Does this sound like Bronchiectasis??

Posted , 12 users are following.

Hi all

Been looking for answers for the last 2 years with regards to coughing.....yes coughing...

Been treated for Asthma, its not that

Been treated for Allergies, its not that

Been treated for PND, its not that

Had so many lung function tests....normal, on the border of slightly low...

Had a few chest xrays, normal

Been to see a Respiratory consultant, they said its pet allergies & a hyper sensitive airways dysfunction.

I cough during my sleep, waking myself up.

I do not know where to turn, fear is lung cancer!

0 likes, 37 replies

37 Replies

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  • Posted

    I have had a very bad rattly chest cough with dark pleghm production for 5 years non stop. CT scan showed no bronchiectasis. Pleghm is positive for bacteria, but antibiotics have only temporarily helped. I do have asthma, COPD and allergies, but my pulmonologist has not been able to come up with a cause or a cure for he horrible cough, which is very disruptive to my life, especially at work. I know this doesn't really help you, except to say you aren't alone in your symptoms, worry, confusion and frustration. Good luck to you, I hope the docs find something to help.

    • Posted

      Thank you - I will persevere - the most annoying thing of it all is when the Dr says its your anxiety because they cant be bothered to dig deeper! 

      I am clearly struggling sad

    • Posted

      I hear you, I have been very upset and frustrated with my docs not doing anything for me or claiming it's my allergies. But I have had the same allergies all my life and take allergy meds daily. Keep working with your docs to investigate every possibility. I know it's a struggle!

    • Posted

      Keep going to different Doctors until you find one that listens to you and keeps digging until you find the answer.

      Stop smoking!😎

  • Posted

    Hi I cough  a lot day and night I have pet allergies my mild asthma I spent years at the hospital with respiratory trying to find out what was wrong then he said he was ready to discharge me and then he said I think before I discharge u I should do  a CT  scan and there it was it also took them 13 months to get round to telling me
    • Posted

      I will try and get the answers. I was away 2 nights a few months ago from my cats and I hardly coughed but the wheeze was there still! 
  • Posted

    Have you been to a gastroenterologist to check for GERD?  Coughing is one of the symptoms.  
    • Posted

      Ive had a scope down to my stomach and a scope through my nose to the voicebox there was no sign of gerd, Ive tried PPI’s for 4 months and no different! 

      Horrid condition this! It all started in 2015 late and im still struggling! 

  • Posted

    Yes, it could be what is known as non-cf Bronchiectasia. Normal chest X-rays usually will not show bronchiestasis. I was also told I had allergies to my cats but systems never let up when I was away from them. You might ask for a bronchoscope, which would tell much more than just chest X-rays. Not sure which part of the world you live in but here in America there are a couple great hospitals that are known for their treatments on lung diseases. I lived in Alaska when my lung specialist said he needed help on finding out more and sent me to National Jewish Hospital in Denver, Colorado. They put you through every test imaginable.

    My lung specialist in Alaska first put me on some meds and after 6 weeks no improvements, he did the scope of my lungs, he then grew a culture. From this culture the bacteria Pseudomonas Aeruginosa which had colonized in my lungs. There is no cure for this, however, there are daily treatments that can help cut down the times thus bacteria raises its head. You will become more familiar with what’s going on with your lungs as time go on. The most important thing we can do is our lung cleaning and treatments on a daily level. This bacteria is everywhere: food we eat, water we drink, air we breath, BUT, folks that have a normal immune system is not at risk, those that somehow, someway, have compromised their immune system can pick this up. There are three types if this bacteria and I have the most sensitive of the three. This means that my bacteria reacts better to the antibiotics when it rears it’s head. I’ve kept it this way by asking how docs how to keep it from becoming the other two and was told by them to make sure I do not take antibiotics on a daily basis, just when I am having an exerbation. You will be able to tell when this happens. 

    Incessantly coughing is the most common system of Bronchiectasis.

    There are not many antibiotics that can treat this bacteria and one might need to have IV treatments at some point. I’ve had this disease for many years now and have managed to stay out of hospital and have not had any IV treatments, which I thank my lucky stars for. Normal OTC cough syrups will not help the cough, I’ve found tussionex which is a narcotic cough syrup will calm the cough but will not stop it. I find if I use 1/4 to 1/2 teaspoon st night I can actually maybe go 4 hours sometimes withou waking up from cough. Tussionex can be habit forming and you do not want your cough to become immune to it, so one should only take it when one needs a little calming of the cough to get rest. Do not take more than prescribed by doctor because it can be habit forming and cause constipation and you don’t want that!

    There are a couple other lung diseases that should also be ruled out and those are mycobacterium, MAC for short. 

    I have attended a couple online web Town Hall conferences on bronchiectasis that you might find informative. One was presented by Dr. Daly whom I saw while at National Jewish Hospital. These Town Hall are by registration and you can join via online or by accessing their recordings at a later date. You can find out more information by going to Bronchiectasis and NTM Initiative website. 

    I hope some of the information I have given you will help finding out what is causing your issues. 

    Oh, yes, i wanted you to know that by daily treatments I use The Vest, three different liquids in my nebulizer and another breathing devise called acapella. These breathing devices should be shown how to use by a respiratory therapist.

    • Posted

      Wow thank you. I cant accept this is just allergies I mean im coughing in my husbands face at night spewing stuff out, disgusting I know. Smoking doesnt help I know but I have so much going on right now its the only calming thing I have. 

      I stopped smoking last year and the cough persisted to the point I waking everyone up with it. 

      My throat feels blocked up all the time like strangulation of some sort. Its horrible then the throat wheeze starts day and night only thing that takes the wheeze away is my blue inhaler, weird. My lung function tests are about 350 blowing slighly low but nothing to worrying so the dr says but I just want to breathe better. I walk a short distance and mt heart is racing and im breathless! I am overweight mind you and I smoke so..... I always think lung cancer but then the dr says I Would be dead by now after 2 years with the same symptoms 

      I need to get a chest CT and be referred again for some answers definitely 

    • Posted

      'Incessantly coughing is the most common symptom of Bronchiectasis'.

      Probably yes, but I would add that it is not a pre-requisite for a bronchiectasis diagnosis. I have bronchX, but I don't cough very much (certainly not incessantly) except when doing my daily lung clearance excercises. My bronchX consultant says 'that's good' when I relay that feature on my updates; suspect she would register more interest if that was a rare/unusual outcome.

  • Posted

    I always sleep on a slanted pillow. That helps with herd and helps with coughing
    • Posted

      Do you count sheep in your dreams then Barbara?

      Gotta have a quiet chortle sometimes at the 'autofill' functions of modern comms software. I guess GERD is rarely included in their dictionaries

  • Posted

    Hi all

    My GP has sent me for blood test to check my allergic reactions towards cat dander and some other stuff including a full blood count - wish me luck sad - I feel so nervous but I really want to get down to the bottom of this!

    He also gave me Symbicort inhaler 2 weeks ago and it has worked...still cough but about 50% less!

    • Posted

      So the results are in.......my blood count was normal BUT the IGE cat dander allergy tests were abnormal meaning its a positive that I am allergic to cats......

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