1. Community
  2. Women's health
  3. Lichen Sclerosus

Does this look like lichen sclerosus? Pictures

Posted , 39 users are following.

E24hu63
E24hu63

I posted in another forum and someone suggested I ask here. I've been feeling uncomfortable and when I looked, I noticed these white bumps in different parts of my vulva. I've noticed some before but they seem to be more pronounced and in more places. I also seem to be much dryer than usual.

Does this look like lichen sclerosus to those that have it? I can't see a doctor until the end of May and I'm very anxious about this. Any feedback would be greatly appreciated.

3 likes, 44 replies

44 Replies

Prev
  • tamra73559
    tamra73559 E24hu63

    Posted

    I was diagnosed with this a few months ago after YEARS of going to drs with painful sex. It started in my late 30’s and I was told I was in peri- menopause. I had a biopsy done which confirmed the diagnosis and was negative for cancer. The itching and tearing of the skin is awful. I was given a topical antibiotic. My case is so advanced that the scaring has caused my clitorus to be completely covered and was actually told I have no clitorus anymore and my vaginal opening has scarred over so much that my gyno could hardly fit 2 cotton swabs in. My husband and I have not been able to have sexual intercourse for years. He was recently diagnosed with prostate cancer and can no longer obtain an erection after his treatments. So we both have an understanding of what each is dealing with. It doesn’t make it any easier, I know there are other ways of giving pleasure, but I miss the intimacy of actual intercourse. 

    Oh, I am almost 60 yrs old, so that’s how long it took me to be diagnosed. Best of luck to anyone that is living with this awful condition. 

  • jo71080
    jo71080 E24hu63

    Posted

    Those look like fordyce spots. If you don’t have any pain, burning, itching or growth, I wouldn’t worry. We have a tendency to worry ahead of time. I hope you are well and healthy. By the way, LS tends to cause painful cuts, bruises and thinning, whitening of the skin.
  • rebecca24813
    rebecca24813 E24hu63

    Posted

    Hello did you find out what you have ? I have something very similar I am waiting on sti/std results and gave an appointment with a gynaecologist in a fortnights time 
  • liezl885
    liezl885 E24hu63

    Posted

    I just saw mine down there and I was shocked by how it looks! I have to see it in the mirror because I've been suffering from too much itch and I'm not happy with what I saw. My entire major labia or where my hair grows and some part of my thigh is abnormally "white", skin is wrinkled and old looking it's uglier and there are a few red spots too. It's too itchy i can't help but scratch, which only makes it worst, to a point it bleeds. I'm not sure if this has something to do with what I'm going through for over a month now, I've been having spotting/bleeding and I'm really scared and Worried. I still haven't see a doctor because I'm scared and too shy she/he look at my V. By the way, I just turned 33 and a VIRGIN. I know I gained a lot of weigh these past 2 years, I'm nit sure if I'm having hormonal imbalance or if I am already at menopausal stage at my age!

    • tamra73559
      tamra73559 liezl885

      Posted

      HI,

      so sorry you have to go thru this, it's not fun. It does sound like you have lichen sclerosus. I was finally diagnosed in March of this year, after dealing with it for about 15 years. Going from dr to dr. All I was ever told was that I was in peri-menopause and that my skin was thinning and looking like the skin on a older person's hand like when you can see how thin the skin is and you can see their veins thru their skin. Sex was so painful. Ihad a biopsy done which was negative for cancer. I was given a prescription for a cream that had to be mixed by a pharmacist. This year the itching got so bad that I couldn't stand it, so I went to see a new dr. She took one look at it and told me immediately what it was. Lichen sclerosus. A biopsy was done which confirmed it. I have been given a prescription for a topical steroid cream. I had tried different things that Isaw on the internet but nothing helped. I have no clitoris any more, and my vaginal opening is almost closed.

      I just had a breakout on my buttocks, which I was surprised because I didn't know it could happen there, but with some research found out it could, and a recent dr appointment confirmed it. You need to get to a dr to get a diagnosis so they can help you. I have been dealing with this since my early 40's and I'll be 60 this friday.

      I tried to post pictures, but can't figure out how to do it. Good luck, and get to a dr, so you can be treated.

  • megan91958
    megan91958 E24hu63

    Posted

    hey I'm 27 yrs old and noticed this last year when i was pregnant. it would itch so badly i couldn't sleep at night and my obgyn said it was just hormones causing it. i was wondering for a biopsy did you go to an obgyn or a dermatologist? is it a cotton swab or do they cut a piece out? my spots stay there but the itchiness comes and goes. im also prone to yeast infections but sometimes when i think i have one ill go get tested for yeast and itll be negative. anyways thanks for info

    • raebudd
      raebudd megan91958

      Posted

      You need to have a biopsy through your obgyn. I think they cut a piece out, but it doesn't hurt. I'm 68 years old and was told it was lichen sclerosus and there's nothing that can be done and they don't know what the cause is; great huh! I've had it for about 3-4 years or so. I use an ointment (prescribed by my doctor) called Clobetasol. You can buy at Costco pharmacy. My daughter (42) has the same thing as you; itch at night. She uses some kind of ointment, also.

  • bob33812
    bob33812 E24hu63

    Posted

    image

    im under the age of 18 never had sex and im very sceard whats wrong

    • RYE683
      RYE683 bob33812

      Posted

      HI, did you get a diagnosis? I have the same thing.

  • raebudd
    raebudd E24hu63

    Posted

    Yes, looks like it. You need to make an appointment with your doctor.

  • cath003
    cath003 E24hu63

    Posted

    hello! have you ever known what the diagnosis was from your doctor? cause i have exactly the same comdition and my labia becomes extremely dry. i worry so much.

    i know this might be late but if you see this can u please tell me what that was?

  • nata27211
    nata27211 E24hu63

    Posted

    Hi girls,

    I have the same problem... It is Fordyce Spots. You can google and get additional information about this. Don't be afraid of it.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.