Does this sound like Fibromyalgia?

Hi Paul,

That is definately f/m that you have, the same symptoms I have. It is a long hard journey getting any joy from your G.P but you have to keep at it and make them listen, there is a lot of ignorance out there as they do not know how to treat it.

Thanks Jim,

I Been worry about all sorts of diseases, Lung cancer, Lupus, Sarcoidosis. I get really bad anxiety when it comes to my health.

Whats tests are done for fibroomyalgia, or do they just do tests to rule out other things?

yeah paul, that's what f/m does to you, I have been admitted into hospital loads of times, loads of tests and they keep coming back ok. The hospital just says there is nothing wrong with me.You have to understand that there is a lot of ignorance out there towards f/m sufferers. There are self help groups set up up and down the country, it would be well worth checking one out in your area, Fibromyalgia society. and they would help point you in the right direction.

Did you have all the tender points? Because I've read that you need to have at least 11 of the 18. I have felt around my body and I have 2 on my lower back, 2 on upper chest but not as tender as back ones, and 1 on the right side of my upper back. So I only have 5. I have tender sore ribs but this isn't a trigger point from what I've seen online

Yeah I am tender all over my body, tell tale signs are if someone touches me I fel pain or tense up. I don't bother with trigger points much as F/M is also a neurogical problem, hense the continuous headaches. I have just had an appointment with a psychiatrist and everything is ok in that side of it, but this is what f/m does to me, checks checks checks all the time, even trying to get the medication right is a challenge. Looking for help or getting a sympathetic ear to listen to me is a challenge, no one wants to know. I get sore ribs as well then that dies down and then something else flares up, it is just one vicious circle. Try and get in touch with a support group andget an appointment with the pain clinic which isn't easy either.I wish there was something positive I could give you but there isn't and it is all down to trial and error as it is your body and you know whats going on.

I haven't had any test done because the doctors haven't referred me to do anything, they just think its my anxiety, I have been getting really bad achy legs, ankles, arms, wrists and hands, I get a achy shoulders to, mainly on the right side but it does happen on both sides. It last for about 30 min then seems a bit better then it happens again, the pain in my ribs comes and goes on both sides, but there very tender and sore to touch. On websites it shows you an image of where the 18 trigger points are and that you have to at least 11 of them to have fibro? I also am really breathless but it dies down when I'm relaxed and not stressed.

Dito, I try meditation it helps deep breathing

Hello im 30 and got most of tge same stuff when i turned 30 this year it all started i have thought everything from brain tumor to lung cancer to mental illness you are not alone but does anyone know of a support group online or in ontario canada? 

Did you ever get dignoised ? And are u still having all them symptoms

Paul don't wait any longer be pro-active about your health, I wish I had been like that instead of passive. Everyone except my husband and close friends believed me because they saw what was going on. The first couple years wasn't as bad as know! I have applied for SSDI in America and after 42 years of working I don't feel guilty. My new pain specialist wanted to rule it out but he really didn't find anything if greatness like he assumed. He is puzzled!! I told him my guess it's the mesh adhered to nerves deep because this happened after. Try to keep notes of everything. I wish I had kept a journal. Go to your general practitioner and get to a Rheumatologist and then go from there. No one is going to take care if you but yourself as far as being a advocate for yourself. Take care and keep us posted. 

The reason I asked if you were still having the symptoms is because your symptoms sound like my symptoms. I was diagnosed aug with rmsf/ lyme diease. 

HI Paul, I don't know if you'll see this reply but a lot of my fibro pain has stopped through cutting out dairy, gluten and meat. Hope that helps Jackie

Started getting the same set of symptoms very intensely one month ago. Now that it's decreased somewhat I've started doing heavy weight machines at the gym to help managing the pain and aching and cramps and awful malaise. I had to wait a few weeks for things to calm down some just in order to drag myself outside again. I also changed my diet to strict AIP, and I blend about 70% of the ingredients to improve my absorption and still generate some salivary enzymes from chewing the 30% unblended food. My doctor also put me on 40mg Omeprazole which I don't like but it has made my reflux go down. Also started doing autonomic breathing in the morning to calm my nerves. I feel like I'm improving, although I'm still in bad shape compared to two months ago. Had low-grade and multiplying symptoms for years, and the hard achy lymph nodes and glands even longer, but during this past month something must've set it off and it just became unbearable. Started with a slight malaise and ramped up after a week into me curled up on the floor gasping for air. A few nights I had to force myself to stay in bed and not go to the ER since it would bankrupt me. After so many years of GPs telling me nothing's wrong I don't trust my instincts anymore. Still considering whether I could have something serious going on in my abdomen or back or lymph or lungs or glands though.

Any news on your condition or diagnosis?