgery you think that it might got worse?

      Before and after the surgery did the neuro specialist give you any medication at all to take, if they did what was it?

      I went for accupunture once a week, the accupunturist told me that if I carry one for another 12 sessions I will feel much better, he explained really better (well) than my specialist, he told me basically its like polip/hernia....the rpessure of the inside is highest that outside..if he can get the circulation back to normal...then I should not need the surgery..I am not really sure I live in Dorset - UK, the next surgeon closer to us is in Southampton..can you tell me how do I contact Dr flint..or who is the best neuro surgeon who has done lots of operation on this kind ?

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    • Posted

      Hi Laura,

      Just curiousity, I know  you told me that you feel much better after operation but then you still feel bad after 4 month if you do too much..can you do a normal task such as daily chores and are you back to work or what?

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    • Posted

      I don't have a job but do a lot of gardening and activities around our farm.  I cannot do anything that bounces my head like mowing or riding on bumpy trails.  The walking doesn't bother me and neither does the gardening.  I went canoeing recently and that stirred up my head a little.  It took a fews days to get it settled down again.  I was playing tennis quite a bit before surgery and have not gotten back to that. I think that will be too hard on my head. I hope to be back to that by January.

      Does that help you?  I hope so.

      Laura

       

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    • Posted

      So, do you still been seen by your neuro surgeon after the operation, is it much better after surgery?, do you take any medication now?

      So, you glad that you have done the operation?

      I have not have the surgery yet, I am seeing the neuro surgeon in early September, I have taken your note to ask (thanks Laura..!) any other suggestion

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    • Posted

      I saw the ns at 6 weeks po. That's all. I only take Xanax to help me sleep. No other meds other than claritin for allergies.

      I am glad I had surgery. Now I have to be patient with recovery. I've been gaining weight lately BC I'm not playing tennis like before and that is frustrating. But my life is good and I am happy.

      Blessings!

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    • Posted

      Dear Laura,

      Thagt is such a great news, is just when I read about it...people seems unhappy after the OP..just make me worried, yes I used to play squash and tennis....let alone playing them .., I can't even walk properly now.. How mnay hour was the OP...was it painful...how many weeks after the OP you recovered?...whay do you need Xanax to help you sleep?..on the other hand.. have you tried the ginger and tumeric each morning and each evening that help you with your hay fever, I used to bleed each summer...I have Ceterizine (clarytin didn't work for me - I used to sale them as a medical rep.), baconase, symbicort and eyes drops, now I dont take any of them..ginger and tumaric seems do the trick for me..

      SO why those people say..they still got terrible headache after the Op

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    • Posted

      Thanks for the info about allergies. I use cetrezine sometimes. I've beentaking tumeric pills for joint pains. How much did you take? How did you take ginger?

      My symptoms didn't get as he as yours before surgery I guess. I hope it relieves all your symptoms with no head aches. I don't know why they still have headaches.

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    • Posted

      My surgery was 2 1/2 hours. I went home 3 days later. You can't lift anything heavier than a gallon of milk for 2 weeks after then gradually increase activity. I was able to dress myself pretty quickly after but had to sit down to put on pants. They let me shower when I got home. That felt good.
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    • Posted

      In response to both of your message:

      1. Tumeric and Ginger - I used it every day - I bought a fresh ginger first thing in the morning I slice 2 or 3 slices plus 2 or 3 slices of lime pour with boil water 500 ml and in a cup i put half tea spoon of tumeric powder and honey then I pour the mixture of ginger and lime into my cup with tumeric and honey on it (every morning without fail) not only cleanse my toxic but its reduce my inflamatory (less ache and pain with my fibromyalgya) and also helping me with my allergy.

      2. In term of the OP. It seems its worth while for you - and I am the same with you I passed out last time when I cough.., but if I sneeze I feel I was going to pass out..and it will last about 2 minutes before I can go back to a stable condition.

      3. What I really would like to know is; how do you feel now? in regard to doing a daily chores?

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    • Posted

      I am having a bad week this week.  Until last week I was feeling good and able to do everything except bouncy things- mowing, riding rough trails and tennis are out.  I was feeling good all the time.  I went on a canoe trip and I think that started my chiari up again and I have been getting a little worse every day since.  Pain on side of my head that I had before and some light-headed spells.  I think I have something else going on now bc my joints ache off and on.  I had blood drawn Monday and am waiting for the results to see if I have a tick born disease or rheumatoid problems.  I am taking it easier for a few days to see if the chiari symptoms will go away.  

      I think the surgery will definitely stop you from passing out on coughing and feeling so bad on sneezing.  I had that when I coughed before surgery.  I've been sneezing like crazy lately with no head pain.  

      Thanks for the info on the ginger and tumeric.  I'll give it a try.

      Best wishes,

      Laura  

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    • Posted

      Hi Laura,

      I amsorry to hear about your condition this week, when you say bad week, does it stop you for doing anything? are you taking anything for your Chiari after the OP , I peesonally think that CM can also caused feeling like you have joint pain it is effecting all of your nerve and muscles and joint throughout your spinal cord..

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    • Posted

      I can physically do everything, but now bending and lifting make my head hurt and then later I feel the light headed and ear/temple pain. Yesterday I had waves of nausea when I went out in the heat.  I think that is something else although it might be the chiari.  It can cause such a variety of symptoms. It doen't seem like the joint pains are from the chiari.  I hope not. I am not taking anything for the chiari. Once I stopped the pain medicine after surgery I haven't needed anything except to help me sleep.  That has been a problem for me since I had my first child.  I can't turn the brain off to sleep.
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    • Posted

      Well Laura, that is a reliee isn't it, because if you can avoid pharma medicine that is best...in term of your joint and sleep..try this product called "moa"..it is fantastic..I take it each month..since I have the Chiari and Fibromyalgia.(aching all over my body from head to toe) on top of it..chiari does not help at all..I do not know how would I cope without this supplement..luckily this tumeric and ginger help me stop my coughing and sneezing with summer month..when the pollen count are high it does not effect me anymore since I take all of those. Well Laura..thank you ever so much for your help..I will let you know how I am getting on with my Neuro Surgeon appointment on the 9/9
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    • Posted

      I will definitely, if you wanna buy moa let me know, I will order more - that is the only company I can trust to buy some supplement as the company being verified by FDA in the US - go to their website or if you like I can give the name of the guy who I buy the product from..just give me a shout if you like..I would not recommend it to anyone unless I try it my self..as i used to be a medical rep (L.o.L)..I hope you will have a much..much better day..just take it slowly..OK?..accept your condition..I know you already have the OP..however..as we are getting older..our body telling us to slowing down..mostly..it seems from what you told me..you have been tooooo active....tooo generous with your activity..just like I do..if you can imagine with any car whether its a rollroyse or toyota..the more you drive it..the tired some they are...
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    • Posted

      I have been doing too much but I think there is something else goingon like lyme disease.  I'll keep working to get some answers.  What the heck is "moa"?  Can't find it on google.
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    • Posted

      you have to look at ARIIX and if you like I can ask this guy call Paulo to contact you to explain about the product is realy fantastic..do not buy any other supplement coming from a big giant company who is doing lots of promotion scum..you like me to give his email address?
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    • Posted

      Not right now thanks.  I'm trying the ginger and things you talked about.  Maybe later I'll try the other.  Take care!
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    • Posted

      Yes, do the fresh ginger each morning and evening before you sleep with a drop of lime plus honey... in a warm water (I always prepare it first thing in the am and pm..) make sure you drink 2 - 3 ltr of warm water each day..I don't think you have lime disease...I think your immune system just too low..try to reduce the intake of gluten food and anything fry (fried food)
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